r/PelvicOrganProlapse

I think I’ve had a bladder prolapse for over a year but only just discovered it now. I had no idea what it was all this time. I strength train 5 days a week and am reading that lifting heavy is not good for prolapse. What exactly is heavy though? What kind of exercises are considered ok? I usually do back squats, Bulgarian squats, step ups, RDLs, dumbbell overhead press, bench press, rows, these types of exercises. I know my prolapse is stage 1 but I am scared and do not want to make it worse. In your experience did you continue lifting weights, change your routine or stop altogether?

Has anyone else had painful sex develop many months post surgery? I had bladder sling and hysterectomy.

Its a brand new kind of pain than before, primarily in my bladder. Like someone punched it repeatedly, and afterwards it hurts to pee.

Ive already contacted my doc about it, but i was wondering if anyone else has experienced this?

I become aware/became stage 1 after trying Couch to 5k running (literally just two gentle runs with pauses for walking) about 6 weeks ago. I've been seeing a pelvic floor specialist physio almost weekly since and doing the exercises twice daily. Last week she since me off for using some weights in the exercises. So I did bicep curls (seated for safety) with 5kg weights for a couple of days.

Well now I've had two days of bulging feeling, terrible back and pelvic pain and I've progressed to stage 2 with something outside for the first time.

I feel utterly depressed. Planning to try estrogen cream and a pessary.

Has anyone ever had their prolapse move up a stage so fast? I feel panicked, like I'm in a living nightmare. Is it normal or am I really unlucky??

Please share your experiences, tips or anything that might give me hope or just more understanding!

Hey all,

I am 38 and I have a cystocele and a rectocele from a previous birth. I want to get pregnant again, and for years Ive told myself “no way another baby is coming out of there again, I am having a c section if I have another.” However, I recently came upon a bunch of studies that suggest that autism is higher amongst c-section delivered babies… ugh. Here comes my multi-part question… Does anyone have any experience with this? Has anyone had prolapses and delivered vaginally and been fine? Has anyone had planned c-sections and had babies who were ok? Overwhelmed and worried.

Hi,

Since a sudden onset 6 months ago, after having very bad consipation and a sudden nerve irritation,

I have a developed a persistent vaginal pressure issue where my pelvic floor does not automatically respond to intra-abdominal pressure.

• Constant downward pelvic/vaginal pressure sensation

• No reflex support when standing, walking very bad when coughing

• Worse in upright position, slightly better lying down

• Voluntary pelvic floor contraction is intact

• No incontinence no pain but myofascial bands due to over pressure

• No prolapse or neuropathy found on evaluation

• Pelvic floor physio tests show normal strength but absent automatic response under load

All structural causes have been ruled out.

Has anyone experienced something similar?

I’m in the process of heading towards surgery. And mostly what is here is not encouraging.

Could I hear some success stories please!

When i use the squatty potty or the toilet i can see my anterior wall through my vagina hole a couple of inches back. When i feel it, it doesn’t necessarily feel like a ball put more of a hammock coming down. Is this a grade 1 prolapse? I have never been pregnant but have chronic constipation that I am now working on fixing. Thank you for any help I have been so stressed.

I really need some guidance. I’ve been to countless doctors and they all say they see no prolapse but none of them will EXAMINE ME RIGHT!!! I started to notice four months ago extra tissue down there and every textbook symptom of a cystocele. I feel inside and there’s a squishy ball like tissue in my vagina and it looks like my urethra is sort of dropped. When I sit infront of my mirror and bear down i see what all the pictures look like of a cystocele. It seems like the tissue in front of it is blocking the view which maybe is why they’re missing it. It’s not really noticeable laying down but none of them will examine me standing or sitting up. I really don’t know what to do. I haven’t given birth or had children or anything. I’ve been on a spiral. Every doctor I see says it’s just a hypertonic pelvic floor or that it’s not possible to have one at my age. I’ve been to countless doctors. I have constant pain and pressure, urgency, and retention. How am I supposed to live with this ? From things I see online it could be a grade 2. I’ve been very suicidal over this.

Hi everyone,

Wondering if anyone has dealt with what almost feels like a posterior rectocele? I have a large pocket in my rectum off to the back left side where stool is constantly getting stuck!

I have an extra vertebrae in my sacrum and it curves inwards. The muscles around it are very tight and my pelvic therapist thinks that the muscles are pulling the rectum. It is so uncomfortable and now I’m using suppositories or manually evacuating to rid the stool from that area. Google has been no help

Thanks all ❤️

Does anyone else have this. I have severe low back pain all the time even when I haven’t done anything. When I go poop it’s like the back pain gets even worse, which I try to relax my pelvic floor and it seems to drop down but everything just feels super tight and then after I feel numb in my low back and pelvic floor. Same things happens when I have sex, during and after my back pain seems to cause numbness in low back and pelvic floor..

I’ve already seen specialist, done pt, do all the things everyone recommends and still not getting relief I actually feel I’m getting worse and worse, I’m getting very depressed and starting to feel suicidal because of all this.

Wondering if this might help? My symptoms are worse when I'm ovulating and menstruating so wondering if I should try this.

Maybe it'd be better than the estrogen cream?

Or should I try both?

Would love to hear from others who have tried either. I'm stage 1 bladder and stage 2 uterus. Thanks

Just feeling frustrated. Bladder prolapse with stress incontinence. I tried the dish and I tried the ring with knob, both press on my bladder/urethra and actually make me leak more. The doctor tried different sizes but it appears I'm in between sizes so I'm not sure if I can go with a bigger one. The only thing that helps me not leak is a menstrual cup, but it feels too bulky to keep it in all the time. I asked the doctor about a cube, but she said that doesn't work for incontinence. Is that correct?

I'm only a couple weeks into a stage 2 rectocele diagnosis and I feel like I'm dying. By the end of the day I'm in so much pain. I can't pass gas or poop without splitting now and I'm even struggling to get things out by trying to splint.

I'm so miserable that I just want to lay down and cry all the time and I have a 3 year old and 8 month old I need to care for.

Sex is either painful or completely numb.

I feel like I'm failing my family, especially my husband.

My Obgyn sent in a referral for PFPT almost 2 weeks ago and I still haven't heard anything. I'm considering whether I should start the process for surgery.

I'm 36 years old and had 2 children vaginally. We are done having kids.

Any recommendations? Advice?

does anyone elses prolapse worsen right around when they should get their period? i want to make sure this is an expected finding I’m on the estrogen cream so I’m surprised that doesn‘t help maintain my symptoms—it seems like I get better every month and then my symptoms are almost back to where they were initially postpartum

I was diagnosed with a minor rectocele last fall because I felt a bulge and had to press up on my perineum when I have a bowel movement. I went to pft consistently for 3 months and now just go for check-ins every month. I have an uncoordinated pelvic floor with some tightness. I was less symptomatic in January and Feb but this week I’ve had to splint in my vagina to have a bowel movement and I never had to do that before. Does that mean it’s getting worse?

I am nine years into having progressively worsening cystocele, uterine, and rectocele prolapses. I have tried pelvic floor therapy and multiple styles and sizes of pessaries. I finally caved and said ok to surgery and was sent to a uro-gynecologist. I had the evaluation today and they said while I'm laying on my back the rectocele is not so bad but the bladder is worse than I reported. Yeah there is a difference between me laying down and me sitting up the reverse would have been true if I was laying on my stomach and weirder if in my side. Yes, things just flip around in there. So I have to go back in six months of literaly doing what I've been doing for nine years and they are demanding I get a colonoscopy first. Why do I need a colonoscopy? The guy, office doesn't have a female, said it's because the prolapse isn't as bad as colon cancer.

I'm not worried about colon cancer I'm worried about the fact that I can't go for a walk without my insides falling out and being pinched by my fat thighs or coughing without having to push my organs back in or having to use a splint to take a shit. Yes fine cancer is big but I have no markers or family history for it.

Help, opinions, thoughts?

Hey All

ive been posting recently about my possible surgery failure with posterior colporrhaphy and perinnialplasty.

unfortunately, it seems like the prolapse has returned. I felt symptoms really early on, like less than 2 weeks post op. I haven't gone a day yet where it didnt feel like pre op symptoms (incomplete bms, pressure when standing) and I do see a bulge. I dont bear down but theres a small one at rest (under the size of a dime) and it gets really big with pressure.

The clinic called me to tell me it sounds like the prolapse has returned but that they dont have any space for me to come in before my ap. in a few weeks.

Just not sure what the next steps are, the nurse had no information on if this will improve short term, let alone long term. didnt have much to say about what else could be done either. feels like it was my fault for choosing the wrong clinic and not sure what options there are now. any advice or experience is appreciated

I had cystocele, rectocele and uterine prolapse surgery last year. Had a hysterectomy because of it.

It's been a year, and a am very active.

I recently have seen fun jump roping videos on TikTok and wanted to try it out. I now realize I pee everytime and I am now thinking I may need to start physical therapy to strengthen things, again. But, should I just not rump rope in case I ruin my pelvic floor?

What a bummer, I was having fun learning, but if anyone has insight to this, I would love to know!

Hi fam. 12 days ago I underwent a uterosacral hysteropexy, anterior colporrhaphy, posterior colporrhaphy, perineorrhaphy, tvt mesh sling placement. Immediately after I was in urinary retention requiring catheterization. This went on for a week when they finally took me back (last week) to loosen the mesh. I peed right away but within the next hour was in retention again.

I let them know Friday that things were not going well and they told me to follow up on Monday. That should give us enough time to see if anesthesia is complicating it all and to see how things are progressing. I reached out Monday saying there is no change. I did not hear back. I reached out Wednesday today saying I am getting a bit frustrated and what’s the plan?  And I get a response from the nurse that I just I’m so mad about. She basically said that my surgeon is out of office for 12 days and to just keep plugging along.

They kept telling me that retention was rare. Therefore, I would expect a little bit more follow up from the surgical team instead of being dismissed.

I am just so frustrated. And now I have to wait passively for like almost two more weeks even though they asked me to tell them how I’m doing Monday. Like why if you wanted me to ride it out when you wanted me to follow up in close interval? I am a healthy 39 and I like to drink water. So I make (now that I am painfully aware of my voiding function and volumes) about 500 ml every 2-3 hours. It’s a lot of pee. A lot of cathing. I just want to run again and play with my two little boys and this whole thing was supposed to be an exciting way to get Me back to MYSELF after the trauma these big babies did to my pelvis.

Mostly venting about this crap. And if anyone has any similar stories or anecdotes I’d love to see a light at the end of the tunnel.