r/cleftlip

How do I look?

How do I look?

I'm 42f, with self esteem on the 100th floor of Hell. This was last night, no filter (flipped the right way so not a mirror) and I really struggle to see what I can do to make myself look any nicer. I can't seem to get anyone to take the mole off my face but I'm awaiting a fat graft on my lip and a 3rd septorhinoplasty. Fingers crossed the septo works this time. I am like the Lady Lazarus of clefts, if there are any Plath fans here.

I came out of a relationship last year that ended through his cheating, so that didn't help me with much.

I'm suppose I'm looking for ways to make myself look any better than I do.

u/jlibertine — 4 days ago
▲ 82 r/cleftlip+1 crossposts

1 year 2 months follow up to my Lefort 3

In March of 2025 I had my Lefort three to reconstruct my entire jaw and I recently had my roughly “1 year” follow up after it had to be rescheduled due to a minor issue related to my insurance through work never updating that I moved states (is fixed now and it’s the exact same coverage so it was just bureaucracy being bureaucracy)

I have to say more and more I think it was worth the literal headache to get the Lefort 3, as even though it still feels bizarre to have my top and bottom teeth touching I’m able to eat so much quicker and with less pain and struggle. I’ve also been told I talk more clearly now as well.

The next step for me is braces now that they have determined my top jaw has infact healed without issues (as determined from my January X-rays, don’t have my May X-rays but was told they look phenomenal!) and I can’t wait to see my final results!

u/Dodo06_ — 6 days ago

Possible Cleft Lip. 17 week Scan

Hi I’ve been told at my 17 week scan that my baby will possibly be born with a cleft lip. Would anyone know what sort of cleft my baby boy will have from these scan photos? I understand people aren’t professionals but just any advice or any similarity’s to theirs. Please and thank you :)

u/Visual_Barnacle_6492 — 17 hours ago
▲ 12 r/cleftlip+1 crossposts

Cleft lip 17 weeks

Hi we went for a 17 week scan today and have been told our baby has a cleft lip. Can anyone tell me from this picture how severe it may be ? TIA

u/Visual_Barnacle_6492 — 4 days ago

Adoptable cleft lip pup in Houston, TX!

Walked this precious girl this weekend. She’s a 1 year old and 33lbs American bulldog/pittie mix. I love her!!

u/LongStatus7859 — 3 days ago

We've known since my 20 week scan that our baby boy has a cleft lip. Originally diagnosed as unilateral complete cleft lip (L side) only, palate intact. But yesterday at our 32 week scan they revised the diagnosis to Midline cleft lip (11mm) and hard palate, possible soft palate. They sent me into a spiral when they said midline is often associated with brain defects as it is quite rare.

My question is, how rare. Of course I've googled everything endlessly, which has just left me more petrified and with more questions.

reddit.com
u/Darksideofthemoon191 — 6 days ago
▲ 119 r/cleftlip+1 crossposts

About 1 in 3 patients with cleft lip and palate benefit from jaw surgery.

Aligning the upper and lower teeth helps people to fully chew food, to speak clearly, and to reduce wear and tear on the TMJ's.

We also consider facial balance and harmony when planning the surgery and final outcome.

Jaw surgery can often be done in a single surgery, sometimes involving just the upper jaw, and sometimes with the lower jaw as well.

Here, the amount of advancement was well over 10mm, which is the point at which we usually move towards distraction rather than a single surgery.

Distraction involves cutting the bone and freeing up scar tissue, but then gradually moving from the starting position by 1mm per day to reach the end goal.

New bone is deposited in the space made as the upper jaw moves forward. The surrounding blood vessels, lining, and old scar tissue all expand and accommodate the new bony position.

We usually keep the hardware in place (much more comfortably after finishing advancement!) for 3 months while the new bone hardens.

At that point, minor adjustments can be made as needed with additional movement or augmentation, or just removal of the hardware.

We also performed some fat grafting to the upper lip to help with balance and symmetry.

He is seen here at 1 year after surgery, with braces off!

u/LawPlasticSurgery — 12 days ago
▲ 17 r/cleftlip+1 crossposts

For context, I'm also missing my incisor. I recently had jaw surgery and my orthodontist said possibly another year but that feels next to impossible. Been in braces 7 years and feels like I have another 7 ahead

And for anyone who is curious, the thick wire is meant to reshape the arch of my teeth as it collapsed during surgery

u/xBluePoolX — 9 days ago

Cleft babies and kids need an above average kind family

If your other kids have severe sibling rivalry and lack real empathy and general kind traits then the cleft kids will face troubles.

I believe cleft kids need a true peer ally where being kind "just because they feel bad for them" while deep down being as prejudiced and ill spirited as the general population, just spells trouble for the cleft baby/kids.

reddit.com
u/Shootingcomet — 3 days ago

Hello,

I've been a long time observer of this group, and I want to say that I'm so thankful that I've found this community. Everyone is supportive, kind, and helpful when it comes to appearance, struggles, and advice. So here I am, nerves down and confidence up, ready to ask for advice or stories relating to your own personal experiences🙏 I'm long winded, so I apologize in advanced for that.

I accepted my facial asymmetry a long time ago. I like my face. I dont mind that I have thin lips, my unique scar, or that my nose is a little wonky. As an artist, I've embraced those differences and create my own fantasy characters with similar attributes.

However, love for my own teeth have been a struggle. I recently went to an orthodontist and I was terrified of what she said would come. She explained that I would have to expand my upper jaw (which, I figured.) But she said she would put in the expander that would last at least 8 months, but around month 3 or so, it would crack the cleft area in my jaw, and I would get a bone graft to gain bone density to be able to shift my teeth around properly. She said that during that time, a hole/gap would form from my palet to my nasal cavity, and that's just something I would have to deal with until they closed it back. Is this something that anyone has experienced before? She said she wouldn't be removing any teeth because mine are healthy, but, wouldn't that make the process a little easier? I also understand that an ortho's purpose is to make my bite and smile match and be even, but what if I'm not looking for perfection?

Truly though, my biggest issue isn't my crowded teeth. It's that where the cleft is, two teeth are much smaller, so when I smile or am in a candid shot, it looks like I am missing teeth on that side. Are there options to just extend those teeth by enamel crowns to at least have that opening closed between the top and bottom? Am i crazy for thinking that could work for me? It just seems like at 36, the gap being forced open for an undetermined amount of time and the surgery recovery time just seems like a nightmare.

But what are your thoughts? Have you ever had enamel crowns placed over smaller teeth instead of intense ortho work, and/or is that even an option? Were you an older adult when you started orthodontic work? If so, how was that experience for you?

Thank you for anyone who took the time to read this, I know it was a lot. I appreciate any and all insight​ that comes my way.

Much love💜

u/Desperate_Cherry_295 — 11 days ago

Parents Posting Here…

There is r/cleftparents for you to get questions answered, advice, etc. It may be more helpful to you than posting here.

reddit.com
u/Jolly-Pirate-8591 — 5 days ago

I proposed to my college crush, but she rejected me (it was 100% predicted, so no problem, and I moved on). However, a few days later, she posted a WhatsApp status which says, 'Someone's wish is someone else's nightmare.' She is the kind of person who does not post statuses regularly or at all, so I think she is referring to me, and it destroyed my overall confidence and hopes of getting into a relationship. I know I don't have a normal face and I look ugly, so it's obvious I would get rejections, but getting a 'nightmare tag' even though I didn't do anything harmful to her is giving me emotional pain. The main problem is that I can't share this with anyone like how could I tell my friends or siblings that I got called a nightmare by my crush, whom I waited five years to tell about my love, only to be called a nightmare?

reddit.com
u/Wrong_Clerk7415 — 9 days ago

Hi, I'm hoping to hear from other mum's who found out their baby had a cleft lip at an anatomy scan. I'm UK based.

My story is very difficult. My first son was tragically stillborn last September - a week before his due date. The cause was an undetected small placenta.

We fell pregnant with our rainbow baby 3 months later.

We recently found out at our anatomy scan that he has a cleft lip. Unilateral cleft on the right side and likely complete. The consultant said it's small (1mm at 21 weeks). He said the inside of the mouth looked good but I appreciate the palette can't be properly looked at until birth. The rest of the scan went well with no abnormalities noted. My screening at 12 weeks came back low risk. We have no one else in the family with a cleft.

Today he asked if I wanted other screening. Given my history, I just can't take the risk of amniocentesis. If something happened I would never forgive myself. Equally, I am driving myself insane thinking this baby could have an associated syndrome/be very unwell.

I just wanted to know if many people go for the amnio? I think if there were any issues with organs detected I would have went for it.

reddit.com
u/Emma_M3399 — 8 days ago

I was born with a cleft lip and palate. I sought out this community because I am curious as to how other people view me. I’ve gone through countless surgeries for functionality, but I’m 19 now and am looking to get cosmetic surgeries. I’ve always wondered what people notice about my face. my family and doctors say that I have a ‘normal’ face, but I know I don’t. I want to feel more comfortable and confident in my own skin. In effort of this, I’ve gone through pictures of myself and have realized my facial features appear differently with the front or back phone camera, so if someone could let me know which one is more accurate that would be great. Additionally, I’d like to know what you notice about my face and how I could cosmetically improve it to make it more symmetrical and appealing. The first picture is front, the second one is back.

u/Expert_Custard_4349 — 7 days ago

Hello, everyone! I'm looking for someone to connect with—I don't have people like as my friends and I really can't talk about my struggles to my friends because they wouldn't understand it. Please, if you're interested, DM me!

reddit.com
u/Hopeful-Curve-2644 — 10 days ago

Were any of ya’ll born with cleft palates and lips?

I was born w a cleft palate and lip and have always been super insecure about it. Like… it’s stopping me from talking to people and I always think that other people just think i’m ugly.

How did you guys get over it? Been struggling for 13 years now 💀

reddit.com
u/BitSignificant2616 — 5 days ago

After jaw surgery

Complete unilateral cleft lip and palate. Lefort 1. The underbite was so bad that they had to move my lower jaw too. My palate is still pretty messed up, so if anyone has any good recommendations for surgeons in Arizona, I'd appreciate it. Overall I'm happy with my results.

Has anyone had success with an obturator instead? I already tried getting my palate closed again and it failed, so I'm weary of getting it done again.

u/Drymarchon — 4 days ago
▲ 9 r/cleftlip+1 crossposts

hi! i’m 18f and i’ve really struggled with my image my whole life bc of my cleft. now that i’m 18 i can get cosmetic surgery done but i am scared that i will regret it when i’m older. i still hate how i look and i assume i always will, but what if i regret trying to look “normal”. my plan for awhile has been to get my nose done as soon as possible and leave my lips alone until i’m older and really know what i want. i know my cleft is very noticeable because of my asymmetry, but i personally think that my lips are kinda cool and i would be fine with leaving them if i was symmetrical everywhere else. i struggle the most with my side profile i absolutely hate how droopy my nose looks. what surgeries would you recommend? just like a rhinoplasty or should i do something more or less? i just want a nose that looks normal and even, so i really just need the tip of my nose to be up a little more and a bit smaller, and my nostrils to be smaller and even. would that be possible with a rhinoplasty? and also would a scar revision make my asymmetry even worse? i’ve never taken pictures of my side profile let alone post them publicly and almost all of my face pics i just scribble out half of my nose and if my lips look weird. so this is very out of my comfort zone. i also know i’m not a looker and i know it’s obvious so no comments on that haha please

u/No_Passage_7293 — 12 days ago