r/SSDI_SSI

Why can't the government actually do something that benefits the people by raising the SSI asset limit to reflect 2026 and stop just talking about it? Either make it so you can own one car per adult or raise the asset limit and stop leaving it unchanged since 1989. It is unfair that two single adults on SSI can have one vehicle excluded regardless of value, but once married, they can only have one. It's unfair that a household with a disabled child can have one car with a value of $60,000, and the same household can be disqualified because their two used, high-mileage cars have a value of $11,000. People are not fooled; they know the only reason this goes unchanged and why the government continues to use the whole needs-based terminology is to take away benefits. Let's be real, it's not needs-based if it was you wouldn't need medical evidence of a disability.

Well I got the generic message apparently about the non medical and to see if i am still eligible.. not sure what the problem is yet, I guess i gotta file another appeal. This is such a long depressing journey.. its so draining.. why would someone at the attorney office say lookout for payment in my account and then I'm hit with a denial... I remember someone told me previously to ask the questions to the person I am paying and I made a comment about I did ask the questions and they seemed just as confused so how can I trust it.. here is another situation that makes me question the party hired.. im so lost at this post and just going with the flow now.. Does anyone know the timeframe for ALJ hearing? I guess that's the next step right? Prayers and good vibes for everyone waiting..

I am in Stage 4 initial claim and was not sent to CE .

I just had my SSI Application Interview this morning. The interviewer said “I’ve had people without a lot of stuff going on but you take the cake” under these circumstances I guess it’s a compliment??

I’ve gotten different answers and have seen people post different things that suggest backpay can vary depending on your estimated onset date? Even if your onset date is 2.5-3yrs ago you’d be eligible for that back pay of 30 months less 5?

Just wondering how it goes. Any answers or insight would be helpful. Thanks!

I just have a general question. Let's say you make around $894 but you also got a new job that pays you by weekly ranging from $460 to $550. For one month your paycheck went over $28 of the $2,000 limit so now you're checked went down to $671.

The letter they sent you said they were only holding $99 but if my math is correct that is more than $99 right?

I am already paying them back for when I worked back in 2024 for 4 months and only gained a total of $4,960 but to them I owed them around $12,000 that unfortunately has not been paid off yet.

Is it the survivor's benefits that I received? What is with the $2,000 limit anyway me personally as an individual I need at least $2,150 but I can't survive in this freaking economy if I'm being charged every dollar I go over the limit.

I asked for an appeal but do I have to look into a lawyer?

I'm a 22 year old male. With autism and health problems. I'm getting on SSI right now.

And I want to move out of my parents house.

I have severe anxiety and stress and social anxiety.

I don't want roommates or anything like that.

I would absolutely love to live in rural areas like near the national forest.

I live in Idaho near pocetello.

I know section 8 housing is a thing but it takes years to get on.

I want to move out right now. I can't stand the noise from my parents 'siblings cars outside bother me too.

I have sensory problems.

How would I be able to move out on SSI to a quiet spot like a secluded area.

if someone cashed a check on ssi and spent it down on something would they still put you over resource limit

It’s been a long journey with SSA(Since 2023) I know those who are going through this difficult, ongoing process feels exhausting as well.

Appointments, doctors, medications, Forms, constantly checking the portal for a miracle, medical equipment etc. I’m praying for everyone who’s truly unable to work to get that favorable decision soon🙌🏽

Don’t give up! Only the strong will survive…

Can anyone be thoughtful to share their experiences with me in reference to their “REMANDED HEARING?”

Thank you🫶🏽

I've been receiving SSI benefits for the past 10 yrs. This summer I turn 62 and will be eligible to start receiving my Social Security retirement benefits. The amount i'd be getting taking them at 62 is within $25/month of my SSI disbursement. My questions are: Do I have to switch over to retirement benefits on my 62nd birthday and, if so, will the SSA automatically make the change, will they contact me to make the change, are there preparations i need to make ahead of time and what might those be???

I apologize if this maybe isn't the best flair, I'm really not fully sure how to handle this situation.

I live in a household with my spouse, and their family member. The family member owns the home, and we rent the upstairs. They are on SSI, and we pay rent to the homeowner at about 50% of the mortgage, and pay most of the utilities and share some food bills here and there.

What I am concerned about, is the fact that the homeowner initially didn't even want us to report this address as our primary residential address, and when I pressed further after moving in, I made it clear I had to report my primary living residence as my primary address to the government, and we ended up agreeing and I did so.

I have just found out, after being here a year, that they refuse to report us as occupants on any type of paperwork for anything at all, and in terms of their SSI paperwork, they list only 1 occupant of the home. Their reason for doing this, as I discretely found out, is to ensure that their SSI benefits don't change, as they are worried they may have the benefits reduced.

From my understanding of SSI, this is a clear violation of the rules and laws set forth regarding the programs, and I also feel uneasy about it as I feel my spouse and I are participating in something explicitly against the rules.

I'm not entirely sure how to handle this, as I know it is wrong to report false information such as that, and while I am not trying to be some sort of prick and reduce their benefits, I feel getting this handled one way or another is the right thing to do.

My autistic adult grandson applied for SSI in June 2024 and was awarded in February 2026. He received a letter today from SSA stating they want to have a phone call later this month to see if he’s still eligible for SSI.

Any idea what this is about since he just started receiving his SSI?

My mother is on both regular social security and SSI. In April, she fell and it caused a brain bleed which led to a hemorrhagic stroke. She was in the hospital for 2 weeks and then spent another 2 weeks in acute rehab. While being in the hospital, they gave her blood pressure medication to lower her BP to reduce the chance of the brain bleed to get bigger. The BP medication ended up lowering her BP too much and caused her kidneys to fail. So now she has a stent in her kidney, a tunneled catheter, and is on dialysis three times a week. She spent about a week in the medical unit in the hospital and was moved to a nursing home for rehabilitation.

I talked to staff over the phone yesterday about her treatment plan and her insurance (Medicaid and Medicare) will only cover for 30 days. Then she will go to long care, which is when they will take her social security and SSI.

We live together and split all of the bills, including rent. So I’m trying to figure out how I’m going to pay everything by myself because my goal is to keep where we live so she has a place to come back to. But being realistic, I don’t think she will get well enough within 30 days.

My question is, she gets her two payments the 1st and 3rd of every month, unless it falls on the weekend. She is scheduled to get out of rehab at the nursing home on June 6th and then go to long care. Would I still be able to use her payments for bills in June since it will likely already be deposited or will they try to take it back? Or will they start taking her money starting in July?

I’m planning on talking to someone at the nursing home next week and I have an appointment with a care coordinator at the mental health facility I go to on the 18th. I just want to ask other people for, hopefully, peace of mind until then. I just need to find out if I have until June or July to figure out how to transfer a lot of this stuff in my name.

So i draw DAC survivors disability from my deceased father, he worked for 30 years in the coal mines back breaking work, got black lung and kidney issues and died at 49 and i draw it from his record. But i have always wondered am i still taking from the taxpayers or getting welfare i guess. I hate the feeling of feeling like i'm a leech on society it's just hard but i also feel like i'm just drawing what my father paid in and couldn't draw for himself But yeah what would i say to someone who says otherwise? Also this is kinda a embarrasing question to ask but anyway's i want to ask it. also with all this fraud taking place all over the country it makes me feel like i'm to apart of the problem by drawing the income i get.

One more question i have is i'm hearing social security is gonna run out by like 2032 or something so am i screwed? Thanks so much for answering this.

Edit: Everyone has been so helpful and encouraging in these comments. thanks alot guys for reasurring me, that helps more than u know!.

We get SSI and section 8 housing assistance. We've lived in this house for 13 years and have a good relationship with the landlord. We got curious and are wondering if we'd be able to ask the landlord about renting to own since we're not planning on moving any time soon.

However, the process is starting to sound a lot more complicated than we thought. Is this even something worth looking into if we only get SSI and section 8?

I currently get both SSI and SSDI (adding up to $1,007 a month).

The state of Michigan automatically started paying me $14 a month (paid quarterly) when I first started getting SSI. I’ve been trying to look online and I’m a little confused but I’m thinking that that $14 is not the same as SDA, it’s just a state supplement if you have SSI.

So I’m just wondering if you can get the SDA on top of SSI/SSDI. Honestly can’t find a ton of information or answers about SDA through the Michigan website so if anyone knows anything I’d really appreciate it thanks

Something woke me up I checked the email I had an email about the portal sign on says I moved to Step 4 ok thinking it's about time. The day goes on I'm like let me call my lawyer and give him the update I call no answer, I call again I get an answer so I'm like we got action on the portal he was like I was about to call you your APPROVED I'm like can you say it again he's like your approved just talked to the judge 😲. He was like hello cause mind you I'm in shock I got approved from No ember 13, 2023 TYJ because I have been slithering by with prayer and now I can breathe this will help me get out of all these holes I'm in

I promise all your post in here kept me going and praying thank y'all so much for this platform 💪🏾 we got this just keep pushing to make them hear you because giving up is not an option when it comes to our health

I had a hearing, but was allowed to change the date to get a lawyer. What should I be doing to become more successful in the case?

Previously, I got denied due to a lack of proof (they did not get my psychiatrist history or hospital stays at all), which isn't helping with getting a lawyer. However, I am a "helpless child" by the VAs standards now (I am a disabled adult living with family, so they consider me a dependant) with just my autism diagnosis paperwork. I have a history and proof of disability, but I don't know how to get it.

I was in an online college which got me denied from one lawyer, but I am not able to continue because of mental health reasons. I am unfortunately below the satisfactory GPA. I had so few classes that failing one made it drop so low, and I keep failing the class because of my mental health. :(

Essentially, I'm trying to get SSI for mental health and autism (level 2/significant support needs). How would you go about getting old paperwork from mental health hospitals, especially ones that have very little way to contact them?

Hi all. 💜 I received the great news that my SSI application was approved without having to appeal after 12 or 13 months of working on this process! The amount I’m receiving seems very low, but of course I am happy for any help!

Unfortunately, my food stamps recertification papers that are sent every 6 months just arrived. How does one go about reporting new SSI payments and backpay without losing food stamps money? Basically, I’m worried they will see it as my income “increased” due to the new payments, but in fact my income has decreased because I was previously living on borrowed money from my family and now SSI is replacing that money they were giving me, but it’s a lower amount than I was previously getting. I’m also on Medicaid but I’m pretty sure that recertification won’t be affected because I’m still under the income limit even if they added both incomes (borrowed and now SSI money) together.

Basically, how do I properly report the SSI money without losing my food stamps payments? I can’t survive without the food stamps money because the SSI payments are so little, it would easily all go toward groceries with nothing left over for other expenses. Thank you. 🙏💜