r/PeyroniesSupport

Hi!
Is it normal to still have swelling in the penis and pelvic area 3 months after the last Xiaflex session?

Has anyone had a level of swelling like mine? I just want to know if my body is going to heal someday.

Diagnosed 2020
Treated 2020-2022
Some lingering and likely permanent but comparatively minor physical issues, and some mental health things i keep working on. But the plaques/disease are gone and the deformity is mostly gone.

AMA. Happy to answer just about anything. This shit sucks and is a very lonely journey. Thought maybe it would help someone.

Developed Peyronies around 24 years old (currently 27). It has been pretty devastating overall as I’m sure most guys here understand.

I had a very healthy and active sex life before the disease and now my confidence is completely ruined. I haven’t had sex in over 2 years.

I think I’m in the stable phase, but it’s hard to say. Sometimes I feel that it is just progressing at a much slower rate.

I’m absolutely terrified of making it worse. I can get and maintain erections and don’t have any pain, but masturbating even gently usually makes me feel a bit tender down there after 10-20 mins which is scary. The curve is at around 30-40 degrees (I know, not the most extreme) and very close to the head. It’s just very unnatural looking and I know that sex would put a lot of pressure on the curve.

So as a result of being completely ashamed of how it looks and being scared to make it worse, I feel like this is just my life now. I suppose I’m celibate and nothing will change most likely.

Hey guys, diagnosed in Spring 2024 and been in the chronic phase since Spring 2025. I ended up with an upward curve but ultimately have not had any major issues with sexual functioning.

I am sure many guys in this sub can relate to anxiety around their curve somehow worsening or the development of new plaques. One that’s recently come to mind is underwear choice. I wear briefs which can be more restrictive when aroused. I am wondering if it’s possible for underwear to cause existing curvature to become more pronounced over time.

Hey im 18 and im extremly stressed ive fucked myself up now i havent got any offical diagnose for peyronis or anything else yet so im not entirly sure if i have peyronis or somthing else or nothing at all, but i just wanted to talk abt whats been going on and see if i can get any insight or confermation that my fears are true or if im just completly delosional. (Warning im gonna be pretty blunt with all my facts)

Okay around about 6 months ago i started seeing this girl and we begun dating for atleast 2 months when we would makeout and all she would lay on top of me when i was erect, this would result in me having discomfort in my pelvis which felt kinda like muscle strain this lasted for a few hours afterwards and somtimes a deeper discomfort in my shaft occured,

Then one night when i was masturbating i relised i was softer than usual this freaked me out so much to the point of almost a panic attack,

Soon after for the next couple times id be less hard and then somtimes id be perfectly normal, along with my penis not standing as much while erect and laying more towards my stomach when laying down.

After rigrous sexual activity or sexual activity for long periods id feel that deep discomfort in my shaft and when i bend my penis to adjust for certain angles it feels uncofortable and ever so slightly sore (this could very well be me just pushing my penis to uncomfortable angles) my penis seems to have a bend in it aswell nothing insanly notable and maybe i just never noticed it before but idk.

I dont expect any 100 percent correct answears or cures in the slightest just any idea of what these symptoms could mean or possible have done to me like the begginings of peyronis or somthing else? Any help is greatly appreciated as i dont know where else to go to ask for help, i have booked in an appointment at my local sexual clinic but until then any help or insight would be more than appreciated, thanks

(Srry if this is a weird or unsual post for this subreddit but i just didnt know where else to go to talk abt this and seek help)

I was diagnosed with Peyronie’s disease on July 11, 2025. Since then, I believe my situation has finally stabilized. I have deep scar tissue on the left side of my penis, which causes an hourglass deformity. I also have ED — honestly, it’s been a long time since I’ve had a rock-solid morning erection. There’s a slight curve while semi-erect, but once I’m fully erect, it’s straight.

I want to tackle this head-on and not fall into the deep despair I’ve been seeing all over this forum. What are some things I can start implementing right now? I want to try improving my situation before I even step into the conversation about getting an implant (though it’s honestly looking like I might eventually go that route).

Any advice would be highly appreciated. Thank you.

Are any of you able to counter bend with the longer bars in? Don’t you stab yourself?

Hello, my penis takes on a slightly hourglass shape when it is on the way upp, but when it is fully erect it is normal and does not hurt. Do you think this is a problem?

My approval process is done, got all my co-pay assistance, fully covered everything. I’m a little discouraged that I can’t get in for my first round till the 27th. But it’s fine. I’m honestly scared. I’ve seen some posts about how bad the numbing injections hurt, and all the “results” for Xiaflex are all over the board. Honestly I’ll just be happy with any improvements. My curve starts about an inch from the base, and it goes straight up. It’s gotta be in the neighborhood of 75-90°. I’m already mentally preparing myself to get all 4 rounds… might as well since it’s fully covered already. I’m scared, don’t know what to expect, but will be happy with almost any improvements. Any words of wisdom or encouragement would be tremendously appreciated, thank you.

Hi,

I've had Peyronie's for several years (a 30 degree curve, the hourglass deformity and some hinging). I never sought treatment until now because I never had pain or ED, and intercourse was still manageable. But now, many years later and with a new partner, I'm having difficulty with intercourse, and it appears to be due to hinging. The strange thing is that I didn't have difficulty achieving intercourse with my last GF, at least not in certain positions. But I've yet to be successful with my current GF. We've tried every position imaginable, but no luck. Has anyone else found that intercourse is easier with one partner than another? Does it come down to matter of different partners having different "geometries" that can make the PD more or less problematic when attempting intercourse? I've been in the stable phase for years, and as far as I can tell, there's been no change in shape, size, etc., but intercourse was relatively easy with my last partner and virtually impossible with my current one. At any rate, I had my first appointment with a Urologist a couple of days ago. He's proscribing me Cialis to see if that helps before exploring surgical options. I thought it odd that he recommended Cialis given that I don't have ED, but he's hoping that it will help make my erection more stable and firmer at the hinge point. I'm trying to be optimistic, but I'm having a hard time seeing how Cialis is going to help with the problem I'm having. I have no problem getting and maintaining a full, firm erection. It just bends a little more when axial pressure is applied, and it's enough to prevent intercourse. Has anyone else had a hinge effect treated with Cialis or another ED medicine?  Did it help?  Has anyone successfully treated a hinge effect in another way or found a way to mitigate it during intercourse?

I was diagnosed 12 months ago with one fairly prominent plaque in the middle, dorsal side.

I started really being consistent with Restorex about 2 months ago and despite being hopeful, it appears to have caused a brand new indentation / band below the glands, that wraps around half of my of my shaft.

Its very tight and painful.

I’m a 22 year old. Today I went to the urologist at fist to be put onto trt which he has me on now and because I’ve been having dull achey pains in the left side of my penis for a little while. I had also noticed my penis has sorta been laying to the left while flaccid so much so that I would piss sorta to the left. The initial concern was that I had peyronies but towards the head of the penis. I had him check me out he felt me up but he said he only felt something more towards the base of the penis and said that it could possibly be peyronies. What makes this so hard is one I’m 22 and my penis is buried. On top of that I already have major issues with my size as far as girth goes but still also with length as well. I was told to monitor it and see what happens in the next few months I’m pretty scared tbh and I don’t know what to think or what to do.

Just was counter bending with penis weights 12 pounds and I felt like I cracked the plaque open inside my penis and its hurts and swelling up.Thinking about going to the ER because I'm in serious pains and my penis is limp.What would yall do

I am trying to understand what the natural progression of this disease is for my case (young, no penile fracture, 2 plaques, related disease, family genetics, ...).

I found this study interesting as it provides an estimate on how the disease develops naturally depending on ultrasound result.

The study is especially nice as they exclude penile fractures—so it is more relevant to the "genetic, started out of nowhere" variant which I believe is different to scarring after penile fracture.

What I found super interesting is that when there is no shadow (no calcification?) there is a high chance of natural improvement over the follow up period?!?

Thinking about this and traction and other therapies it is super difficult to design studies and to rely on anecdotal result of therapies. I mean they would need to drastically classify patients to find similar cohorts.

Also this would allow shady studies to put more single lesion people in the group of their treatment and they will see a X% better outcome for them.

What I understand is that based on the study if you have a lesion without any shadow then there is a higher chance of it improving. If you have a hard calcified plaque then there is almost none. So I think this is something I will discuss with my uro as he avoids ultrasound (he says it makes no difference in treatment) and the ultrasound would be helpful for me to decide between an actual wait and see or conservative traction therapy treatment vs. surgery.

Hello my bent cock brothers. Having a Nesbits done In a few weeks. Excited and hopeful for a good outcome and straighter dong but also slightly worried. I have CPC, which is similar to Peyronies, only it’s not cause by plaque but rather one side is longer than the other. I have a dorsal (upward curvature) of about 45 degrees. Been reading into Nesbit and it seems fairly safe (with possibility for some complications of course). Would be great to hear from anyone who’s had this procedure; how long did recovery take? When could you have sex again? Any issues? How much length was lost? Did it straighten your pecker? Did you take any peptides like BPC-157, TB-500 etc to speed up recovery? Any insight is greatly appreciated 😀

Hi, as I am just have the next active plaque 5 years after my first onset I am curious if there are patients that also have the disease started when they were younger (<40yo) and now are older.

I am especially interested in those who have related diseases Dupuytren's Disease or Morbus Ledderhose.

I still don't know what the natural progression is for such patients and what treatments worked for them. e.g. I am especially interested if implants worked for them for good or if they got more and more plaque that even the implant could not fix.

If you know about patient reports on this from other places it would be very helpful.

Thanks

Hello to everyone I want just to share my story, I got PD 2 years ago and slowly got recovery till now that I m 99% healed. At start when i got PD my hope in world was lost and i got depression. Yesterday I got cancer diagnosis . Is near my stomach maybe pancreatic maybe not. Im 38M with a 3y baby and this destroyed me. Now i can trade my dick for my health if i could. I want just to let anyone know that if your dick is not working seems the end of the world but is not. Being healty and alive is better then your dick. Everytime life take from us something we have, we understand how much important it is.