r/CoeliacUK

I know this is a bit off topic but I know many of us struggle with low iron. Can anyone recommend one that doesn't cause stomach irritation? I'm so annoyed as I'd just started to see improvements in my bloating and distention after being diagnosed 18 months ago and now I'm increasing iron I've suddenly swollen up full of gas and so uncomfortable. I'm so annoyed! I think I need quite a high dose as lower doses actually dropped my levels.

Hi, I’m looking for a bit of advice - not a diagnosis. I recently had bloods come back showing mildly elevated tTg, along with a positive EMA and a few deficiencies (ferritin, bit D). My GP seemed sceptical about me having coeliac but referred for a gastroscopy after I pushed for it. I had the gastroscopy yesterday and the consultant said it looked normal and that the villi didn’t look blunted. i was surprised he could see the villi on camera! I am feeling a little deflated (not that I want a diagnosis, but it would help me manage my symptoms if I knew the cause!). I wondered if anyone has experienced anything similar, and had positive biopsies come back despite a ‘normal’ gastroscopy? My GP also seems to have completely disregarded the positive EMA result and hasn’t mentioned it in my referrals to gastro. Would really appreciate hearing others‘ experiences and any advice for advocating for yourself!

Context I am in Australia.
Curious what others have done in this situation.
As some may be aware ADHD meds in Australia contain gluten.

I’m newly diagnosed coeliac disease October 2025
ADHD in February 2026

My Gastroenterologist said it’s not safe for me to have medication that contains gluten as there isn’t enough evidence to support its safety.

My psychiatrist has consultant a colleague for advise. This person stated some people still take the medication or it is possible to get a compounded formula.

Advised by my psychiatrist to talk to my pharmacy they are unable to help or compound the medication - DEXAMFETAMINE, short acting Ritalin.

At the moment I’m not on medication due to a sleep study.
I have tried dexamphetamine for 6 weeks
Then was changed to 20mg vyvance for two weeks
30mg vyvnace for two weeks with Dex top up. Tried 5mg and 10mg
Downside - underlying depression is worse and I have thoughts of not wanting to wake up.

I was told I have to try short acting Ritalin before long acting and the short acting contains gluten.

The coeliac website is unclear. It states TGA must declare if gluten is present when 20ppm. But then I’ll find a random paragraph that adhd meds are fine to take. All the pharmaceutical companies don’t disclose the ppm.

I’m new to coeliac disease anyways and probably had exposure either from being out or just learning and failing at home. My body feels broken so I don’t know what’s being caused by medication or just me.

At the weekend, I went with the family to an upmarket 'farm shop/cafe'. They gave me a gluten-free meal, and, yes, again, I was glutenated. I now have to endure 2 weeks of discomfort until my guts settle.

I'm sure they gave the usual disclaimer of saying it was prepared in a kitchen where gluten was present. But I don't think I am am so sensitive that a few molecules would trigger me. I am the only GF member in my family and I have no problems with home cooked food despite normal bread and kids cereals being around.

I'm wondering about others' experiences with this. Can I never trust 'GF' when eating out?

I went gluten free on my gp’s orders since I’m a single mum to my son who has high additional support needs and I was so unwell with all my symptoms. He said he’s very sure I’m coeliac but with my blood marker thing being only 47 instead of above 70 where I wouldn’t need the endoscopy, I have to go through with the gluten challenge. It’s already has wiped me out completely. After finally getting my endoscopy appointment I was told I’d need to eat gluten for 6 weeks. I put it off because I was scared now worried I’m going to have a false negative result for not doing it long enough. I was gluten free for four months & im not even two weeks back on it & the anxiety has hit me like a truck, my bones and joints are agony to the point I’m limping walking again. Brain isn’t computing the way it should and I’m forgetting EVERYTHING. Lower back pain, muscle aches, FATIGUE x1000, feeling sick constantly and scared of eating knowing it’s only going to make me bloated, sore and unwell. Have a cold I can’t get rid of & seems to be turning into something bigger than what it should be. Also back to scratching my skin to the point of bleeding again. Someone please tell me it gets better before the challenge ends 🥺
Sorry for the rant, I’m a very tired single mum to a wee boy who needs me and my energy back to normal. It’s such a deflating challenge all to confirm a diagnosis that has already proved to be obvious.

My daughter is 11, went on a school trip for 1 week residential, and has now been ill for a week and a half since coming home. She’s vomitting 3 or 4 times a day 10 days later. Small quantities each time, almost like reflux or something. This is different from the symptoms she usually gets (stomach ache/cramps and headache ). Because the symptoms are different she thinks it maybe wasn’t gluten, but we know based on what she told us there was cross contamination happening on the school trip.

Is it normally to be vomitting 10 days after gluten exposure?

Does anything help?

Thanks all!

Hello I am looking in to starting my own gluten free cafe in my area! Completely gluten free and coeliac safe, any advice for someone starting up a new business from scratch? And would it be something that people would invest in?

Incredible gluten free nosh.

10-out-of-10. No notes.

I recently had a blood test that was borderline for coeliac so I've been told to eat gluten for the next 3 months to repeat the test and see if I do have coeliac. After being told this, I am pretty certain I'm coeliac so just incase this is my last chance to enjoy gluten, I want to make the most of it.

What are some of the foods you miss the most? What food surprised you that it wasnt safe to eat? What foods don't have good alternatives?

I just want to make sure I make the most of this and look forward to hearing your ideas

Hi everyone

38yo male here. Long story short I’ve had what I’ve thought is IBS for over 10 years now which has been getting worse the last 6 months. The last two weeks I’ve been incredibly poorly.
Pooping blood, constant diarrhoea, severe abdominal pain and discomfort, low energy etc.

My GP ran some blood and stool samples and the stool sample came back as showing low elastace which suggests a pancreas issue (which can be caused by bowel diseases).

They’re now running more tests and one of them is listed as for checking for coeliac disease on the paperwork.

After googling the disease it makes SO much sense and I suspect this is what I have.
A year or two ago I was also diagnosed with EOE which was suggested could be due to an allergy or intolerance. I’ve read online that EOE and Coeliac go hand in hand as they can both have the same trigger.

My question is this -
Is it possible to get diagnosed with coeliac disease without having to have the camera down your throat?
The reason I ask is that I had to have the camera down and they took biopsies from in my oesophagus when they diagnosed me with EOE. I made the mistake of having it done without sedation and it was pretty traumatic so the thought of having it done again is somewhat horrifying.

I’ve read online that since covid they can diagnose it without the camera and I was just wondering what other people who are recently diagnosed experiences have been?

I got my diagnosis back in 2021 or 2022 and like everyone else iv had to adapt. But we all have that thing that tempts us to go to the darker side. For me thats cinnamon products. Specifically cinnamon cereal. There's just no GF option in the UK. I make pancakes 3 to 4 times week and add cinnamon but it isn't hitting the spot.

Cinnamon Chex by general mills is pretty damn close to the UKs curiously cinnamon (my favourite). In fact all of general mills cheerios and Chex flavours appear to be gluten free.

Canada changed their packaging guidelines so the box there can't say it anymore but there's no gluten products listed or may contains. I've have to get myself family from America to bring it once every couple years or spend a fortune for them here from whoever has them in stock from imports. I can't find any substitutes that are safe.

General mills have other products here, like old elpaso products, nature valley and a couple others.

I read somewhere back general mills wanted to come to the UK but our government said no as they would "dominate" the market. Doesn't that show there's a demand for these kinds of products. Am I understanding this wrong? The UK add wheat and barley to so many products unnecessarily here (even juice) forcing us to pay higher prices for gluten free.

Wouldnt allowing a selection of general mills cereal to be sold here in the UK in our major supermarkets be a good option? And not just for ceoliacs but for everyone? Hell I'd happily still pay £3-4 for a smallish box matching America's prices and other Uk options.

Sorry for the rant but I can't help but feel let down by our government continuously making these kinds of things harder. Spending between £8 and £16 for 1 smallish box of cereal because my immune system glitched that one time is soul defeating and bank depleting.

I’m not too sure how many people will be able to help me here. But anything at all would be greatly appreciated.

In a few weeks I’m doing my Gold DofE and I have literally 0 clue what to eat. I need to have at least one cooked meal a day and considering when I did my previous expeditions I hadn’t been diagnosed I have no prior experience with what to eat despite this not being my first exped. I’ve looked at the “FirePot” packet meals online however very few that are even gluten free actually appeal to me and I know I don’t have much choice but honestly the idea of some of those meals is making me feel quite sick.

I obviously can’t just suck it up and hope for the best and eat anything with gluten because there is no way I could walk so long each day feeling so ill and I know I’d have absolutely 0 energy.

So please if anyone has any advice on what to eat for breakfast, lunch, dinner or snacks I would really greatly appreciate it.

Hi everyone,

Looking for some advice on a situation after our wedding in Spain.

We had a cocktail-style wedding (around €14,500 catering cost). During the menu tasting and planning, it was clearly agreed that all food would be gluten-free, as the groom (my husband) and several close family members are coeliac.

A few days before the wedding, we sent the catering team a list of allergies/intolerances (including celiac), mainly as an extra safety measure and also because the late-night food (burgers) was agreed to include both gluten and gluten-free options. This list was not meant to change the original agreement that the main food (aperitivos) would be entirely gluten-free.

However, on the wedding day:

• At least two appetizers contained gluten
• We were told this after some guests had already eaten them
• When I asked staff multiple times, they confirmed everything was gluten-free, which turned out to be incorrect

This caused a lot of stress during the event. Some celiac guests (including my husband) felt nauseous, dizzy, anxious, though not severely at the time. The next day and during our honeymoon, my husband has had brain fog, nausea, anxiety and dizziness, which we understand can be delayed symptoms after gluten exposure.

The catering company:

• Apologized
• Offered €500 discount (~3.5%)
• Claims the confusion came from our allergy list
• Says the service was delivered “according to contract”
• Refuses further compensation unless we go through legal/insurance channels (they mentioned their liability insurance if there is a medical report)

We asked for €3,500 initially, then €2,500, then €2,000 to try to settle amicably — all refused.

At this point we’re unsure what’s reasonable.

Questions:

• What would you consider a fair compensation in this situation?
• Would you escalate (consumer protection / legal / insurance), or accept the €500 and move on?
• Does the fact that it wasn’t explicitly written in the contract (but agreed in the tasting) weaken our position significantly?

We’re trying to be fair, but also feel this was a serious issue given the health implications.

Thanks a lot for any advice 🙏