u/Junior_Raisin_5966

Gastroscopy ‘looked normal’ but bloods positive?

Hi, I’m looking for a bit of advice - not a diagnosis. I recently had bloods come back showing mildly elevated tTg, along with a positive EMA and a few deficiencies (ferritin, bit D). My GP seemed sceptical about me having coeliac but referred for a gastroscopy after I pushed for it. I had the gastroscopy yesterday and the consultant said it looked normal and that the villi didn’t look blunted. i was surprised he could see the villi on camera! I am feeling a little deflated (not that I want a diagnosis, but it would help me manage my symptoms if I knew the cause!). I wondered if anyone has experienced anything similar, and had positive biopsies come back despite a ‘normal’ gastroscopy? My GP also seems to have completely disregarded the positive EMA result and hasn’t mentioned it in my referrals to gastro. Would really appreciate hearing others‘ experiences and any advice for advocating for yourself!

reddit.com
u/Junior_Raisin_5966 — 1 day ago
▲ 1 r/Celiac

Gastroscopy looks normal - advice on advocating for self?

Hi, I’m looking for a bit of advice - not a diagnosis as I know that’s not what this subreddit is for! I recently had bloods come back showing mildly elevated tTg, along with a positive EMA and a few deficiencies (ferritin, bit D). My GP seemed sceptical about me having coeliac but referred for a gastroscopy after I pushed for it. I had the gastroscopy yesterday and the consultant said it looked normal and that the villi didn’t look blunted. i was surprised he could see the villi on camera! I am feeling a little deflated (not that I want a diagnosis, but it would help me manage my symptoms if I knew the cause!). I wondered if anyone has experienced anything similar, and had positive biopsies come back despite a ‘clear’ gastroscopy? My GP also seems to have completely disregarded the positive EMA result and hasn’t mentioned it in my referrals to the gastro team. Would really appreciate hearing others‘ experiences and any advice for advocating for yourself!

reddit.com
u/Junior_Raisin_5966 — 1 day ago