r/VasovagalSyncope

Hey everyone! So I just checked the “removed posts” queue and a few posts and comments seemed to be automatically removed by reddit for “spam” and some of them I’m really not sure why. The only thing I’ve removed is comments from a nasty troll who just came in to harass another user.

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Thanks for reading!

just curious, has anyone with heds taken cymbalta (duloxetine) and i also am suspected to have POTS and i also have Vasovagal syncope. If you have taken it did you feel super overstimulated by everything? i keep getting like waves of this static and energy and i figured its just my nerves being stimulated but just wanted to see if anyone else has dealt with this? what did you do that made it better?

Hi guys, looking for some reassurance.

Im currently fighting a pretty bad cold virus and had a fainting episode yesterday. I stood up from bed to go brush my teeth, stretched when I got in the bathroom and suddenly felt nauseous light headed vision going black. I’ve experienced this multiple times before but this hit very hard. I stumbled towards my bed to lay as it passes like I usually do but this time it hit way harder and faster, I don’t usually have a full faint. That’s the last I remember.

When I came to my head and upper half of my body was on the bed, lower half of my body limp/hanging off the bed. I could feel my head kind of jerking rhythmically a few times before my consciousness fully caught up and I thought “am I having a seizure???” I then slowly got up laid in bed and processed what had just happened. I was not confused, I remembered how I ended up where I was and had the typical kind of eerie calm feeling for maybe 10 minutes after before I became anxious about what had just happened.

I believe the entire episode from getting out of bed to go into the washroom and checking my phone after getting up was about 3 minutes according to my texts.

I have a dr appointment booked for this Wednesday but I still feel really unsettled by this event, mostly scared about seizure activity. I’ve fainted maybe 5 times in my life, presyncope more than I can count. But this experience felt different as I felt my head/neck jerking/twitching. It didn’t feel aggressive just I was aware of it.

Hoping someone has had a similar experience and can chime in. Thank you 🙏🏼

6 months ago I was getting a mri and the nurse missed my vein 3 times with the IV. I passed out after the third attempt. I got hot and tunnel vision / dizzy. I had passed out once before then so I told them I knew I was about to pass out. Next thing I know I am being lifted onto a stretcher and the rapid response team is being called over the intercom. The nurse was on the phone frantically calling the ED department saying a patient had a seizure. I spoke up and said I passed out and convulsed- that this had happened before and I don’t have a history of seizures.

Anyways, I went to the ER, got an ekg, thyroid levels checked, chest and heart X ray. The doctor summed it up to dehydration and vasovagal syncope.

I could remember everything leading up to the pass out, and everything after. The thing I’m overthinking / why I keep convincing myself maybe I really did have a seizure:

I felt dizzy/ high/ exhausted for about an hour after. In the ER I remembered my address and name and such, but they asked my social security number. I normally know this, but I couldn’t remember and gave them the wrong number. This makes me scared I was in a post ictial state and I didn’t just pass out. The combo of groggy/ couldn’t remember my SS number.

The time before when I passed out and convulsed, I felt ready to get up and walk and more “normal” much quicker.

I think it scares me just because I obviously didn’t see it, and no one described to me what happened, but the nurses were all freaked out which made me think like what happened wasn’t normal passing out.

Any insight to how people feel post convulsive vasovagal syncope and if number amnesia is normal?

Thank you!

My 13yo daughter is coughing, then passing out. Sometimes she coughs again and comes out of it on her own. Other times she acts like she’s sleepwalking, where she will get up and walk around, running into things, or if she’s sitting or laying down, she will bite things, along with flailing around.

At first, it was just the coughing, passing out, coming out of it, and she was fine. That lasted for about a week. Then, the sleepwalking thing started, but only at night when she wasn’t fully asleep yet. Today, the sleepwalking thing has been happening all day too.

She has had two other times in the last couple years where a part of this has happened. She will cough/gag, then stop breathing (still fully conscious), then cough/gag, not breathe, etc. Those episodes could last for 30 seconds, up to 30 mins. (When she coughs, she breathes in and out, so she doesn’t stop breathing the whole time.)

This time, that’s happening now, has the addition of the sleepwalking or whatever it is, along with coughing and choking as she goes to sleep. Once she’s fully asleep, she is fine, and breathes normally all night.

She had a stomach bug, and then this started, and her allergies have been bad. She takes Claritin every day. We know she has a mold allergy. I also started her on Flonase for 2 weeks to help with swelling in her nose. That was started 4 days ago, but I stopped it after yesterday in case it could be causing the sleepwalking episodes.

My questions are:

1. Could she have vasovagal syncope?

2. Could the Flonase cause these additional symptoms—the sleepwalking or whatever it is?

3. Is the sleepwalking thing part of vasovagal syncope?

4. Do you all have any ideas for where to go from here?

I’ll answer questions. I’m desperate to try to help her. Thank you in advance.

Has anyone tried the vasovagal syncope relief workbook by tokya . Has it helped ?

Has anyone found a connection between their vasovagal syncope diagnosis and abnormal urine test results? I noticed recently, while going over my daughter’s medical records from her hospital stay, that her urine test came back abnormal. More specifically, it was for “trace leukocytes”. I do remember one of the nurses asking if she was on or getting off her period, my daughter said “I think I’m starting” and they blew it off. Turns out, she didn’t start, not that day and not for another 2 weeks, actually. I found it odd, especially because this was the second time this had come up. Previously during one of her annual checkups they had also mentioned finding traces of blood in her urine. They re-did the test but I never heard back on the results and, truthfully, I never followed up either. I should have, I just assumed they’d call if they found something concerning. I did ask the nurse at the hospital about it but she said “I’m sure it’s nothing” and that was that. She didn’t mention the test results at all, but after reading the medical records, I wish I had known it was about that. She has an appt with an endocrinologist in a couple of months, they’re still sort of trying to find what could have triggered her episodes, so I know they’ll be running their own tests, but I want to bring this issue with her urine test up to her pediatrician and see what they’d recommend. Curious though to see if this could be connected, somehow, or just be completely unrelated. Worth mentioning she’s never complained about any burning, pain, or issues that would point to a UTI, but neither has anything related to her kidneys. Like I said, might not be related at all, but thought I’d ask in case this was a connection, somehow?