r/UARSnew

▲ 5 r/UARSnew+1 crossposts

New to BiPAP/VAuto settings — need help finding a safe starting point

Title: New to BiPAP/VAuto settings — need help finding a safe starting point

Hey everyone, I’m new to bilevel and trying to figure out a reasonable starting point. I know nobody can give me my “perfect settings” because everyone’s airway, sleep data, and tolerance are different. I’m just trying to understand where to begin without randomly changing stuff left and right.

I was previously using CPAP around 9–10 cmH₂O with EPR 3. So from what I understand, that was roughly like:

- CPAP 9 with EPR 3 = inhale 9 / exhale 6
- CPAP 10 with EPR 3 = inhale 10 / exhale 7

I now have a machine with multiple modes available:

- APAP
- S
- ST
- T
- VAuto
- ASV
- ASVAuto
- iVAPS
- PAC

I tried iVAPS, but it felt like the machine was controlling my breathing and restricting my inhale. I tried S mode, but it felt like I had to force my breath in, almost like the machine wasn’t sensitive enough. VAuto felt much better.

The VAuto setup that felt the most natural while awake was:

- Min EPAP: 4
- PS: 6
- Max IPAP: 10

So basically exhale 4 / inhale 10.

I slept about 2 hours on it. My oxygen looked good, but my average heart rate was around 82, and I woke up hot/sweaty. I did have one 5% Truly that night, so I know that could have affected heart rate, sweating, and sleep quality.

I’m wondering:

  1. For someone coming from CPAP 9–10 with EPR 3, is VAuto a reasonable mode to start with?
  2. Is EPAP 4 / PS 5–6 / Max IPAP 9–10 a reasonable beginner range, or is that too much PS / too low EPAP?
  3. Should I focus on increasing EPAP slowly if flow limitation still looks bad, or should I adjust PS first?
  4. How do I know if PS is too high and causing arousals/clear airway events?
  5. Is there any reason I should be trying S, ST, iVAPS, ASV, or PAC instead of VAuto for UARS/flow limitation type symptoms?

I’m not asking anyone to prescribe settings. I’m just trying to learn the logic so I can start safely, make small changes, and read the data properly in OSCAR.

Any guidance on where you’d start and what metrics you’d watch first would be appreciated.

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u/Clean-Ad2593 — 7 hours ago

My theory: Bad diagnosis? M21

Hello everyone, i had all the symptoms as everyone else and decided to do a watch pat, my ahi ended up being 1.8 but it did not score RDI. After demanding, i got an in person lab study, never saw the results but they told me i had an ahi of 19.4 and have moderate sleep apnea. I got put on cpap and have used it for 3 months, no improvement on my symptoms at all. I finally got them to send me the results, and it showed an AHI of 19.4 and an RDI of 19.4 which is very unlikely to happen. And an AHI of 1.8 to 19.4 seems to be way too much of a jump considering watch pats are supposed to be for the most part very accurate. I feel like the lab conflated the two and scored the AHI as the same as my RDI, when the true AHI was closer to that 1.8 from the watchpat. Some more info (entire night of 3hr test) : Obstruction Apneas = 0, hypopneas = 64, central = 12. This leads me to think I was misdiagnosed as sleep apnea rather than UARS, I am 21 years old and somewhat fit, cpap has been no benefit. And I have enlarged tonsils, and recently did a turbinate reduction which helped.

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u/Swordfish_Apart — 18 hours ago
▲ 3 r/UARSnew+1 crossposts

Next steps after WatchPAT One?

Completed the LOFTA at home test and while I feel like I slept even worse wearing the sensor, the report seems to rule out sleep apnea so they’re not able to help going forward.

My pRDI is 20.1 during rem sleep and 11.6 in non-rem for an average of 13.1. I feel exhausted when I wake up everyday and normally wake up multiple times. Are there recommended next steps at this point?

u/Intuition17 — 1 day ago
▲ 2 r/UARSnew+1 crossposts

Positional UARS?

Anyone else have high RDI on your side and back but not on your stomach?

I’ve been trying APAP, but because I need to sleep on my side to do it, I’m worried it’s just making things worse.

u/Appropriate-Meet-783 — 21 hours ago

Did expansion fix your UARS? Or did it fix anything?

As the title asks..

And if not, did it at least help make CPAP/ BIPAP easier? And wouldn't it make nasal pillows a bit more user friendly?

And if not cured yet, Are you going MMA?

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u/Happilyalone777 — 2 days ago

Atomoxetine + Oxybutynin as treatment of UARS?

A combination of Atomoxetine + Oxybutynin is researched for treating obstructive sleep apnea. Studies indicate that it is highly effective for many people with AHI-reductions of around 50% to 70%.

Since the pathophysiology of obstructive sleep apnea and UARS overlap, this leads to the following question: Could this work for UARS?

What do you think?

reddit.com
u/Fun-Sample336 — 1 day ago

AHI 0.95 but 10/10 Fatigue – Brain fog since my teens, seeking OSCAR/SleepHQ help

Hi everyone, I’m reaching out because I’m technically "fully treated" but I feel like I haven't slept decent in years. I’ve had intense brain fog and physical heaviness since my teenage years. I’ve been on CPAP for 2 months, and I sleep through the night consistently (7+ hours).

For the last 10 days, I’ve added a soft cervical collar to help with potential chin-tucking, but the fatigue remains unchanged. I also mouth tape. I am mostly a side/stomach sleeper.

Current Settings (ResMed AirSense 10):

  • Mode: Fixed CPAP
  • Pressure: 11.4 cmH2O (I've been slowly raising the pressure, .2 over every 4-5 days. Anytime I try above 11.8 I start to get air in my stomach.)
  • Mask: N30i
  • EPR: 3 (Full-time) (Can't turn this off, it makes me feel like I can't exhale when I do)

Sleep HQ: https://sleephq.com/public/teams/share_links/67adcbb7-dce0-427a-b0b2-b30783fa3c4f/dashboard

I know from looking at my flow that the peaks of my breath aren't curving perfectly at the top. Any suggestions or ideas I can do?

https://preview.redd.it/mgb02pmrpcyg1.png?width=1474&format=png&auto=webp&s=e8603266ceedb947fe7d8d8e9926f3b2313b8865

https://preview.redd.it/zx3tcymrpcyg1.png?width=2940&format=png&auto=webp&s=e6cb46411bc89f11d302840092cbfe37f2959b85

https://preview.redd.it/944sbqmrpcyg1.png?width=1474&format=png&auto=webp&s=0d908b0e4474d9b0f50f79a6e40b98131fe396dd

https://preview.redd.it/55snmrmrpcyg1.png?width=1474&format=png&auto=webp&s=7ebecbdd2d2c86b006586cd11017e01b88f67a57

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u/ChasingSoccerBalls — 2 days ago
▲ 5 r/UARSnew+1 crossposts

Seeking Feedback on Surgery Plan

I'm hoping to get feedback on surgical options to treat my OSA/UARS. My sleep quality is terrible due to constant arousals. I've tried all possible non-surgical options and nothing has provided enough relief.

I did a CBCT that seems to show a regular sized airway when I am awake and upright. DISE showed (1) the center 1/3-1/2 of the soft palate collapsing against the back of the throat, and it tends to stick and require some force to manually unstick in the morning (the sides of the retropalatal space are narrowed but still open for airflow) and (2) the tongue mostly blocking the airway (VOTE score was V1apT2). A sleep study also indicates a primarily obstructive cause with RDI around 17, though not much desaturation due to low arousal threshold. I've included CBCT and DISE report snapshots and a snapshot of raw data from my sleep study showing some arousals. The DISE report indicates open airway on my side, but I think it just takes more time for my airway to be blocked because sleeping on my side doesn't help much and the sleep study had comparable RDI on back and side. RDI is ~3x higher in REM vs non-REM. Taking all of the above together, it appears that my OSA is the result of obstruction from soft tissue collapse at the soft palate and tongue levels coupled with a low arousal threshold.

I'm therefore trying to decide between MMA and soft tissue surgery. I'm leaning toward a soft tissue approach given my airway appears structurally large enough if I can stop the soft tissue from collapsing, and to avoid MMA which is a more significant surgery with material risks. For soft tissue surgery, I'm considering doing (1) Australian modified palatopharyngoplasty to address the soft palate collapse, (2) genioglossal advancement as the main procedure to address tongue collapse, and (3) one tongue radiofrequency treatment to bolster the GA, all in one surgery session. I'm not sure yet if the surgeon I'd likely use plans to do the GA the old fashion way (cutting and rotating a rectangular piece of bone) or the newer way (cutting a trapezoidal shape and using plates/screws to anchor the bone piece in a forward position.

Grateful if others can provide feedback on whether this seems like the right approach / suggestions for improving the plan.

Edit: The photos appear to have been stripped, so here are links:

https://imgur.com/7FSzZPy; https://imgur.com/ZKwlAOA; https://imgur.com/NjFOLdz; https://imgur.com/Q6Vn22o; https://imgur.com/sF8WLB9; https://imgur.com/jfXopTu; https://imgur.com/B1aE8cn; https://imgur.com/q23sxaH; https://imgur.com/QvYFjqZ; https://imgur.com/FfyY4SS; https://imgur.com/pCtkJBa

u/thomas1324553 — 3 days ago

Have you tried SGB (Stellaite Ganglion Block) or electrotherapy for a significant parasympathetic shift, addressing the underlying autonomic dysfunction?

I just tried electrotherapy in a chiropractic clinic similar to https://www.burlingamechiropractic.com/service/electrotherapy (not actually this clinic). They placed a couple of electrodes on both sides of the back base of the neck where it meets the shoulder, I don't think this is stimulating the vagus nerve. And a couple more electrodes at the mid back, on either sides of the spine. He also throws in a moist heat pad on my back, deep penetrative heat therapy which compounds this.

The parasympathetic shift is immediate, and the biggest part is that my arousal threshold seems to be increasing, sleep feels deeper despite my OSCAR data remaining the same. I'm using an ASV machine. I can feel the raw improvement in work productivity, calmness, sexual function, nasal breathing.

This makes me wonder if I'm a serious candidate for SGB, especially in this phase when I'm just waiting for my MMA surgery. I wonder if anyone has tried it, and if you've felt a nervous system reset.

I don't have proof that my autonomic dysfunction is entirely an effect of my untreated UARS for over a decade, although that is my gut feel. Only way to find out is to see how things are after MMA, PAP isn't able to treat my UARS entirely.

I don't know if this electrotherapy is stimulating my vagus nerve. I've tried the Nuropod VNS via the tragus, and barely felt any impact over a month, and I returned it.

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u/kauterry — 2 days ago

Would anyone care to talk with me about jaw surgery in DM?

just needing to make some very hard decisions! different opinions im getting from each surgeon!

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u/Awkward-You-5673 — 2 days ago
▲ 5 r/UARSnew+2 crossposts

22M - POSA getting worse despite CPAP and BiPAP. Looking for advice

Hi everyone,

​I’m 22 years old and have been dealing with Positional Sleep Apnea (POSA) for about three years now. I’ve attached my sleep study report to this post for the technical details.

​My journey so far:

​I started with CPAP for 4 months, but it didn't really help.

​I switched to BiPAP and have been using it for 3 months. It’s slightly better, but honestly, my symptoms feel like they are getting twice as bad every few months.

​I also use a positional bumper/pillow to stay off my back, but I’m still struggling

I see like 7 ENT DOCTOR ALL OF THEM agree that there is no problem with the noise and nothing in ENT department that they can help so any idea or thought

Thank you for reading

u/Current_Coconut_6697 — 3 days ago

How much expansion did you do before nasal benefits kicked in?

As the title asks. Also, did you all try 'allergies' etc for nasal congestion?

Anyone had nocturnal nasal congestion and expansion helped 'treat' it?

Did this also help your sleep disordered breathing?

reddit.com
u/Happilyalone777 — 4 days ago

Would I be a good candidate for MARPE / FME?

24M. I have bad snoring problems that lead to poor quality sleep / brain fog throughout the day. Mouth tape helps a little bit, but I’m looking for a more permanent solution.

I’m also wondering if expansion will help me aesthetically. My palate is narrow and possibly recessed, and when I was younger, my top teeth were flared out forward to align with my lower teeth. I’m wondering if expansion will give my top teeth more space and allow them to not be flared out so much.

Would I be a good candidate for expansion via marpe / fme? Or would surgery be a better option?

Sorry if these are not the best quality pictures for judging.

u/AnonymousCalc — 4 hours ago

3mm thru FME - non deviated side swelling

I’m currently 3mm fme expansion and my nasal breathing thru the day is fire but as soon as I lay down my left nostril blocks completely zero airflow. It is my non deviated septum side and I heard it happens because there’s more space so the turbinate overgrows.

I’m not getting turbinate reduction but does that mean I have to get septoplasty? Otherwise expansion is pretty useless because I’m just breathing thru my deviated side when I sleep. Ive tried nasal strips and sleeping on my right side but my turbinate is stubborn.

reddit.com
u/Clear-Theme-687 — 4 days ago

How much of UARS is emotional?

I had a sleep test about two months ago, which showed an AHI of about 8 and the RDI of 26. I’ve been looking into expansion and different options over the past few months. Last night, I did some deep emotional processing of some old stuff that I never really looked at and I really let myself process them. I had a tremendously good sleep afterwords. Now I don’t know how good it was compared to a regular person, but I had tons of dreams and I was in situations in the dreams that I was previously afraid of.

My question is how much of UARS is structural,( I have a recessed jaw, I have a narrow jaw and nasal passages), and how much of it is emotional?

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u/BudgetReference3725 — 5 days ago

Nose inhale issue

Can someone help here. I get the problem of a tighter inhalation through the nose when my muscles relax. Is it throat muscles thats causing it? When nodding off i get a sort of relaxing of some muscle and the nose then gets tighter to breathe and i end up breathing through my mouth. Can anyone help. What kind of collapse is going on here? Thanks

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u/likespuds — 2 days ago

UARS is probably your nose causing the problem.

Tell me, do you have nocturnal nasal congestion? Do you have nasal resistance? I have a strong belief our noses are the culprit to our SDB. Your mouth is open at night for a reason, your nasal passages are congested and restricted. Discuss.

reddit.com
u/Happilyalone777 — 5 days ago
▲ 18 r/UARSnew

Why you shouldn't trust Oura or Apple Watch for sleep tracking...

I've been a long time sufferer of some sort of sleep issue. I'm now starting to believe it's more of a PLMD issue than a respiratory issue but you can clearly see here that these wearables simply do not poll at a resolution that is valuable to catch true sleep issues.

The blue line is what is reported in Oura, the red is the high resolution data from Wellue.

They should at least add a sleep diagnostic mode that consumes more battery life yet could continuously poll for at least 8 hours.

This is what the other device is:

https://getwellue.com/products/checkme-o2-max-wrist-pulse-oximeter

u/Individual-Can-3770 — 5 days ago