r/PelvicFloor

Hi guys,

So two years ago after bicyclling for three hours I began having problems with urination frequency and burning. This later developed into also including ocasional proctalgia fugax (ass cramp) and painful ejjaculations. I then did cystoskopi which was normal and ultrasound of prostate normal.

Lately however I have had problems with a a clenching spasm (no pain) when laying down to sleep, I lay on my side, and I will get clench spasm just as if I was gonna hold in my pee - and this usually happens just as I fall asleep jolting me back awake and stressed. Yesterday this also provided me to pee three times in an hour. And also have wet penis tip and feeling of pee in urethra and sometimes sharp pain when peeing.

Last two weeks I have also been struggling with constipation and a narrow passage when pooping resulting in thin stool, but previously it was been normal.

I believe all of this is related to the pelvis.

Any thoughts on these clench spasms when laying down and what I can do? As it gives me a lot of stress when trying to fall asleep.

Thanks

PT Recommended a butt plug to help relax and strengthen the PF but I have also noticed that when I wear it for a long period of time that my OAB and urgency kicks in but I can't pee and my body can't leak urine because of my urge incontinence. My guess is that the butt plug is large enough to press on the prostate and clamp down the urethra. Has anyone else tried this?

I’m just trying to gather some info what might’ve caused tight pelvic floor, or did most people just wake up one day.

I think mine was caused by doing too much hardcore exercise; I have a pelvic floor dysfunction (tight/weak pelvic floor)

I know I'm supposed to be happy to finally find something that gave me relief. And I am. But its accompanied with grief. It's not a complete relief but it's a big reduction in symptoms, and for the first time in years I can lay in bed for 1h+ without being tortured by a constant urge to pee.

Ever since this "tight pelvic floor" being in PT as well has anyone with this issue had MRI or CT scans show colon edema/wall thickening? I have had colonoscopy and all is clear just MRI and CT scans show this without a fix wondering if it could be related?

I don't get why doctors who deal with pelvic floor issues don't, at the start, look at whether you have spine, hip, knee, tendonitis or ligament problems. And ordering a MR Neurography scan to look for damaged/ compressed nerves. This crap about jumping to PF diagnosis without ruling out these is insane. Instead they play mack a mole with injections hoping to find something that can be a symptom rather than the cause and then just treating symptoms. It's nuts.

Amigo llevo 1 año y 6 Meses con dolor en abdomen bajo , dolor al orinar , al eyacular y a la defecación, me he dado Fisioterapia, ondas de choque, terapias Neural y esto no alivia , el tacto rectal es doloroso. Que me recomiendan?.

I’ve just seen the specialist for the first time and she gave me some exercises but tbh she is not a runner/active and I need to ask this question to people who are: what active things can you still do while working on your PF issues?

I find that if I run gently and just straight, flat, it’s not bad. But anything like trails or difficulty (sideways movement, hiking, etc) aggravates it badly and then I regret it. Feel like I should stop that altogether until this is sorted. But it’s summer—just the start of trail season and I want to be outside!!

What can I do? Any others who have been where I am and what did you do?

TIA!

I (22f) have been on my pelvic pain journey for over 2 years now. And I’ve gotten nowhere. When the pain started I saw every doctor known to man for the issue. Urologists, uro-gyno, multiple gynos, radiologist, I mean everyone. No one could figure it out. I had MRIs, CTs, Ultrasounds, biopsies, scopes, blood work up the wazoo. Nothing. Even tried pelvic floor therapy and somehow it made it worse?!?! I finally got diagnosed with pelvic congestion syndrome. Got both veins treated by my radiologist about a month ago but my gynecologist told me that she’s convinced that’s not the only problem. I have stumped every doctor. Now, a month later the pain is worse and has now spread up my abdomen. It used to just be in my lower pelvis, typically more on my left side. Sharp shooting pains that came and went. Now it’s everywhere and deep cramping pain with the shooting. It makes it hard to breathe and lasts about 15 minutes. I’m thinking it may be endometriosis but I don’t know. When I have pain my stomach swells and it’s hard to wear pants. Also when I’m stressed I’m almost guaranteed to get pain. Laparoscopy was suggested to me before but I want to make sure I pick the right person if that’s the case. I’m in northern Virginia. I need advice in general because I’m just loosing hope.

Lets start a thread on this horrible condition and maybe try to help each other find a cure.

If you dont know what APD is, its a horrible condition where your diaphragm pushes down on your organs when its supposed to go up and make room for food and liquids. This causes lots of downward pressure, making you feel full, bloated and pregnant literally 24/7.

Been to multiple pelvic floor physical therapists and none of them have been able to help.

I've had this for over 15 years and I've been suffering and don't know what to do. Below are all the symptoms I've had over the years:

1. Constant bloating and rock hard stomach that feels extremely uncomfortable especially after a meal. Stomach feels like a pressurized balloon and ready to explode.
2. Pelvic Floor dysfunction (feels like pelvic floor is constantly tight)
3. Erectile dysfunction (weak erections that don't happen very often)
4. Urine stream problems (weak urine stream and difficulty emptying bladder)
5. Anterior Pelvic Tilt
6. Difficulty breathing after a meal
7. Fullness very quickly (Can only have a maximum of two or three meals a day)
8. No libido

Has anyone successfully cured this? If so how? What has been your experience? Lets help each other solve this once and for all.

after doing some deep diaphramatic breathing to fix my hypertonic pelvic floor i felt a weird but not painful twitching all across the pelvic floor and now the area feels numb. any idea what it might be? should i avoid stretching the area for now?

For those of you who use vaginal Valium/diazepam suppositories from a compounding pharmacy, is it normal for them to come in an open-top mold/tray inside a small prescription box rather than individually sealed?

Mine came as 10 suppositories in a mold with the top exposed (the outer box was closed and labeled), and some of them have a little crumbling around the top. They also only gave me one reusable applicator.

I was expecting something sealed, so now I’m second-guessing whether this is normal or if I should call the pharmacy for a replacement.

Hey guys been seeing a lot of mixed reviews about devrom for gas incontinence etc was just wondering if it has helped any of you guys out. I live in the uk and it quite expensive for me (£35) I am on my last straw with gas incontinence and was thinking about buying it

I’m writing this in hopes it helps others who are going through this!

A couple of years ago I was experiencing unbearable UTI pain after my UTI had been treated. I went to a urologist and they determined I did not have a UTI. We did other testing and it all came back negative. It got to the point where the urologist thought the pain was in my head.

I knew it wasn’t in my head. It was an intense burning pain day and night. And it wasn’t going away.

I did some googling and finally came across a blog a woman had written with the same symptoms. Constant burning sensation, no UTI, and pain with sex. She had said it was a hypertonic pelvic floor.

I knew nothing about my pelvic floor but pushed my obgyn to write me a script for pelvic floor therapy. My obgyn said it was most likely cystitis and it would be chronic and never go away. I refused to hear this and went to therapy that week.

I’m so glad I trusted my gut because pelvic floor therapy was the best thing I could have ever done.

I found out that I had an overly tight pelvic floor (hypertonic pelvic floor) that was having a hard time relaxing. Within weeks my pain completely disappeared.

Hoping my experience can help anyone dealing with this pain because it can be debilitating and depressing.

xoxo

Hi,

Since a sudden onset 6 months ago, after having very bad consipation and a sudden nerve irritation,

I have a developed a persistent vaginal pressure issue where my pelvic floor does not automatically respond to intra-abdominal pressure.

• Constant downward pelvic/vaginal pressure sensation

• No reflex support when standing, walking very bad when coughing

• Worse in upright position, slightly better lying down

• Voluntary pelvic floor contraction is intact

• No incontinence no pain but myofascial bands due to over pressure

• No prolapse or neuropathy found on evaluation

• Pelvic floor physio tests show normal strength but absent automatic response under load

All structural causes have been ruled out.

Has anyone experienced something similar?

I'm really struggling right now and need some advice on how to handle my GP. I’ve been dealing with constant gas incontinence that I can’t even feel happening, especially when I’m moving or squatting at work. It’s joined by incomplete evacuation where I only pass a normal bowel movement but have some feces left , fecal smearing, and internal hemorrhoids that are making life a nightmare. On top of that, I get massive bloating immediately after eating anything and have lost my appetite, so I’m starting to suspect SIBO as well.

My anxiety is through the roof because of the social aspect of this. I know I probably need tests like anorectal manometry and a defecogram to see why my muscles aren't working, but I don’t know if I should be asking for a colorectal surgeon or a gastroenterologist. Does anyone in the UK know who actually treats the "mechanical" side of gas leaks and which specialist handles the SIBO side? Also, if anyone knows how to find a pelvic floor physio through the NHS who specifically deals with bowel and gas issues rather than just bladder, please let me know. I just need to know exactly what to ask my GP for so I stop getting bounced around. Thanks so much for any help. Also any tips/ advice would be much much appreciated.

That’s not normal is it

Since January, I started having symptoms like a constant urge to urinate and pressure in my bladder, sometimes accompanied by burning in my vaginal area, as well as dryness. They did a vaginal culture and it came back positive for Candida, but it wasn’t treated because I didn’t have the typical symptoms. Then a month later I had another culture with a different gynecologist and it came back positive for bacterial vaginosis, and that time they gave me Fluomizin ovules, although my symptoms still weren’t typical—just dryness and occasional burning.

All of this is accompanied by pelvic pain. About four gynecologists have already ruled out PID. It’s not digestive or a bladder issue, so what could it be? I don’t know what could be happening to me.

Right now I only have pelvic pain, and sometimes a burning sensation that comes and goes, but nothing else.

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I read in some other subs where stretching exercises made their problem significantly worse

Anyone who followed pelvic floor stretching exercises went through any worsening of symptoms?

What are the warning signs to note during exercise that may trigger a flare-up?.

What is the best way to do stretching exercises at home without causing injury?

i am designing a pelvic treatment room

curious to know from real people who have been to a pelvic floor therapist

what are some things you highly appreciate about the physical space of your therapist office?

what are some things you wish were different and would make you more comfortable?

Thanks! hoping to use your insights and create a welcoming environment.

wh