I need help… loosing hope
I (22f) have been on my pelvic pain journey for over 2 years now. And I’ve gotten nowhere. When the pain started I saw every doctor known to man for the issue. Urologists, uro-gyno, multiple gynos, radiologist, I mean everyone. No one could figure it out. I had MRIs, CTs, Ultrasounds, biopsies, scopes, blood work up the wazoo. Nothing. Even tried pelvic floor therapy and somehow it made it worse?!?! I finally got diagnosed with pelvic congestion syndrome. Got both veins treated by my radiologist about a month ago but my gynecologist told me that she’s convinced that’s not the only problem. I have stumped every doctor. Now, a month later the pain is worse and has now spread up my abdomen. It used to just be in my lower pelvis, typically more on my left side. Sharp shooting pains that came and went. Now it’s everywhere and deep cramping pain with the shooting. It makes it hard to breathe and lasts about 15 minutes. I’m thinking it may be endometriosis but I don’t know. When I have pain my stomach swells and it’s hard to wear pants. Also when I’m stressed I’m almost guaranteed to get pain. Laparoscopy was suggested to me before but I want to make sure I pick the right person if that’s the case. I’m in northern Virginia. I need advice in general because I’m just loosing hope.