u/Upbeat-Brother-2884

My bf does this quite a lot. When I’m ready to fall asleep, or have just fallen asleep, he will start eating a couple bags of crisps/chips. It happened again last night at midnight,it woke me up and I said to him go in the lounge to do that, it’s noisy and pretty unfair, seeing as it’s bed time. He told me to stop moaning and soft of gaslights me saying ‘you do it’, which I don’t. Only time I did it, was when I was pregnant (5 years ago). If I do want a snack and he is getting ready to settle down or asleep, I will go eat in the lounge.

Am I over reacting? Crisps/chips is just such a loud thing to eat when there’s someone in the same bedroom trying to go to sleep.

My neurologist has prescribed me a rescue medication to take along side my current AEDs. CLOBAZAM 5mg. I’m to take every night before bed, increasing to 10mg if needed.

What’s everyone’s experience with this drug? It is normal to have to take every day rather than PRN?

I forgot to ask whilst on the phone with the neurologist about if I feel an intense cluster coming on earlier in the evening should I take the dose earlier or take one then continue with my normal dose?

Any advice/personal experiences shared would be greatly appreciated. Nervous about it making me feel drugged but also excited to maybe have a night of sound sleep (I have nocturnal clusters)

:D

I’ve had abnormal eegs showing focal activity and sleep transition being a issue..has anyone here had weird false awakenings when falling asleep?

The past week I’ve had them 4 nights out of 7 which is way more than usual for me. It’s like I “wake up” but I’m actually still dreaming.. I’ll think I’m in my house, try to move or call out but my voice is really quiet, sometimes feel like I’m lifting my arms, moving, falling out of bed.. or even like I’ve actively having a seizure..then I wake up and realise my body hasn’t actually moved.

I also get really vivid stuff mixed in, like thinking my partner is touching me or hugging me and it feels completely real, then I wake properly and it didn’t happen. I usually come out of it feeling really weird, kind of “not fully there”/shocked for a couple minutes.

Before these happen I sometimes get several brief smoky or perfumey smells over a hour, and once I had a really strange pulling/pressure/bubble-type feeling in my mouth/head (hard to explain), plus sometimes prickly sensations in my body.

I’ve had sleep-related stuff a few times a year before but never this frequent or intense. The more intense episodes, I felt intense fear, rollercoaster belly, bracing my self as I felt as if my whole body was about to shake. It’ll be hard to keep my eyes open during these, like i keep getting pulled back into ‘sleep’.

Just wondering if anyone else gets anything like this or if it sounds familiar?

Has anyone here with focal seizures/TLE had weird false awakenings when falling asleep?

The past week I’ve had them 4 nights out of 7 which is way more than usual for me. It’s like I “wake up” but I’m actually still dreaming.. I’ll think I’m in my house, try to move or call out but my voice is really quiet, sometimes feel like I’m lifting my arms, moving, falling out of bed.. or even like I’ve actively having a seizure..then I wake up and realise my body hasn’t actually moved.

I also get really vivid stuff mixed in, like thinking my partner is touching me or hugging me and it feels completely real, then I wake properly and it didn’t happen. I usually come out of it feeling really weird, kind of “not fully there”/shocked for a couple minutes.

Before these happen I sometimes get several brief smoky or perfumey smells over a hour, and once I had a really strange pulling/pressure/bubble-type feeling in my mouth/head (hard to explain), plus sometimes prickly sensations in my body.

I’ve had sleep-related stuff a few times a year before but never this frequent or intense. The more intense episodes, I felt intense fear, rollercoaster belly, bracing my self as I felt as if my whole body was about to shake. It’ll be hard to keep my eyes open during these, like i keep getting pulled back into ‘sleep’.

Just wondering if anyone else gets anything like this or if it sounds familiar?

Has anyone here with focal seizures/TLE had weird false awakenings when falling asleep?

The past week I’ve had them 4 nights out of 7 which is way more than usual for me. It’s like I “wake up” but I’m actually still dreaming.. I’ll think I’m in my house, try to move or call out but my voice is really quiet, sometimes feel like I’m lifting my arms, moving, falling out of bed.. or even like I’ve actively having a seizure..then I wake up and realise my body hasn’t actually moved.

I also get really vivid stuff mixed in, like thinking my partner is touching me or hugging me and it feels completely real, then I wake properly and it didn’t happen. I usually come out of it feeling really weird, kind of “not fully there”/shocked for a couple minutes.

Before these happen I sometimes get several brief smoky or perfumey smells over a hour, and once I had a really strange pulling/pressure/bubble-type feeling in my mouth/head (hard to explain), plus sometimes prickly sensations in my body.

I’ve had sleep-related stuff a few times a year before but never this frequent or intense. The more intense episodes, I felt intense fear, rollercoaster belly, bracing my self as I felt as if my whole body was about to shake. It’ll be hard to keep my eyes open during these, like i keep getting pulled back into ‘sleep’.

Just wondering if anyone else gets anything like this or if it sounds familiar?