I’m having 12-16 episodes daily but my mother refuses to send me to the hospital because she thinks I’m fine
Hello! I just want to clarify that I haven’t gotten diagnosed yet, so it’s very possible I’m not having seizures. However, the reason why I’m posting this here is because my symptoms align almost perfectly. So please, I’m aware that I’m not diagnosed, and I’m in no way diagnosing myself! I’m just a person on the internet who needs help. A few months ago, I started randomly collapsing on the ground and being unable to move a single part of my body. All I could do was move my eyes and my tongue. Then, once I was able to get up again, I walked around like nothing’s ever happened. I was never worried during those episodes, in fact, I was quite calm. This is because the same thing has happened to me before. It started in 2024 for a few months, went away, then returned in mid-2025. So, I just assumed the same thing will happen and waited until it went away again. I initially thought they were drop-attacks, but the episodes started to escalate. At first, I was unable to move my entire body except my eyes. But then, as time went on, more and more symptoms started to appear. I started twitching, drooling, my mouth opening involuntarily, moving my jaw to the left, my eyes rolling up, blinking uncontrollably, choking on saliva, biting tip of tongue/side of mouth, walking but being unable to stop, legs paralyzing after episodes, extreme confusion, horrible migraines, certain parts of my head feels like it’s bleeding but no external wounds found, and having double-vision (seeing two of the same thing). Sometimes I would even lose consciousness, but it only happened once. I’m usually fully aware during these episodes. All these symptoms could be caused by epilepsy, but it could also could be another condition. Also, I have mysteriously started getting extremely sensitive to flashing lights. For example, I was once talking to my siblings with the lights closed in our shared bedroom (we were about to go to bed but I had to tell them something), and when my little sister opened the lights, I collapsed right then and there. And it’s not just that, I was doomscrolling until I came across a video with flashing lights, I also collapsed on the spot. I do have to admit that it might also be photosensitivity and not epilepsy, but i‘m still very worried. Since this is obviously very concerning, I spoke to my parents about it. I kid you not, they brushed it off and said I was fine. I told them every possible symptom that I’ve been experiencing and they said it was “normal”. It took them weeks until they finally gave in and sent me to the hospital. The doctor was very also very concerned, so he did the standard procedure of giving me a blood test. He told my parents that this is not normal or something they should ignore, but obviously they didn’t listen. A few weeks later, my blood tests came back. It in fact was completely, utterly, undeniably normal. I started questioning if what I was experiencing was even real. My parents said it would go away on its own, so I decided to put that to the test. March 9th was when I got my results back. And because my parents said it would go away on its own, then surely it would go away after a month, right? April 9th. April 9th is the day I’ll ask them for another appointment. An entire month. There was no sign of it ever stopping. In fact, it got worse. I had, and still do 12 or more episodes daily (I counted lol). Every day, episode after episode, I would keep telling myself that i’ll prove my parents wrong. However, things didn’t go so smoothly. My mother told me that I was just like every other girl. She told me that I was fake collapsing for attention, that I need to control myself when my head jerks(usually happens before an episode), especially in public because she’s “embarrassed” to be near me when that happens. She told me that if I don’t control myself at school, everyone’s going to start fake rumors about me and everyone's going to make fun of me behind my back. She told me that one day, when she kicks the bucket, everyone is going to be so relieved that they don’t have to take care of her anymore. And if I don’t stop “fake collapsing” now, the same thing will happen to me. Essentially saying that nobody will care about her own daughter after she’s gone. This is only a fragment of the things she told me. I was supposed to tell her yesterday. I was supposed to tell her that she was wrong and it didn’t ago away. But I couldn’t do it. I was too scared. I need your help, please. I can’t keep suffering anymore. If you have any questions, feel free to ask and I’ll try my best to answer. Thank you