r/Epilepsy_Universe

I spoke with a very old friend last night and he reminded me of this night which I instantly remembered.

It was March 1968 and my friend and his girlfriend had introduced me to one of her friends. It was going well and our 3rd date was going to be March 14, the day MLK Jr was killed on a terrace in Memphis. I called to cancel the date which is what she was going to do. We decided to put it off for 3 days to try and get over the shock. We, and a great many others, were still in shock and anger. 3 days were not nearly enough to have gotten through it.

We went to Greenwich Village to hear some music, which is where I was regularly. We went to a club that I had gone many times but didn't remember but my friend said it was the generation bar. It was a place where musicians gathered.

That particular night a lot of musicians gathered and performed. B.B. King, Buddy Guy, Joni Mitchell, and two others, Jimi Hendrix and Janice Joplin. What a night that must've been. After speaking with him it sounded somewhat back there in my memory bank, but I trust the person who told me the story because he's as much a music lover and historian as I am.

He insisted, although it's never been confirmed that Janice & Jimi performed together and it was magical.

I had seen both of them, but together had to be quite special.

Never took a rescue med because once I know a seizures are coming, it's too late. Usually I'm alone if someone notices or walks into the area that I'm in their usually not thinking get the meds. Just wanted to know from the people prescribed with rescue meds, does your rescue med seem like it helps with the recuperation time?

I know some of the these triggers can be tricky and some may even go unnoticed, but for anyone who's had weather be triggering, please explain.

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

Oooooooooooooo eeeeeeeee does it for me... I'd say 90% of the TCs I used to have them (1997-1999) or "close calls" are on cloudy (especially rainy) days, which suck because I'd love them. Also when the barometric pressure drops...My anxiety and panicky symptoms on the rise!

I don't have to look outside to know it's cloudy...

Only times these fly out the windo is snow days/nights...I think because my dopamine and happiness overrides everything....

THEN ON THE OTHER SIDE OF THE SPECTRUM! HEAT! You wanna pretty much guarantee a motor focal, put me in a stuffy room above 80°F.... It seems not so bad when there is air... BUT, I'M MOVING TO THE AZ DESERT...IN SUMMER!

I hate being weather sensative...it makes my life hell.

When I called my ex to wish her a happy mothers day, we were talking and she asked me if I remembered a concert that we went to on Thanksgiving 1969 at Madison Square Garden. After much searching, I just couldn't come up with it so she told me.

We went to see The Rolling Stones and opening for them was Ike & Tina Turner. I had seen Ike & Tina a few times and knew what to expect. Tina was pure energy similar to Janice.

Interestingly, Janice was in the audience, drunk as usual and after a song or 2 she ran up on the stage to sing with Tina. I was told that half the audience expected Tina to deck her for taking her time and the other half, which apparently counted us, wanted to hear them together, which we did. I was told that it was amazing.

Separately I remember seeing both, but for whatever reason I can't remember this at all, as there are others, famous ones, that just aren't there. Fortunately, there are still more that are remembered.

I was talking to another epileptic and he told me that it caused him to developed agoraphobia, since the thought of leaving home terrifies him to the point where he will have extremely bad anxiety attacks. I’ve gotten a lot more cautious but no specific phobias, at least no phobias that I’ve noticed.

I would just like to wish a happy mother's day to all the ladies. Fellas take great care of your partner/ mother's today

So, I didn’t get covid nor did I get vaccinated, but I did have an uptick in seizures during the early stages of the pandemic. To my question, did getting Covid cause more seizures for you? To the unvaccinated, have you ever gotten COVID, and if so did it cause more seizures while having it?

Please fellow epileptics, do your best not to get caught in getting on another medication. GLP-1 weight loss meds aren’t the perfect solution to feel like you’re doing what you should to lose weight. The numbers on the scale might get smaller but not for the right reasons. You lose weight that consists of fat and muscle. Uh-oh. That muscle is needed to be able to do everyday things, and not feel old! We get slower and not as toned over time. It happens. Feeling older is a whole different story that doesn’t happen as quick if we use our muscles, protecting all the important things our body does! Stay safe out there, let’s cut deserts and try for losing fat instead of giving in to these shady weight loss drugs. 🤗

I'm saying this, because there is a FAS I have that hits me up-side the head, I feel like all silent migraine symptoms happen at once, then....I'm completely calm and happy the rest of the seizure...and post-ictal is still...woah....unless you tell me to do something, just don't.

I find some of my more intense FAS that started after a very stressful time in my life...my post ictal is...silly but my head feels hollow.

Every other seizure (I only have FAS) just suck.

A MayoClinic article inspired this one. Excited to hear if anyone else has an opinion on how important a consistent workout time is! Morning exercise is suggested to achieve a sense of accomplishment while starting your day. Those pleasurable endorphins are undeniable and the best motivation for my Pilates/reformer sessions before the rest of the house wakes up. Anyone relate?

Evening workouts have a selling point of best option for those who prefer not to get up early for exercise. I can understand being more mentally alert later in the day, and already having eaten a meal or two might result in preferable energy levels. Oxygen uptake kinetics, something I never learned about in school, is apparently beneficial in the afternoon. The body’s ability to take in and use oxygen is apparently better late afternoon/early evening, so high intensity activities might be better during those times. Good points are made about difficulty with motivation and scheduling.

Surprised to find out the benefits of afternoon exercise for longevity were most pronounced for men and seniors. Maybe for people who work shifts or really need the morning for sleep, early afternoon might still be the start of their day. Whatever part of the day works best for exercise, please share!

Would a seizure be considered a side effect of epilepsy, or would epilepsy be the side effect of having seizures? For example, do I have epilepsy because I have seizures or do I have seizures because I have epilepsy?

It's good to be within a group where we all share the same problems. Good to be here. I wanted to say hello.

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

Now, i assume most of us are in other groups that aren't epilepsy related. Reddit just knows what I like!!! (Sarcasm)

So what's your favorite one or two or many??

I'd have to say (ignoring sports teams) that cat distribution network .. and urban car living.

I love cats! This reddit is about cats picking people on the street, at their house, etc. It's funny and cute!

No idea how I ended up in urban car living, but it's crazy I interesting what people do to make their cars livable!

Anyway..what's yours??? You know you want to answer!!

❤️🧡💛💚💙💜

First...I feel so blessed I have somewhere I can go to talk about this, cause I'm sure my family is on the edge of being sick/ feeling helpless when I tell them....

Anyway....I'm moving back to AZ in a month, but, unless I'm moving in with my sister or kids, or an area I know... my health BOMBS when I move.... like, I get focal clusters that I haven't had in a year or new types of focal clusters... makes it worse that I'm now on perimenopause...and I may not have any rescue benzos (first move without benzos since 2004) so, I'll have to just deal on my own. I'm trying to stay calm and just surf it so I don’t stress myself out so much that my focal epilepsy wants to come out and play.

I have an idea for the first few night to stay at somwhere I lived at for 4 years, THEN go to my house, since it's about 15 minutes away, but, it's in an area I don’t really know...

I just thought I'd get my thoughts out here. Any advise or wisdom is welcome.

I'm going to give it to God and hope my brain plays nice. Not like it's

I haven't done one of these in a bit... so, what is it????

Card games easy.... hearts. Best game ever!

Board game.... thats tough...so I'll break my own rules...two for the price of one.....

Clue is just fun! Chip, in the psychedelic room, with a joint!

Axis and Allies is also a great game - beats risk by 10000x.

How about you????

I ended up reading about someone else's asymptomatic seizures on another reddit... and figured I'd throw the question out here (again)...does anyone get asymptomatic seizures? Meaning you have no idea before, during, or after?

Amazingly, they caught one during my 1 hour regular eeg... then 4 to 8 on my ambulatory eegs...

I get mine from cavernous malformations... good stuff!! Happy Friday!!