I used to think I was the only one living with this condition, and I often felt deeply discouraged, wondering, “Why am I so unfortunate?” But learning that there are actually quite a lot of people who share the same condition is really eye-opening. It even brings me a sense of comfort.
My curvature continues to progress & I have severe pain during sleep or prolonged activities (sitting, standing, walking). Everybody's pretty much done analyzing my spine & scoli and just sees it all as a stopping point. They're moving on to my neuro issues & just sort of dropped off on talking about it or caring. I am in so much spine & hip pain everyday. Just thought scans were interesting & proof that scoliosis can progress with hardware fractures in adult life. Any advice appreciated. sending you all so much love.
I can play basketball for hours on concrete with no pain but when going on chill 20+ minute walks, my traps are in so much pain. Why could this be? I have a 65 degree curve but no pain in my day to day outside of longer walks.
Hey, I’m 16M and was diagnosed with scoliosis about a year and a half ago. I just had a follow-up X-ray a few days ago about 6 months after my last one, and I measured the curves myself as carefully as I could. From what I got, the thoracic curve went from 22° to 26° and the lumbar curve went from 45° to 47°. Everything else either decreased a few degrees or stayed the same. So about a +2° to +4° increase depending on the curve. I also found out I’ve gone from Risser 3 to Risser 4 during the 6-month time period. I’m still having the same lung/chest pain and back pain as I did 6 months ago, which is part of why I’m concerned.
Is this considered normal progression over 6 months, especially at Risser 4? Or is this something I should be more worried about? Thank you all for any info! 👍
Hi, I have recently started wearing brace. I would love to hear your brace break in and adjustment journey as to how many months did you take to achieve brace wear time, what issues you faced, any possible tips and tricks, etc.
Bună, numele meu este Lia , am 17 ani și sufăr de scolioză de gradul 3.
Am aflat despre asta în 2023, iar momentul acela mi-a schimbat complet felul în care îmi văd corpul, sănătatea și chiar pe mine ca persoană. La început a fost confuz… ca și cum ceva în mine se schimba fără să înțeleg pe deplin. Scolioza nu înseamnă doar o coloană curbată ,înseamnă felul în care îți afectează postura, încrederea în tine, energia și, uneori, starea ta emoțională.
Sunt zile în care nu doare doar fizic, ci și psihic. Momente în care te uiți în oglindă și vezi lucruri pe care alții poate nu le observă, sau când simți un disconfort pe care e greu să-l explici celor care nu au trecut prin asta. Poate deveni o luptă tăcută, una care te face să te simți singur, chiar dacă nu ești.
Dar în același timp, experiența asta m-a făcut mai conștient, mai empatic și mai puternic decât credeam că pot fi. M-a făcut să realizez că sunt foarte mulți oameni care trec prin lucruri similare, în liniște.
De aceea vreau să creez o comunitate, un spațiu sigur unde persoanele cu scolioză (sau alte probleme ale coloanei) să poată vorbi deschis, fără teamă de judecată. Un loc unde să împărtășim experiențe reale: durere, progres, insecurități, tratamente, dar și micile victorii care contează mai mult decât par.
Nu vreau să fie doar o simplă postare. Vreau să fie un început. Un loc de sprijin, înțelegere și conexiune. Fie că abia ai fost diagnosticat sau trăiești de ani de zile cu scolioza, povestea ta contează.
Dacă te regăsești în asta, mi-ar plăcea să îți aud povestea. Nu ești singur/ă.
I've met various healthcare professionals with scoliosis: doctors from other specialties, yoga instructors or teachers of various non-surgical methods, physiatrists... but never a spine surgeon. I asked this question on other sites and no one ever knew of one. Many people have scoliosis; it's almost statistically impossible that there weren't any in the world.
hi, i’m 20F from the Philippines. this was my xray right after surgery back in 2022 (when i was 16). i noticed that my posture is becoming worse and my curvature is becoming more prominent now. i think i might also be a bit smaller since then. i’m having yearly checkups with my surgeon now but i haven’t went back yet. last time i did, he said everything was good.
are there any similar cases like this?
hi! I am now 12 months post-op. I know i can someway help people with scoliosis . I wrote a book called "happy scoliosis journey " but I think only few people read . is there any other way i can help other than through reddit
so im a uni student with 46 degrees scoliosis, i dont feel pain or anything but i dont want it to get worse so i wanna do something. my doctor recommended surgery before but its not necessary and i didn’t consider doing it as well. i wanted to know for my case, should i see a chiro, osteo or a physio? i wanted to do some exercises and go to the gym but i dont want to do it myself without any help first.
Hi im 18 years old and i think its important for me to learn defend myself. Since i got scoliosis i can't lift someone up so more like boxing or kickboxing, muay tai
Hi all! I am having my spinal fusion surgery (T3-L3) in about 4 weeks time for 85 degree scoliosis. Currently I run about 50km/week and I am keen to get back to this as soon as I safely can post-op. I was just wondering what other people's experiences have been with this?
1- When did you feel physically able to start jogging without too much pain?
2- When did your surgeon/PT clear you to start jogging?
3- When were you able to build back to your previous mileage?
Of course I will stick with the advice that my surgeon gives me, but just looking for a rough estimate of what I might expect.
Thanks! :)
hi , so it's been 1 year since I've doing physio and had scoliosis for over 3 years now .. i didn't knew what tender point was and I never had that but after physio and excercise I started getting tender points frequently.. like after 3 months today it's was my 5th it was so bad . so I wanted to ask if u guys also get those and what are the causes..