r/pelviccongestion

Please tell me if my symptoms could add up to PCS.

I have an adenomyosis diagnosis and while there is definitely some overlap, my periods are not bad and my symptoms have no correlation with the cycle. I feel there's something more here.

I struggle with worsening pelvic pain that attacks after any activity. Half a year ago it was only after long walks, now barely anything that includes upright posture. I wake up ok-ish, but 15 minutes of morning routine and it's there. The whole pelvis starts to feel heavy and sensitive. Discomfort radiates to the lower back, crotch, pubic bone, rectum. Especially rectum thing was very disturbing, I wasn't pure pain, but discomfort, like it was "tired"?. Sometimes also dull pain in groins, buttocks and even legs. Often pain moves around like one hour its there and then something else. And frequent urination (not like volume-wise but frequent urge to urinate). Everything slowly settles when I lay down.

I was told that maybe its pelvic floor dysfunction and I tried female PT, but it made things worse and the therapist suggested that there could be vascular issues going on. I started to read and it kind of fits however I dont have any visible varicose veins.

Year ago (before symptoms started) I was told by my gyno that my parametrial veins are mildly dilated, but she wasn't very concerned. Could that worsen significantly during one year?

Hi - I went in 2 weeks ago for endometriosis surgery and was told none was found but that I had pelvic congestion. My period was atrocious right after, my left leg pain has been almost daily since the surgery, and my low back pain is still awful.

I’m curious if anyone had relief with symptoms from a mirena? I know that’s what my OB is suggesting when I go in for my 2 week post op this week. I don’t particularly want one but I also want this figured out.

Thanks for any advice!

I had a abdominal CT that I pushed for on Friday. It came back with a possible PCS diagnosis. I don’t have a ton of pain. Just on and off. More fullness and discomfort. What I struggle with is dizziness, headaches and feeling lightheaded. I’m trying to figure out if this is all related. I feel worse after standing, showering and eating.

Below is what the radiologist wrote on my test results

Incidentally noted is dilation of the left gonadal vein to 11 mm, draining into a dilated left periuterine venous plexus.

Anyone have similar symptoms or experiences?

I just had an ultrasound done and it showed pelvic congestion syndrome on my left side. veins are 8.5mm

i also have pretty bad varicose and spider veins on my left calf and just below my knee

i get heaviness in my left leg, it gets very sore and my veins swell a ton when im on my feet for a while

i get left pelvic pain quite often too, im honestly just shocked to get this diagnosis because i guess i just lived with it for so long i didn’t know it was anything serious.

im also curious about may thurner syndrome as well?

i suppose im just looking to chat and get some advice on next steps (obviously will be taking with my doctor too)

this was just such a huge shock to me

I considering getting an embolization in the next month. I want to see if my PCS can improve before vacation this summer. That said, will surgery make me worse for a few weeks? I know some people say their PCS symptoms slowly get better over a few weeks, but I’m curious if I should expect to feel worse of the first 1-3 weeks?

I’ve had endometriosis surgery which made pain and fatigue worse for 3 weeks. So wondering if this is going to be like that.

If you've had embolization of the PUDENDAL VEINS:

1. What were your original symptoms?

2. Please describe your recovery after embolization. How long and how painful was it?

3. How are you feeling now?

Y’all I’m just feeling so alone today. I highly suspect pelvic congestion syndrome as it showed up on an ultrasound. It feels like my pelvis is a balloon nearly every day. It used to just be around my period and ovulation, but now it seems like it is nearly everyday and especially on days when I have more fertile mucus observations.

Does anyone have any suggestions of how to manage the bloating? I’m scheduled for a laparoscopy for suspected endo in July, and I’m hoping they might pick up on PCS while they’re in there.

But right now, I just need tips for relief 😮‍💨. It’s making it difficult to finish meals.

Have you used any pelvic floor support garments that help with your pelvic congestion symptoms? I would love recommendations for something people have actually used and can vouch for! Thanks!

I am 99% sure I have may thurner but I’m terrified to get a ct with contrast so I’m waiting to get a pelvic iliac ultrasound and then am hoping to just schedule an ivus straight away regardless of what they find. The past few weeks my left leg selling has gotten worse I even have some swelling on the bottom of the foot and when I got out of the shower today I had a mild temporary loss of sensation when I pressed the left ankle. And could see a mild skin color change. I am so terrified of permanent lymphatic damage. I’m also terrified to get an IVUS. I likely have EDS also. My left GSV reflux is greater than 3 seconds which is severe and I have new right femoral vein reflux. .lI’m just venting. I wanted to go to MIPS but my insurance doesn’t cover it so I’m seeing a local doctor since I’m limited to WA doctors but l’m just so scared he’s gonna hurt me more. Anyone know any good WA doctors? And also like, how common is permanent lymphatic damage. This started over a year and a half ago but the swelling has only been the last month or so but seems to be getting worse fast

I am really not sure this is Pelvic Congestion Syndrome but when I lie down I have a crushing heaviness on my pelvis almost like something is pushing down on me. Anyone have this symptom.