u/Left-Shine1920

▲ 7 r/Endo

Different Endo Opinions

I feel like it’s important to note for us all that endometriosis is still very much misunderstood by the medical community. The things we know for sure are the gold standard for surgery is excision and the gold standard for diagnosis is laparoscopic surgery. Sharing the gold standards is crucial since so many doctors and patients are still misinformed and it’s harming women’s treatment for endo. Then various management protocols like birth controls, hormone therapy, etc.

We each see different medical professionals with different ideas and opinions that we take and share here. But someone else who sees a different doctor, may have different ideas from their doctor because there is so much the world still doesn’t understand about endo. I think it’s important to remember this in the comments. I’ve seen and experienced a lot of back and forth between women, but not on gold standard topics, just topics that it clearly seems their doctors informed them on based on that doctors ideas about the nature of endo. The nature of which no one knows for sure.

My surgeon cut a nerve that connects to my uterus. They found this reduced pain in the event endo grows back which has been great for me as I’ve had zero endo pain for over a year. But I know so many people would think that’s horrible based on their doctor’s opinions and others would support it based on their doctors opinions.

Not to say either is wrong, but there’s so many ideas floating around about endo as doctors draw from their own research and patient experiences. We should be gentler with each other when these ideas clash and accept there’s still much to learn.

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u/Left-Shine1920 — 2 days ago

Recovery post embolization

I considering getting an embolization in the next month. I want to see if my PCS can improve before vacation this summer. That said, will surgery make me worse for a few weeks? I know some people say their PCS symptoms slowly get better over a few weeks, but I’m curious if I should expect to feel worse of the first 1-3 weeks?

I’ve had endometriosis surgery which made pain and fatigue worse for 3 weeks. So wondering if this is going to be like that.

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u/Left-Shine1920 — 2 days ago