r/hivaids

▲ 89 r/hivaids

1 year post diagnosis - HIV is not that bad!

April of last year, I was in and out of the doctors office. My physician couldn't quite figure out what the problem was; I'd get better, then get sick again. She decided to draw blood for more testing. And then one morning she called "You tested positive for HIV".

I called my boss, told him I was diagnosed with a chronic disease (but I assured him I'll live) and requested permission to leave so I can clear my mind. Drove around Los Angeles to think about things. Felt like I was in a dream. That night I slept soundly, and the next day I have moved on. I embraced my diagnosis fully. I think me being educated (I have a medical background) helped a lot. I know HIV today is manageable, and diabetes is probably worse since it displays symptoms even when managed.

But it doesn't end there - what I in fact had was full-blown AIDS (CD4 count under 100). Add to that pancreatitis, pneumonia, disseminated tuberculosis (a very severe, life-threatening form of tuberculosis), sepsis. I was very, very sick. I ended up in the hospital for 6 months where I then lost my ability to walk. I had about a 50% chance of not making it out alive. But I did, and have since then been cleared by public health (TB management), by physical therapy (so I can walk again), and I am now undetectable.

And now that I am undetectable, HIV is not that bad. In fact some things in my life have improved. My relationships with others are better (I am trying to be a better person). I was the type who'd shoulder everything alone, stay silent and calm before adversities. I was confident in my ability to withstand whatever life threw my way. I never depended on ANYBODY. I didn't need anybody. Everyone can go away and Id survive. I didn't even tell anyone I was in the hospital until the 2nd month. I managed. I said, If I'm going down, I am going down alone. But after recovering, I realized that this is a second chance I cannot afford to squander. I decided to accept myself fully, which then allowed me to accept others. I feel so much happier. All is good.

There is that one lingering question though, how did I get it? I wasn't fond of anal sex. I only had anal sex 4 times in my life, but 3 was unprotected (however I did it with someone I was dating then). Maybe that's just luck. But I do not ponder on it too much. As I have said, all is good.

To conclude, I want to encourage people to be more educated. I think education can help cushion the fall. Some people grieve for a long time after receiving their diagnosis. And while it is okay to loathe yourself, hate yourself, be sad or depressed, remember one thing, most people (if not all) who caught it, have later learned that HIV is not so bad, and you can bet your ass you'll be one of those people. Sure we'd rather not have it, but it's not that bad (at least for me, its not that bad). The world has come a long way. HIV is getting more support. There is much to be optimistic about.

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u/Novel-Rabbit8914 — 3 days ago

Help I need advice!! This is so serious!!

Im underaged. I gave blowjob to a 36 year old person I met on grindr. He acted weird when we met. Didn't let cum in my mouth and etc. later when I asked how was it and why he didn't let me he said he just didn't like it. Then later I said "uf i thought you had hiv" and then he blocked me.

He definitely had a hiv.

Help.

Im dying from anxiety.

I didn't have any cuts in my mouth not any bleeding and not even a gums problem.

Chatgpt said the chances are low. But I want to know if someone can give me any advice or help to calm me down as ofc i cant tell my parents anything

Can anyone dm me telling me what I should do?

Any doctor or specialist?

Im from India and a guy.. help me please I beg you guys...

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u/charmanderisthegoat — 6 hours ago
▲ 24 r/hivaids

So what's next?

I was recently diagnosed with HIV, it's probably not even been 6 days. Started my medication and I'm doing okay for now. Just wanted to know what are the things that changed for many of you poz people after getting the news? And how did u adjust yourself?

For me the most significant change is that I'm constantly worried about getting some infection or maybe accidentally infecting my parents. And honestly I'm scared to see my own blood right now.

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u/HomeOk5082 — 3 days ago

Unsure if I should take PeP or not

I had unprotected sex with a guy for the first time ever in my life about hours ago. He said he was tested and was worried about me being tested, should i take pep or just wait to get tested. This was my first time being a guy.

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u/Immediate-Let-1588 — 19 hours ago
▲ 16 r/hivaids

Don't know why I had this curiosity to do the sti test but I guess your subconscious mind knows more about you than you actually know. So I did my tests last Saturday and today, Monday 4 May 2026 it came out positive. I don't know what to do. I feel so numb and stupid and afraid. How did I mess up so bad. I'm just 23 and still have so many things to do in life, and now just feel helpless. I can't even cry out loud because I'm afraid someone might find out. How do I make things right again?

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u/HomeOk5082 — 9 days ago
▲ 18 r/hivaids

Got my CD4 results today and it's not that good. It's just 218, I'm literally on the edge of getting AIDS. What should I do now? I started my meds yesterday. Seeing this number is really frightening me. I will have my viral load test 6 months later.

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u/HomeOk5082 — 7 days ago

Stigma

Idk if it’s due to internalized stigma but I don’t really identify with having aids or hiv like it’s came up in random conversations and it still feels weird like I know I’m positive but still it feels so far away from me

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u/Large_Pair_2509 — 2 days ago
▲ 33 r/hivaids

HIV Positive Women's blog

Hello everyone, I am a 28F living with HIV. I live in Southern California and recently made a blog where I can share resources, mainly focused on Southern California but I do plan on finding more events nationwide and maybe even global.

I want to share the blog with you all, feel free to comment want you think about my blog. You can also DM me or feel free to fill out the comment box on the website's home page. Apart from the resources, I also want to make posts about what my life is living with HIV.

magdalenasblog.com

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u/bohoson97 — 4 days ago
▲ 15 r/hivaids

HIV is often described as a “chronic condition,”

but does it fully capture the lived emotional and mental experience.

living with HIV, how has it actually felt for you day to day?

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u/Thick-Helicopter-939 — 10 days ago
▲ 13 r/hivaids+1 crossposts

There might be a cure in next 8-10 years?

I met my doctor and when I was discussing long term meds and how my life in the long term going to look like - he said , there might be a cure in next 8-10 years ?
Any research scholars here - who’d have a comment on that ?

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u/Optimal-Sir-660 — 7 days ago

Hey everyone, next week I’ll go to a rave. I became sober before the diagnosis, I stop smoking weed and tabaco, I only drink maximum one beer Saturday or Sunday (there are weekends I do not touch alcohol at all).

So, if I “sin” and do some drugs at a rave party next week and also during a festival in August, how bad this will be for my health? I’m already undetectable since March, I don’t fail with my medication and I really try my best to be the healthiest possible I can. I also exercise at least 4 times per week but I genuinely would like to party (absolutely not as frequent as before) like 2 or 3 times per year while the rest I keep my healthiest version possible and also sober/clean

Does anyone party’s like this? How is your health overall?

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u/Resident-Laugh7657 — 6 days ago
▲ 4 r/hivaids+1 crossposts

Need guidance on gym supplements

I am on TLD regime for a month
Do you think I could continue my whey supplements and creatine along side .
What are the things to take care of along side

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u/Optimal-Sir-660 — 4 days ago

Due to my age my consultant has advised that the current UK advice is to take statins if you have hiv. Even though my cholesterol levels are perfectly normal, I exercise every day, rarely drink, and have minimal processed food. Just reading some of the side effects I'm not too impressed in taking another tablet.

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u/Obvious-Elephant6588 — 6 days ago

TLD and liver issues.

I have been on TLD for over 1.5 years.

Since my diagnosis I have done lft and kft for atleast 5 times.

Initially my liver enzymes were elevated, but after in 4 tests it was normal.

Now, I feel my liver function is getting affected, live frequent bowel movement, and scars on face, and a little pale.

I haven't tested yet. Any advice.

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u/Crafty-Strength9411 — 15 hours ago

Hi guys,

Had more than 30 sexual intercourses, stopped for 1 year and a half or a year to be exact since i got work and other things and got no time.

I am anxious since i had 4,5 of them with anal trans bare.

The thing is, i am insured at a company, but the docs there know me very well, so its strange to ask them for an std panel.

Sent my doctor a message through the app 3 times and he rejected issuing a full std panel.

How did you do the std check, i should just go to my doc face to face and tell him i am worried i got aids or stds can you issue a check for me ?

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u/Drained124 — 6 days ago
▲ 7 r/hivaids+1 crossposts

Want to know long term impact of medicine

Is there someone here who’s been taking meds for more 5-10 years.
Want to know how quality of life has been for you?

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u/Optimal-Sir-660 — 4 days ago

What Are Some Frustrating Stereotypes And Misconceptions About HIV/AIDS In Your Opinion?

What is something that you wish more people knew about the Disease/Illness?

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u/PrincessBananas85 — 6 days ago

Healthy lifestyle recommendations

I’ve recently gotten diagnosed and just started treatment this week. My CD4 count is at 64. My doctor didn’t seem worried. I want to help my body and immune system as much as possible. My doctor suggested I get on a Mediterranean diet. I decided to stop smoking 420 to keep my lungs healthy. What supplements, holistic medicine, or exercise routine have helped you? I’m trying to keep a positive outlook and the diagnosis is pushing me to be the healthiest I can. Any help or suggestions.

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u/dmesau — 5 days ago

Exames novos ....

Sou hiv+ a 21 anos!

Faço exames a cada 6 meses, porque sou controladora de elite e não tomo medicamentos .

Sempre faço carga viral cd4/cd8 e um hemograma completo so pra checagem. Nesse que fiz hoje tinhas os seguintes exames :

- CD4 CD8 Contagem de linfócitos

-Carga viral HIV-

-PCR Hepatite C

-PCR Hepatite B

-Genotipagem de HIV

-Genotipagem do vírus da Hepatite C

- Confirmatorio HIV-1 E 2 Sorologia

-Confirmatorio HIV-1 E 2 - Biologia Molecular.

Alguém teve indicação pra fazer esses exames ???

Porque exame Confirmatorio??????

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u/Barbie-traficante — 2 days ago