
r/diabetes_t1

Our A1c after 1 year of this horrible disease: 6.1
Our daughter has become noticeably more self-aware and she handled the test exceptionally well.
DCCT: 6,11%
IFCC: 43 mmol/mol
We were administered to the hospital a year ago with A1c of 11.2. We knew nothing of this horrible disease whatsoever and we thought it was a mistake.
We are using Medtronic 780G pump and Guardian 4 sensor which we are extremely satisfied with. Guardian 4 has been excellent for us and it's a real life-saviour. Without it, we would probably have already gone mad.
It's living hell with air conditioning, thanks to that great tech. But it's still a living hell.
Even though we advocate a strict diet, using an insulin pump and carefully calculating carbs does wonders, so we can give our daughter many of the treats she likes: ice cream (from her favourite shop), homemade muffins, cakes, watermelon, homemade keto-pizza. We still avoid certain foods - especially unfamiliar ones. She eats homemade healthy breakfasts, lunches, and dinners every day.
She plays outdoors and in the garden a lot. We disconnect the pump for those times and give periodic corrections.
She barely notices the pump and is very responsible about wearing it.
She still doesn't like changing the infusion set and the sensor, but it's got MUCH easier after a year of horror.
We are absolutely looking forward to a cure.
It's astonishing how little humanity knows about this terrible disease while it's widespread, horribly under‑researched and largely ignored - and it can affect anyone.
Running in the evenings & losing weight
I'm 32F trying to loose weight. Is it possible to run in the evenings without going low while cutting calories?
My last bolus was 11ish am and I started my run prob around 5:15pm. I use an omnipod and I suspended insulin for 3 to 4 hours prior to the run. Full pause, not activity mode. Around 4pm I had a banana then later I had an apple then 30min before the run I had a slice of pizza. By a 1.5 miles in I was already going low so I had two gel blocs (prob 8g of carbs per block). And by mile 3 I was in the 40s. I spent a decent amount of calories just fueling for a run. Is there a way to run in the evenings while losing weight without fueling or just a normal amount of carbs like one gel? I'm only running under 4 miles. I dont know why a banana, apple, and pizza can't do the trick sustaining my bg. For reference I'm trying to eat about 1800cals a day (im prob already 200-300 over just trying to fuel this run). Am I doing something wrong? Pls help
Monjouro/metformin for T1d
Hi everyone!
Has anyone taken metformin and monjouro before?
T1d here - I tried metformin, was having some scary lows. I’m really insulin resistant but the metformin spiked and lowered me too drastically.
Has anyone taken monjouro for insulin resistance before? Did you find you got lots of lows with that? I’m scared to go back to having drastic lows but I can’t stand this insulin resistance, so am curious how monjouro might differ from metformin
nyquill?
hi- i took nyquill for the first time 20 hours ago and my sugar hasn't gone below 250. my a1c is 6.3 so this is really not normal. has this happened to anyone? any tips?
what would you guys do? (F18)
I moved to a new city about 7 months ago and everything was on track and not to mention but I had the best diabetic team. Unfortunately I couldn’t keep the same doctor and team.. When I moved and got scheduled with a new team and doctor everything quickly went down hill especially after I was told to stop the pump. I was using the tandem pump and everything was good. I had higher glucose levels because I had a lot of stress so the doctor had suggested me to stop using the pump. I was so skeptical about it because the dietitian team kept telling me I needed to get the Medtronic insulin pump. I told them no multiple times and they kept being very persistent about it. I felt as it they were trying to push a sales on me.. after leaving the clinic that day in December (2025) I got multiple calls and messages from them saying they could set up payment plans and so I hung up on them… well later that day I got a call from my pharmacy saying my prescription was ready?? I was confused because we hadn’t discussed a plan or anything. He literally changed me to Humulin R U500 insulin and to the Omnipod. Without even discussing it with me. But I did what I was instructed to do. Well after about a couple days my sugar was dropping too low (20’s and 30’s) and I think it was the insulin. I was on humalog u200 before via insulin pump. So I called the clinic and left multiple voicemails explaining what was happening.. I never got a call back. So I panicked and started looking for new doctors in the area. I finally got a call back 4 days later, and then got another appointment with them. I told them I wanted back on the plan I was on before. He said I needed to keep at it. And wouldn’t change it back. So I’ve been waiting 4 months on different waitlists for a new doctor. What in the world do I do in the meantime?? My sugar is outrageous and all over the place.
Supporting someone with T1D?
Hey everyone, I hope it’s okay for me to post here since I don’t have diabetes myself.
I recently started living with a guy who has Type 1 diabetes, and I’m trying to understand how to support him better. He’s a few years younger than me and manages things with multiple daily injections (different types of insulin too?). From what I understand, he seems to have problems holding his level stable? He isn't extremely talkative, which doesn't make it easier to help him. Maybe I'm being too pushy though, but he doesn't seem to manage it well, so I'm worried.
I’m the one who does most of the cooking, so I’m especially unsure how much that affects him. I try to make balanced meals for all of us, but I don’t really know how timing or portion sizes play into this all. I also worry because he doesn’t seem very keen on going to the doctor.
Is there anything I can watch out for or is there any way I could help him better? Or could there ever be any emergency situations where I'd have to act in a certain way? Or anything else I should know?
Sorry if any of these are stupid questions. I honestly don’t understand a lot about this (yet!) but I really want to help him. If there’s anything else you think is important or that you wish more people knew, please tell me whatever comes to mind. And this got so rambly! So thank you to anyone for whatever small bit.
EDIT: Just to clarify, I don't want to interfere in how he handles any of this without his consent! Maybe I worded it poorly and I apologize for that. We're all in a less than easy situation and I have known him for a good bit. Just worried.
tresiba
so ive found myself in a situation, I've had a pump for most of my life and well long story short I gotta go without it for a couple days, I have a tresiba 100U pen that I've been keeping for backup and humalog. I genuinely have no idea how to do the tresiba shots anymore last time I had to I was like 10 and my docs are closed because of patriots day or whatever so they can't help me till tomorrow and I remember tresiba is long acting and I give it once (or twice?) a day but no clue how much to give and I know it's bad but idk how to calculate how much to give myself when I eat because before the pump my mother did it for me since I was little then I grew up relying on the pump and I'm kinda scared I'm gonna die because I have no fkn clue what I'm doing
Goodwill really just be selling anything.
Yes it was in the box, and yes I bought it so I could have a spare.
Does anyone here see an endo remotely?
I live in a bit of medical desert I am 3-5 hours away from the nearest endo. I would love not to spend an entire workday driving just to go see the doctor. Does anyone have an Endo that they see remotely that they would recommend? Or have any other suggestions?
Trace to moderate in 4hrs
Ketones that is. Urine strips. Glucose 169. Dr closed, no forwarding to Dr from msg. No after hr service. Just says call 911 in emergency. Stomach issues, not eating much. Never had this high ketones in 60yrs. Took 2 units Novolog, drank 8oz water so far.
Question for religious people: If God gave us diabetes, does that mean we shouldn’t try to manage it unnaturally by taking external insulin?
I’ve seen many people on the internet say that God gives us diseases to make us stronger, which doesn’t make sense to me. In the 17th century, if someone got diabetes, they would have died, so I don’t understand how that would make them stronger. Maybe I just have low IQ and can't understand that.
Can’t have breakfast
Hey everyone, I’m struggling to figure out my breakfast and would really appreciate some advice.
This morning I had one of those frustrating spikes that don’t really make sense to me. I started around 150 mg/dL, did a bolus of 2 units (my breakfast ratio is about 1:9), waited about 10 min, then ate 2 slices of whole grain bread with a small teaspoon of chocolate spread (didn’t count it very precisely).
About 30 minutes later I started rising pretty fast and eventually hit ~300 mg/dL.
What’s confusing me is that it didn’t seem like a huge amount of carbs, and I did pre-bolus (even if maybe not enough). But the spike was way bigger than expected.
Also, something similar has happened before: one time I accidentally took 5 units for basically no carbs (just a small piece of chocolate), still spiked to around 200 first, and then dropped later. So it feels like in the morning the insulin just “arrives late” compared to the glucose.
At this point I’m not sure what to adjust, should I be pre-bolusing much earlier in the morning? Like 20–30 minutes?
Mornings just feel way harder to manage compared to the rest of the day. Curious if anyone else deals with this and what worked for you.
The future.
Im new diagnosed t1d (9 weeks). Im on cgm and waiting on pump ( atleast 6 months on pen before pump).
I have been following "diabetech" and "taking control of your diabetes" on youtube and there is alot of talk about both a internal closed loop pump beeing developed and different genetic cures beeing tested and both options sounds very promising.
But now the question to all of you.
Should i get my hopes up thinking there might be a cure or solution on the horizon (2030 is thrown around)? What are your thoughts about the future possibillitys?
WTH is going on with lol
For context, this has been happening last 5-6 days. 10:30am I ate my regular meal, gave FULL insulin hit the stair master for 20 min and sauna for 20 min which usually drops my sugar insane. But instead it’s been shooting up like never before?? Granted the last few days ive been eating out a lot and having alcoholic sugary drink. Not sure what else to do? I switched from humalog to novolog but idk if that’s the issue?
Serious Question for You T1Ds
I would really like to know at what level you all get symptoms of your respective high and low blood sugars. I've had T1D for 25 years and I've noticed the levels for each are getting smaller and smaller:
High symptoms - 150
Low symptoms - 90 to 85.
I would love some numbers from you all too.
Is anyone young on disability from diabetes
hi - by the time I was finally diagnosed, I was severely underweight and barely functioning. Did anyone get so sick to the point they weren’t able to work anymore?
Even with treatment the fatigue and brain fog are so severe that I can take care of daily functioning/chores and that’s it.
i just wanted to see if anyone is a similar situation.
Technology in the Wilderness
First day on Omnipod, from MDI.
Looking to do some more multiday, wilderness trips this summer. I have plenty of experience. I've always enjoyed getting away while in the woods, but alas, I'm excited to see what I can do with this thing. But all the talk of checking ketones and bent cannulas got me thinking:
What do you bring, and how do you carry it? More specifically:
What are your safety margins (do you bring 1 backup, or 3 or 5? Backup needles and pens? Alcohol swabs? Ketone Strips?
Sharps container????
What about charging, for like 4 or 5 day trip in cold temps, would you bring a backup charging solution?
The backup 'meter' device thing that comes with it?
Sugar free coffee creamer that doesn’t spike you?
Hey guys even when I use a sugar free creamer with my decaf or caffeinated coffee I have blood sugar spikes. What do you all use?