r/Dizziness

▲ 8 r/Dizziness+1 crossposts

Feeling like I'm on waves everyday...

Hello everyone. I came across this platform learning how everyone here either gets help or the feeling that they are not alone. So I thought to give it a try as well. I don't know how to describe what I feel exactly but I'll try my best....

So..the background details in short. I 24F have had a good childhood. I've never had problem making friends or anything. I am mostly happy with myself. Up until 2020 I had one of the best life anyone could think of. That was when I completed my schooling. After it covid came. I didn't really have any college life as I did it remotely. I was inside my house all day. Barely went out. But I was happy. I didn't really feel like missing out on anything or such.

Fast forward to 2024. Feb..I had a panic attack. At that time I thought it was the end. I was having a heart attack. I was dying. And lets say life after it has been different.

It took me a few months to grasp it. I was so confused. Why did I have panic? Anxiety? I was happy. I went through brain tests and heart tests as my palpitations won't stop. Before I went to a psychiatrist and he ruled out panic attack.

After it i started craving people. Humans. I joined a few games and met people. And as long as I was occupied my Anxiety was on hold. It took time but things got better. So thats what I thought. I was deficient in Magnesium, Vit B12 and D3. Supplements helped.

Its 2026 now. And what I can describe about my feelings would be..

I am every single day going though the same feeling of being on a boat in the middle of ocean..

If I am sitting in a chair doing stuff I'd feel those zaps like my head just went in wave. If I stand in feel my legs are a nit heavier...like I am in a wave motion. Or just jumpy. If I walk i often feel my legs are stepping on clouds.

If I lay on bed to rest or sleep..I'll feel like I'm on a boat that's sailing. Sometimes it's a rocking chair feel. Sometimes I feel like I am moving back forth..swaying sideways. I could swear I feel I'm in motion. But when I record myself I barely see any visible motion..when I am anxious I can capture slight swaying and others can see it too.

The thing is..its constant now. Every day. I didn't travel but what I feel is like a motion sickness that refuses to go awat. Its always there...some days worse. Some barely there. But it's interfering with my life..I barely want to go out. I am constantly checking if I feel okay. And the worst part is...I notice if I dont feel it for some time..and my first thought is..wow it didnt come today and thats when it starts again.

I have this fear that I'll faint even though I know I wont. I still take Supplements and its helping but...I don't know who to go to for this. I have really important exams I need to sit for..its life deciding for me. If anyone can help. Even slightly. I'd be deeply grateful.

Google says it's some inner ear thing. Its not exactly vertigo. It says a lot of things like PPPD and others match it. I am so confused. Any advice or suggestions would be helpful. Thank you if you took time out to read it..

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u/thoughtsunsaidinhead — 20 hours ago
▲ 12 r/Dizziness+1 crossposts

Alcohol…

Hello!

I have been diagnosed with PPPD for about 4 years now. It’s still mostly an issue. It’s gotten better over the years and currently I will have good days and some not so good ones. Heavily depends on sleep, stress, hydration.

HOWEVER, as a result of my sudden onset of dizziness I have found plenty of alcohol will relieve the symptoms heavily. Almost like I feel normal again (even tho it doesn’t feel normal due to be drunk often, atleast when in social or busy situations).

My question for you is have you experienced anything similar and what was the remedy? I’d imagine it gets better when you quit drinking all together.

Thank you and good luck!

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u/Gloomy-Fig-2265 — 2 days ago

Has anyone got any suggestions for dizziness testing I should request? Anything I should be asking to have ruled out? This appointment will be my first opportunity to give a history and have possible causes considered, and maybe my last for some time. [Summary in post]

I was hoping to get some advice on what testing I should ask for at an upcoming audiology appointment. This is the first time I'll be giving a proper history.

I'd like to get to a better understanding of the cause of my symptoms, rather than just management of symptoms, which so far has not been that helpful. A prior appointment found corrective saccades on right side, but I'm not sure how useful that is for guiding understanding/treatment.

This is a summary of information I've put together for my appointment in case that is useful:

Dizziness timeline:

2022

Acute episode of dizziness when moving from lying down to standing. Unable to remain standing. Some dizziness remained and faded to nothing after a few weeks.

Tried Brandt-Daroff exercise during this time- very triggering of symptoms on one occasion

Saw GP practice nurse during this time who didn’t observe nystagmus, thought it was may have been BPPV that was resolving

Symptoms improved gradually, gone after a few weeks.

Sometimes particular upside down head position could cause temporary mild dizziness

2024

Approx November Period of washing hair upside down over bath seemed to cause temporary dizziness afterwards. Had other mild, short episodes of dizziness eg when inserting and removing silicone ear plugs

December - Six weeks after having a cold that did not seem associated with dizziness, acute episode of dizziness when moving from lying down to standing. Unable to remain standing, intense nausea, more severe and long lasting than the previous episode.

Some dizziness remained, particularly triggered by looking down. 

Symptoms often worse in evenings, best on getting up in morning.

Symptoms often felt best when walking.

Fluctuated in intensity for nearly a year until approx September 2025, when symptoms worsened.

Very mild, occasional tinnitus worsened and became more frequent during this time.

Symptoms worsened again in December. More and more triggered by movement, less by looking down. Started to get nausea. Metoclopramide and ondansetron helpful for this.

Interventions tried: 

Tried the Epley manoevre from December 2024

From January 2025 did some vestibular training exercises from YouTube

From June 2025 replaced these with Cawthorn-Cooksey exercises for about two and half months.

From about October 2025 did approx 6-7 weeks of vestibular physio gaze stabilisation exercises. Symptoms shifted away from being triggered by looking down

Restarted gaze stabilisation physio exercises in April 2026.

Symptoms

Present most of the time to varying degrees and in varying ways

Symptoms shift in intensity, location and quality. 

No nystagmus?

Sensation of movement/sea sickness

Sometimes seeming to come from the left ear or neck/base of skull, but often not.

Nausea (particularly with movement, bending and turning over in bed)

Tinnitus, normally mild ringing/whistling, particularly in left ear. Sometimes just in left ear, sometimes both ears, occasionally just right. Sometimes ‘swooshing’ pulatile? tinnitus , normally in left ear, particularly if head is back. Possible long-term low-frequency tinnitus?

Pressure in and by ears

Eyes sometimes seem out of focus, particularly when scrolling on phone

Symptoms can be triggered/worsened by:

Movement, particularly turning at the moment.

Pressure on head (eg washing hair, lying on back)

Turning over in bed (particularly nausea and tinnitus. Normally hiccup when I turn over in bed).

Recently associated with headache at back of head and sensitivity to pressure on head, particularly at back of head/top of neck.

When very sensitive, talking

Occasional pain in ear from sound, particularly in left ear

Last year - some visual things eg looking at supermarket shelves

I've had two previous brief appointments, prior to this upcoming longer appointment:

September 2025 appointment:

Dix-Hallpike test negative

Unterberger test and ear & cerebellar examination normal

December 2025 appointment:

found corrective saccades on right side.

No nystagmus observed at any time

I've wondered about eustacian tube dysfunction, or other issue, in left ear?

Pre-existing conditions/symptoms:

Migraine (pain centred in left temple and left eye. Diagnosed approx twenty years ago)

Hypothyroidism (diagnosed approx 15 years ago)

Ehlers-Danlos Syndrome (EDS)  (diagnosed apprx 10 years ago) [I've seen that craniocervical instability (CCI) can be associated with EDS]

Postural Tachycardia Syndrome (PoTS)  (diagnosed approx ten years ago)

Long term - itchy, flaky skin in ears, use betnesol steroid drops several time a week, 0.1% ear drops

Since approx 2023 - blocked, popping left ear, particularly when congested, sometimes pain, particularly if pressure is put on ear with long term use of silicone ear plugs where a seal is created

Menorrhagia - Mirena coil fitted for heavy menstrual bleeding resulting in lighter but prolonged (normally at least 14 days) menstrual bleeding

Possible perimenopause - shorter (low of 14 days)  & more irregular menstrual cycle, hair growth - trialling oestrogen spray

Sometimes - headache at base of skull, sometimes on left and going to left side of head. Possibly associated with dizziness, possibly not.

Numbness and tingling, in finger tips, particularly thumb second and third fingers, triggered by some activities such as using phone. Pain at right scapula.

Family history of glue ear.

Narrow ear canals.

Thank you to anyone reaching the end. Any advice would be gratefully received. Best wishes to everyone suffering from these symptoms.

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u/Any_Stretch_862 — 2 days ago

Constant vertigo from 6 months

​

Hi all, I'm 18 and for the last 6 months I've been facing continuous dizziness from when I get up in the morning to when I go to sleep at night.

So I have been having small attacks or dizziness/vertigo from past 3 years but I used to think it was my mind as I only used have it in school and the second I used to come back home I wouldn't have it but slowly it started coming when I was at home or outside with my friends but I never paid much attention.

From last july I was noticing that my balance was getting worse and worse and the intensity and duration of my attacks were becoming longer and severe.And last October when I was very stressed due to my academics, my vertigo flared up until one day I completely lost balance and fell in class.Since that day I have been having constant vertigo every single day from morning to night with very few instances where it came down, I have not attended school from past 6 months regularly. If I go I come back within 3 or 4 hours as I can't sit.Not only in school i have not been able to go shopping or sitting in restaurants, even at home I cannot sit for more that 15 minutes continuously.All required tests and scans are done and they are clear

My vertigo is more like I'm on a ship which is sailing through a storm. If I'm sitting in a chair, the chair suddenly goes up and down, tilts to the sides and I feel like falling. Noteworthy is that while I'm in a car I don't experience any vertigo.I don't have it much even when I lie down or walk.Its worse when i sit and stand still.Also I experience light sensitivity and my visions weird like sometimes if I look at something it looks unreal but apparently that's just a symptom of anxiety.im generally a very anxious person and im highly hypochondriac.

I went to an ent who diagnosed me with vestibular migraine and bbpv and prescribed me flunarize 10mg and that made my vertigo 20x worse, I barely could walk and was bed ridden for 5 days.After that I took ayurveda medicines and it calmed down.

I visited a couple of other doctors, one said it was psychiatric and that migraines cannot last for 6 months straight and continuously and prescribed me a mild ssri which I'm currently taking and I'm also going through physiotherapy to strengthen my neck muscles as someone said neck can cause dizziness but it didn't help much.

Please if anyone has any idea about this or has gone through this please tell me what it could be and what to do.My life is completely ruined because of this, I am not able to go to school, go out with friends and even struggle to do day to day tasks any.

Thank you.

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u/Distinct-Sir4563 — 3 days ago

What I learned tracking my own dizziness

Last week I posted in r/over60 about a dizzy moment I had backing out of the driveway.

I'd been thinking it was balance related. I'm getting older, not in the shape I used to be, and figured this was just part of that. So I started looking into things that might help. That's how I ended up in a tai chi class for older adults. Slow, deliberate, you actually feel your weight shift from one foot to the other. I've stuck with it and I like it.

The studio had a flyer on the bulletin board for balance tracking. I figured if I was going to do tai chi I might as well see whether it was actually moving the needle. I started taking a reading in the morning and one in the afternoon.

That's when I noticed my dizziness wasn't constant. It varies through the day. Mornings are usually worst, late afternoon there's another rough patch, evenings tend to be better. I'd been thinking of it as either a dizzy day or a not-dizzy day. It's more like windows.

If you've been treating yours as a single thing that happens to you, it might be worth tracking for a couple of weeks. Knowing was the thing that helped me most.

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u/Jamesoniania — 1 day ago

What it is pppd or something else?

Hello. I want to explain my health problems and symptoms.

About 3 years ago I became very sick with a very strong cough, runny nose, and high fever. I was very ill and it took a long time to recover. After I recovered, I started having a heavy feeling in my head, pressure in my head, and ringing/noise in my ears (tinnitus).

Later I suddenly experienced a very strong dizziness attack. I fell down, started vomiting, everything became black in front of my eyes, I was shaking a lot, and my heart was beating very fast. I was taken to the hospital, but they did not find anything serious.

After that I visited many doctors, but nobody found a clear reason. I started feeling like I was being pulled to one side while walking. The heavy feeling in my head never completely disappeared. I often feel brain fog, like my head is cloudy, and sometimes I feel as if I am drunk even though I am not.

Then I had another episode of severe dizziness, this time without vomiting. Again I was taken to the hospital and they did not find anything serious.

After that I continued visiting doctors and also went to physiotherapy. For some time I felt better, but later the dizziness episodes returned from time to time. When I walk, I sometimes feel drunk or unsteady, and when I stand still, I feel like I am swaying. The heavy feeling in my head and tinnitus have continued almost constantly.

Because of all these symptoms, I also started having panic attacks and strong fear that I might die.

Doctors have checked me multiple times, including my heart and other tests, and they said they could not find a serious physical problem.I hope I can receive some support from you. I feel unwell every day, and I am currently taking medication because I was diagnosed with psychogenic dizziness and panic attacks.

I am taking Insidon drops (Insidon Tropfen), but I do not feel better. I still experience dizziness, brain fog, pressure/heaviness in my head, imbalance, tinnitus, and anxiety. Sometimes I feel disconnected from myself and like something is seriously wrong.

Because my symptoms continue every day and do not improve with the medication, I am afraid that maybe the diagnosis is not completely correct. I would really appreciate support, advice, or further evaluation because these symptoms are affecting my daily life very strongly.

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u/Competitive_Fly3987 — 4 days ago

Labyrinthitis- neurotisis

Hi, anyone here experiencing only mild off balance feeling when walking (ok when sitting, and still). I have this for 3 months and partial hearing loss in one ear. My biggest problem is that despite trying to live as normal my brain started to get really fatigued (im just tired all the time), which then exploded into crippling anxiety, brain fog, panic attacks (nothing emotional it just happens). I really cant live like this, anyone, any help, advise how to overcome this (other then being medicated for rest of my days) ? Thank you so much 💓

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u/FollowingDull7401 — 2 days ago

Is dizziness normal with a herniated disc?

Hey,

an MRI scan revealed that I have a herniated disc at C5/C6. It causes slight compression of the dural sac but does not result in any direct impingement on the nerve roots or spinal cord. The narrowing of the spinal canal to 10 mm is focal (localized).

I don't really experience actual pain, but rather a strange sensation of tightness in the left side of my neck. However, what is causing me significant distress is the dizziness; I simply wanted to ask if anyone else here with a similar herniation has also experienced such severe dizziness. In my case, the dizziness has persisted for four weeks and will likely continue for a while longer, as I am still in the acute phase.

My goal in asking this question is to gain some peace of mind—to know, "Okay, I'm not alone; this is all within the expected scope of a cervical disc herniation"—or, conversely, to find out if this is *not* considered a typical symptom. I would be very grateful to anyone who can share their experiences regarding their own cervical disc herniation!

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u/Crankaylo — 4 days ago

I am 25. My GP says there really is no one else I can see for any other causes of dizziness and I've seen everyone already for testing. I am seeing the seizure clinic again in September and neurology for my migraines later this month and he thinks it's likely functional dizziness or some part of FND.

I mentioned maybe testing for POTs but he said there isn't really a reliable way to test it and I mentioned a tilt table test but he didn't think that was worth doing I guess?

I'm not asking for a diagnosis. I'm just very confused as to what's going on and it's been over a year since this all started. I'm only asking if there's any other condition or type of condition that could be causing dizziness that could be being missed.

I've been having chronic dizziness (both vertigo and lightheadedness) that can last for up to hours and I get it every day. Often it's this constant thing in the background and then it gets worse. This has been happening ever since I started taking Duloxetine for migraines in February 2025, which I then stopped taking 2 weeks after starting it because I ended up being so dizzy I fell. I've been off for a while and I'm the same if not worse. I have fallen many times and my balance has declined. I have to use crutches to walk for my balance when I'm outside.

Symptoms I have are:

Confusion

Fatigue

Brain fog

Palpitations (my ecgs and blood pressure standing and sitting have been fine)

Worsening migraine symptoms (visual distortions, blurry vision, worse headache)

Leg tremors when walking

Rapid blinking

Difficulty speaking

Feeling drunk

Legs feel heavy to move when walking

Vacant periods although I think these could be absent seizures.

Increased tinnitus (multiple times a week versus maybe once or twice a month)

Multiple ear infections and blockages since it started (stopped early childhood).

Non Epileptic Seizures since August 2025 (Diagnosed with NEAD).

Triggers:

Changes of light

Changes of temperature

Cold

Bright light

Walking too much or too quickly

Stress

Sensory overload

Getting up/sitting down too suddenly

Often Random

Not helped by diet (even binging or eating normally it happens)

Not helped by sleep (sleep is usually fine)

Not helped by better mood (currently on antidepressants, getting mh support, using CBD)

I don't drink heavily or do any hard substances.

Multiple anti vertigo medications have not worked (prochloperazine, betahistine, cyclizine, cinnarizine). I am currently taking Topiramate 25mg and I am going to be increasing later this week.

I've seen a stroke consultant, no stroke. Had 5 head CTs and an MRI, normal. My eye prescription is up to date. Cardiologist saw no issues. Bloods are normal, ECG is normal. EEG is normal. Neurological exams are normal. ENT said there were no ENT issues that could cause this. I recently had some balance tests done with audiology and nothing detected there. I did mention this to neurology when I saw them for migraines and they didn't seem too sure it was vestibular migraine. I've had dizziness spells with migraine but they were very brief and they were nothing this disabling. The feeling was not anywhere near the same.

I also have autism, ADHD, recent urinary issues (it takes longer for me to urinate and I've had a catheter put in me because I couldn't go at all last month), chronic migraine and multiple mental health problems (anxiety, depression, disordered eating, trauma). My balance and coordination has always been a bit worse than average. I went to occupational therapy until I was 9 for what I now know are dyspraxic difficulties but I didn't experience much issues with my balance before this. I could ride a bike just fine since I was 13. I was also very physically active and walking around 15,000-20,000 steps a day with little issues.

When I look online for other causes of dizziness, none of them match up very much. For example cervicogenic dizziness doesn't match because I've not had a neck or head injury in the past year and also apparently it rarely makes you feel like you're spinning which is something that I actually feel very often.

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u/elhazelenby — 8 days ago

Dizziness & weird symptoms for 5 months

Hi all,

I've been experiencing a bunch of symptoms which started in January this year, it feels like i've had every test under the sun and no definite answer.

The symptoms i've been experiencing below;

- Dizziness - not typical spinning feeling but feeling dizzy when i look around or move my head

- Swaying/internal moving sensation especially when im sat at my desk at work, or sitting on the lounge

- Lightheaded when standing, also feel an intolerance at times standing for periods or walking around too much

- Feeling an off balance feeling when walking

- Head 'wooshes' sometimes when laying in bed before i fall asleep i'll feel a woosh or rush through my head

- Extreme neck tightness especially when looking at things for a period of time eg computer screen or looking at someone & talking my neck aches & the dizziness feels worse

- At the start i was experiencing a 'dropping' sensation in my chest/head which has decreased since taking naturopath supplements for cortisol/adrenals but dizziness still remains

I have a history of neck issues, 13 years ago I had almost the exact same symptoms which i eventually found my Atlas was misaligned and i saw an Atlas Orthogonal Chiropractor and after treatment with him i was fixed. I continued to see him ever since then, after Covid he no longer had the Atlas machine & had been adjusting with a handheld activator instead, for years i was only going 1-2 times a year for an adjustment but the past year i had been going every 2 months. Since all of this started i went back for regular adjustments with just the handheld but i would feel worse a few days after. Recently i found another upper cervical chiropractor who has the Atlas machine, i've had 3 adjustments from him and after the first i saw slight improvement but its been 3 adjustments now and i am still having the dizziness.. i know it can take time but im feeling a bit discouraged.

I have had GPs check me for other reasons eg coming from the ear one did the test for BPPV but didnt seem to think i had that, he did say i have fluid behind my ear drums and i have a nasal spray but havent seen much difference using that.

I know there are other neck muscles that can cause dizziness which i havent had work on yet, only chiro,

Has anyone had a similar experience or found a resolution?? as its ruining my life :(

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u/Melody878 — 7 days ago
▲ 4 r/Dizziness+1 crossposts

Please help

Hi i’m 16 years old and for 5+ years I’ve been dealing with many different health issues that I have gotten no answer to. I’m going to start by telling all the events of my chronic pain in order, if anyone can make any correlations or diagnostic ideas it would be so helpful.
When I was younger possibly aged 11 or 12, I had a fall off a zipline to my head. I didn’t, for some reason, put my arms out. If I did, I would have been sure to break something because my bones are easily breakable. Because I didn’t use this reflex, my head hit the ground first. I don’t remember anything from this event besides waking up with my parents afterwards.
Immediately after, I had back pain that lasted 1-2 weeks and I did go to emergency but was brushed off. The back pain did go away and I’ve never dealt with it since.
Maybe one year later, I start to get episodes of nausea. At the time, I had no idea what it was because I was still young. The feeling was not as extreme as it is now. I remember being at school, having to sit out of PE because my head feels strange. It didn’t feel like a migraine, but it felt heavy and sensitive. I don’t remember much of it.
One year after that, it gets much worse. Every 2 months, I started to get a vertigo episode that lasted for 5 days at a time. At first, people didn’t believe me because I wasn’t sure how to describe what I felt. I would also have nystagmus.
Sometime after that, possibly a year, I receive an MRI for my head and nothing is wrong. They diagnose me with BPPV. Even as a child at thirteen or fourteen I knew this was bs because the epley manoeuvre doesn’t work on me and my symptoms are very different. I felt, and still feel, that they were trying to quickly diagnose me even if it were false because they were unsure of the real issue.

At fourteen, around the same time, I start to get shoulder and neck pain. The pain feels deep and travels down my arm to where it is difficult to use. The unusual thing I don’t understand is that the pain switches shoulders. For example, I could fall asleep with severe pain on the right side but wake up with pain now only on the left.
It was very painful and I would miss a lot of school over it. Again, I went to emergency many times but all they would do was an XRAY.
Here they diagnosed me with a humeral cyst and determined the pain was resulting from the cyst. To me, this never made any sense because the cyst is only on the left side, so how come i get pain on the right side too?
Fast forward to 16 (my current age). I still get shoulder and neck pain but it is on and off as it has always been. I will go through phases where I feel nothing, but it always comes back eventually.
I still get the vertigo, and it seems to have been getting worse every year. I now vomit for the first two days of the episode, and any light makes it much worse.
At this age, I was diagnosed with an EVA. If you don’t know what that is, it is an Enlarged Vestibular Aqueduct on one ear. I haven’t received much information about it from doctors, but again they blamed my vertigo on this new diagnosis. Its main symptom is hearing loss, which I apparently have in one ear.
Now the reason I mentioned the zipline incident is because it’s the only memory I have of a “traumatic event” that could have caused these incidents. Yes i’ve mentioned it to the doctors.
I’ve been prescribed many different medication for all issues I have but nothing has worked so far. Please, if anyone can make any suggestions what to do next or correlations between events please help.

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u/readssge — 4 days ago
▲ 7 r/Dizziness+1 crossposts

My brain feels like a carnival 🎡

About 6 days ago I randomly woke up with vertigo out of nowhere. For the first 3 days, I couldn’t look up, down, or to my right without triggering intense spinning. Laying down was awful, especially rolling onto my right side. Every time I stood up, I struggled with my balance, and even going down stairs felt difficult. Taking my dog outside was miserable because being outdoors and moving around made everything feel worse. The nausea has been brutal too.

The last couple of days have improved slightly, but I still feel very nauseous and my head just doesn’t feel “right.” Any quick head movement still makes me feel like I’m moving way too fast or like my brain can’t keep up.

I can’t get in to see my doctor for a few more days, and the hospital wait times where I am in Canada are extremely long. I already am aware I need to see a doctor. This is completely new to me. Does this sound like BPPV or another type of vertigo? Any home remedies or things that helped you while waiting to be seen?

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u/octoberslytherin — 4 days ago

Help please

So I’m a 17 year old male and about 2 weeks ago I started a job as a dishwasher so yesterday I got home from the job and noticed that I was really dizzy as soon as the car stopped and when I got out I was wobbly I was semi dizzy the rest of the night and this morning when I woke up I didn’t really have dizziness until I took a shower and when I took a shower it was fine until the room got steamy and once the room got steamy it felt like I got so dizzy I was about to fall over so I’m not sure what this could be my mom and grandma suffer from vertigo and think it’s that but at my work I also am around constant steam and hot environments what do you guys think it could be I have 0 other symptoms besides dizziness I’m not even sure if you would consider it dizziness but it’s like more of a light headeded off balanace feeling the room dosent spin but it feels like my head gets heavy and tries to almost leave me body.

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u/LongEarly7636 — 5 days ago

Hello! Im a 19 year old female, 20 later this year, and I’ve been dealing with dizziness since I was 11 years old. It first started in 5th grade when I was laying flat down on the floor at school and all of a sudden the entire room was spinning. It only got worse from then.

At least once a month, I would have prolonged and severe dizzy spells that would sometimes last for weeks at a time. It was horrible, as I couldn’t sleep, move my head, or walk, without everything spinning.

In middle school I regularly saw doctors and specialists and had a bunch of tests done on me, including MRIs, but the doctors could not find anything specifically wrong with me.

The only help I had were some few prescriptions that could ease my symptoms and Dramamine.

Luckily once I hit high school my dizzy spells started appearing less often and less severe, only a few times a year now and only usually lasting 2 days at most, and my official diagnosis was vestibular migraine.

We started treating my spells like migraines but it still feels like it’s not helping. I’m good at catching when my dizzy spells are about to happen, but still not sure how I can prevent them better, my only relief over the years was just being lucky they aren’t as severe anymore.

Some of my triggers are:

-Laying completely flat on my back

-Typical migraine triggers (loud noises, bright/flashing lights, etc)

-Intense motion, like rides that spin super fast. I was on a spinning ride a couple years back and I was left dizzy for about 3 days.

-and sometimes it would just happen with no trigger at all, out of the blue.

Is this really just vestibular migraine like my doctor diagnosed me with? Could it be anything else? If it is vestibular migraine, what helps you guys prevent them?

Thank you for reading!

(Currently writing this in a mild dizzy spell 😭)

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u/Smokey_2X06 — 14 days ago

I'm feeling retarded.

Hello everyone! Good evening! Greetings from Brazil. First, let me introduce myself: I've had generalized anxiety disorder since 2013 and I'm also a hypochondriac. A question: besides dizziness (not rotational), blurred vision, and mental fog, does anyone here feel a bit "retarded" too? I've been feeling a lot like that: slow thinking, unfocused vision, forgetfulness (memory lapses), in fact, a mental slowness that worsens when using screens. I feel like I'm on autopilot; it's as if I'm outside of myself. Literally, I feel like a madman. I became like this after a dizziness crisis (not rotational), where my vision became strange and stayed that way. That was 3 months ago. *I went to an ophthalmologist; he said everything is okay. I'm quite scared, even though I've faced several symptoms throughout my life due to my anxiety. I'd like to know if anyone else is going through this; I'm feeling lonely.

Sorry about the English, it was translated, I only speak Portuguese.

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u/Khanary_ — 6 days ago

About I went to the ER with dizziness that started as a burning feeling at the back of my head. it was never spinning just a general feeling of disequilibrium and being out of balance.

I spent 2 months bedridden and gradually gotten better. during the 8 months I always felt it in my legs mostly my knees as perceived weakness, I can walk and squat no problem but I feel numb in my knees.

yesterday the head dizziness came back again and I'm honestly very frustrated now.

the one thing I know to make it worse is bad sleep, however sleeping well doesn't make it go away but rather makes it more tolerable. I'm out of ideas can you help me figure it out?

I checked my heart, brain and ear and it wasn't any of them. I check my bp constantly and it's usually in a good range my diastolic can get to the upper 50s sometimes but not always.

I have normal iron and b12 levels.

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u/L47M4N — 8 days ago

I’ve been getting dizzy episodes since September. What could it be? I’m running out of patience I NEED ANSWERS

Here’s what I’ve done so I don’t write paragraphs

- MRI on head and neck (normal)
- X-rays on neck (seeing a Chiropractor now and doing adjustment once a week)
- full blood panel twice since September both came back normal
- seen 3 ENTs nothing useful
- vestibular therapy for 3 months did the epley multiple times
- seen a cardiologist and did an echo
- did a VNG/ENG testing
- every time I eat I start getting dizzy afterwards.
- driving and being in the car for long periods of time is a trigger
- I can’t even wear contacts for some reason I get dizzy afterwards
- seen an eye specialist and had my glasses prescription updated a couple months ago.
- I tested positive for HPV a year ago and had a genital wart removed.
- I got my wisdom tooth taken out in October of 2024 after that my right eye was blurry a bit (could it be my vagus nerve?)

What could this be? I’m starting to get super frustrated because I’m getting no answers. I’m constantly light headed and I feel like I’m gonna faint but I don’t and my right eye feels weird.

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u/Yousifusif96 — 7 days ago

Could any of these be the reason for my dizziness/constant lightheadedness?

Please take a look at this and tell me if any of these is the reason why? I did a full blood panel and that’s the only out of range that came back everything else was normal.

u/Yousifusif96 — 6 days ago

vertigo and 24/7 dizziness is leaving me hopeless

to start i am 20M and this is my first post on reddit after looking everywhere for a solution i decided to talk about what ive been dealing with for at this point maybe a year

i cant remember when i really started but maybe last year in august i would get very dizzy to the point where i would have to sleep to make it go away after throwing up, after that i would get horrible episodes of complete spinning and off balance to the point where i couldnt walk or look around or it would make my head feel so heavy almost passing out. bad episodes like that used to happen every 2 weeks and since alot of the time i would be working when it happened so i would need to leave and have someone pick me up cause i cant drive like that. luckily my manager is very understanding and just wants me to feel better.

ever since the start of the year i dont get those horrible episodes anymore but its just a 24/7 off balance feeling, ive gone to an ENT 2 times (the same one) they said there was no fluid build up or anything like that which was really heartbreaking cause i was hoping it would be that simple, i did a brain mri and it came back as nothing irregular, ive done blood work ive gone to a chiropractor ive done everything i can think, im very active and am in very good shape and i get 15k steps a day cause of my job, it makes me feel completely hopeless that ill never find out why this is happening to me. its stealing my life away not to mention im 20 and ive never met anyone my age that has to deal with this daily, it makes me depressed sometimes to the point where i consider suicide but i would never do it so dont worry it just makes me feel that sad and hopeless

i would give all the money ive ever made and more to get back to normal and i really dont know what to do anymore its taking my life away, i enjoy doing active things and taking care of myself but when youre dizzy 24/7 it really makes it hard to want to do anything.

idk what i wanted to get out of this i just wanted to share my experience about how horrible this is and i would not wish this daily struggle to absolutely anyone.

if someone else deals with this just know youre not alone and we will find out why this is happening and we will get better i just dont know where to go from here.

thank you if you read the whole thing feel free to comment and ask anything or give any tips on what you did to get better thank you.

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u/muradddddddd — 6 days ago