Periodontal disease treatments with Exfloitative Chelitis
Hi Dentists,
I have periodontal disease and recently developed exfloitative chelitis (a chronic lip condition, peeling and swelling and burning etc). It has put me in a really complicated pickle that seems to have confused the heck out of my dentist.
I was going through regular periodontal cleanings, still had 3 more scheduled (had 3 done so far). But my situation was already complicated since most of the inflammation is around a 15 year old bridge in the lower front, and it hasn't responded well to the treatment at all despite both my dentists & hygenists and my best efforts. But the dentists have been avoiding changing the bridge due to how complicated that spot is and we decided that we would try to save it with these 6 round of periodontal cleanings first. But it was already looking like we have to change the bridge anyways. And then I got lucky enough to develop a chronic lip condition, damaged lip barrier with constant peeling, burning, raw lip skin, responding painfully and weirdly to everything from water to air to movement to speech. It is called exfloitative chelitis, and it is chronic, I am trying different medications with two dermatologists but since it is a very rare condition, all doctors are puzzled and not that helpful or impactful.
Moving onto my last appointment with my dentists, she was very puzzled and even reacted saying "oh my god, this is so weird, i have never seen or heard of anything like this" - which of course did not help me. But it is typical for Berlin doctors to have poor bed side manners, lol. she even went so far as to suggest I see a "healer". Both the dermatologist and the dentist think I should avoid dental treatments unless absolutely urgent or necessary. So we postponed the periodontal cleaning. But here is the thing, I had to change to a more sensitive toothpaste, more gentle brushes and brushing techniques, and combined with using steroids on lips and the general stress on the lips, my gum inflammation has gotten a lot worse. I have pain, and the gums around teeth that were never red are now red.
So yeah, I feel very much in a pickle since doctors seem more confused than me by this condition and situation. I don't know what to do.
Have you ever dealt with a patient in a similar situation? How did you handle it? Maybe you have some tips and tricks I could share with my dentists and hygienist at least because they are really uninformed (despite being in Berlin, so this is not doctors in a tiny village in some forgotten country with bad medical education).
I would really appreciate any help, info as I feel very helpless, with no resource to find help from atm with these two conditions. They have negative impact one another, so it is like a viscious cycle and I get more inflammation both on my lips and my gums as they go.
As a side note: I got tested for candida and bacterial infections by a dermatologist, with an inner mouth swab and they came out negative.