u/10_Screaming_Foxes

Helloooo! Foxy is Foxy (They/He/Fox/Fox’s) and Foxy was wondering if anyone just had experiences or thoughts they wished were talked about more or better understood on here!

Foxy go first!

1. Everyone should be allowed to pick labels (if they are in the community)

Foxy personally uses the term moderate autism and mental age. Foxy completely understands if not Friend’s cup of tea, but Foxy is allowed to identify how he wants. 

However, Foxy highly disagrees with using terminology that doesn’t apply. Eg a non non verbal person (eg someone capable of speech) calling themself nonverbal or semi verbal. 

2. Under stimulation causing extreme depression and aggression

Foxy has attempted suicide and lashed out verbally at people after days of understimulation. Unfortunately Foxy gets underestimated easy so Foxy still working on doing better mood wise. 

3. Pronouns getting reversed. Yes it’s an autism thing

No it’s not just a symptom of DID. Autistic people mess up pronouns, especially higher support people. Spend some time over in those communities and you’ll see. 

4. Receptive language issues. Having a hard time understanding other people and reading.

 

Foxy can’t read big texts, and struggles to understand even easy things and speech. It’s sometimes all blurry reading wise or just straight up doesn’t make sense, or like the person is either not making noise, or making useless noise. 

5. Struggles with hygiene.

 

Foxy doesn’t know when clothes/sheets clean or dirty. He doesn’t know how to wash themself properly. Foxy can’t dry themself properly either, or brush their teeth. 

Hi we are Foxy! Quick dictionary before we get started!

AAC - talky app thing on iPads 

LSN/MSN/HSN - Low/Moderate/High support needs

Okay let’s go!

1. You can’t go nonverbal.

 

Being non verbal is a 24/7 state. The non verbal community has been talking about how they hate that term for ages. And no, you aren’t semiverbal either. That’s also 24/7 You’re having a verbal shutdown/speech loss episode. 

Foxy is semi verbal. They can’t talk coherentantly, and even making words is incredibly painful. They can’t get a job, or go to a regular school. But your incorrect use of the term is also hurting us, because whenever Foxy says oh they’re semi verbal, people are like oooohhh you’re anxious. No. Foxy is the opposite of anxious. Also if we hear oh use your words one more time when Foxy gets his AAC we are fighting someone. (Joking joking this is a joke. Please don’t smite us.)

1. Semiverbal and non verbal people often have trouble understanding others

Foxy can’t read or understand big chunks of words. He can’t understand math like…at all. Sometimes we can’t even hear people talking, or understand what they want. Some nonverbal people have no language. It is not just always a motor issue. And no, it’s not always because of an intellectual disability. Tho no hate, y’all valid and cool. 

1. AAC can be hard to use. It’s not a magic wand.

 

Our AAC has caused meltdowns. Some autistic people take a while to understand the point of AAC. It can be exhausting. Frustrating. Dysphoric. Have you seen an AAC before. You have to go through so many folders for one word! Sometimes Foxy doesn’t even have the freaking words. 

1. Saying oh autistics don’t do that, it’s a stereotype is ableist.

Hi! We are a low empathy autistic. We do not have a personality disorder. Foxy has low theory of mind.  Some of us have meltdowns. Some of us only interact with special interests. Some of us can’t take care of ourselves. Some of us have violent behaviour. Stop erasing MSN/HSN people. 

1. It is not infantilising to be accommodated, even if that specific accomodation is “demeaning” towards you.

 

Foxy is a permaregressor. Basically this means Foxy is age regressed all the time. Foxy needs to be treated like mental age otherwise bad things happen. Foxy is basically stuck as a kid in some ways. We call ourselves a vampire. It would be so weird to treat some of y’all as kids. 

It is not infantilising for us to have visual cartoony aids. It is not infantilising for carers to speak for us. 

What is infantilising is taking away Foxy’s autonomy. Assuming Foxy can’t have a say in their care. Foxy can’t know anything. It’s also infantilising to assume we are lower support needs and ignoring asks for help. 

1. Also, you aren’t low support needs because you had no choice.

 

Abuse is rough. Starving sounds unpleasant. If you are truly higher support needs, no amount of abuse or threat of death would make you be able to do stuff. Foxy has had to go back to abusers cause they can’t take care of ourselves. Youth shelters are inaccessible so we had to go back to severe violence until CPS decided to step in before we died. 

We were abused. Foxy is a foster. Foxy is not white. They are Slavic, which generally is a more conservative culture. Foxy still has violent meltdowns. They still can’t read/do math. They would starve to death/be filthy if without help. 

Hi we are Foxy! Quick dictionary before we get started!

AAC - talky app thing on iPads 

LSN/MSN/HSN - Low/Moderate/High support needs

Okay let’s go!

1. You can’t go nonverbal.

 

Being non verbal is a 24/7 state. The non verbal community has been talking about how they hate that term for ages. And no, you aren’t semiverbal either. That’s also 24/7 You’re having a verbal shutdown/speech loss episode. 

Foxy is semi verbal. They can’t talk coherentantly, and even making words is incredibly painful. They can’t get a job, or go to a regular school. But your incorrect use of the term is also hurting us, because whenever Foxy says oh they’re semi verbal, people are like oooohhh you’re anxious. No. Foxy is the opposite of anxious. Also if we hear oh use your words one more time when Foxy gets his AAC we are fighting someone. (Joking joking this is a joke. Please don’t smite us.)

1. Semiverbal and non verbal people often have trouble understanding others

Foxy can’t read or understand big chunks of words. He can’t understand math like…at all. Sometimes we can’t even hear people talking, or understand what they want. Some nonverbal people have no language. It is not just always a motor issue. And no, it’s not always because of an intellectual disability. Tho no hate, y’all valid and cool. 

1. AAC can be hard to use. It’s not a magic wand.

 

Our AAC has caused meltdowns. Some autistic people take a while to understand the point of AAC. It can be exhausting. Frustrating. Dysphoric. Have you seen an AAC before. You have to go through so many folders for one word! Sometimes Foxy doesn’t even have the freaking words. 

1. Saying oh autistics don’t do that, it’s a stereotype is ableist.

Hi! We are a low empathy autistic. We do not have a personality disorder. Foxy has low theory of mind.  Some of us have meltdowns. Some of us only interact with special interests. Some of us can’t take care of ourselves. Some of us have violent behaviour. Stop erasing MSN/HSN people. 

1. It is not infantilising to be accommodated, even if that specific accomodation is “demeaning” towards you.

 

Foxy is a permaregressor. Basically this means Foxy is age regressed all the time. Foxy needs to be treated like mental age otherwise bad things happen. Foxy is basically stuck as a kid in some ways. We call ourselves a vampire. It would be so weird to treat some of y’all as kids. 

It is not infantilising for us to have visual cartoony aids. It is not infantilising for carers to speak for us. 

What is infantilising is taking away Foxy’s autonomy. Assuming Foxy can’t have a say in their care. Foxy can’t know anything. It’s also infantilising to assume we are lower support needs and ignoring asks for help. 

1. Also, you aren’t low support needs because you had no choice.

 

Abuse is rough. Starving sounds unpleasant. If you are truly higher support needs, no amount of abuse or threat of death would make you be able to do stuff. Foxy has had to go back to abusers cause they can’t take care of ourselves. Youth shelters are inaccessible so we had to go back to severe violence until CPS decided to step in before we died. 

We were abused. Foxy is a foster. Foxy is not white. They are Slavic, which generally is a more conservative culture. Foxy still has violent meltdowns. They still can’t read/do math. They would starve to death/be filthy if without help. 

Hello everyone!

Foxy has Level 2 autism and has big struggles with communicating. It varies but sometimes can’t understand or use AAC, or can’t respond/answer questions.

This is extra likely to happen in doctor’s office which is problem. Foxy is older kid, and in a foster care group home, and can’t know what staff are gonna take them to doctor. Some adults are great, and do all the talking and communicating, and Foxy just has to tolerate the touching. But some adults suck and completely leave Foxy to do taking, which has been big disaster before. Foxy also doesn’t know how good their word skills will be that die, so really scared.

But Foxy wants to go to doctor as Foxy’s feet are wonky and hurt a ton to stand on. Does anyone have ideas or suggestions?

Hello everyone!

Foxy has Level 2 autism and has big struggles with communicating. It varies but sometimes can’t understand or use AAC, or can’t respond/answer questions.

This is extra likely to happen in doctor’s office which is problem. Foxy is older kid, and in a foster care group home, and can’t know what staff are gonna take them to doctor. Some adults are great, and do all the talking and communicating, and Foxy just has to tolerate the touching. But some adults suck and completely leave Foxy to do taking, which has been big disaster before. Foxy also doesn’t know how good their word skills will be that die, so really scared.

But Foxy wants to go to doctor as Foxy’s feet are wonky and hurt a ton to stand on. Does anyone have ideas or suggestions?