r/mitralvalveprolapse

Hi everyone,

I’m 30 years old and recently got evaluated for mitral valve prolapse with severe mitral regurgitation.

My echo findings:
- Severe MR
- Flail posterior mitral leaflet (possible chordal rupture)
- EF around 55–65%
- Heart chambers still normal size
- No pulmonary hypertension

Symptoms are mild right now. Mostly fatigue occasionally, but I can still do normal day to day activities.

What I’m struggling with is timing.

Since I’m still functioning normally and my heart function is preserved, I’m wondering:
- Is early surgery usually the better option in cases like this?
- Can someone safely monitor this for 1–2 years?
- Has anyone here had successful mitral valve repair for flail PML at a young age?
- Any recommendations for surgeons/hospitals in India especially for valve repair?

Honestly just trying to understand whether I should proactively get this fixed now or if I’m overreacting.

Would appreciate any advice or personal experiences.

First off, hello!

I’m a 44F, in otherwise decent health other than being overweight and some knee issues due to an injury and failed repair surgery 3 years ago.

I went to a new PCP (4th one over a year while I was searching for one) who actually LISTENED to me and didn’t just say “lose weight and drink more water,” and in addition to prescribing me miracle migraine meds (I haven’t had one in 6 months!) she heard something off when listening to my heart.

Sent me for echocardiogram, referred me to a cardiologist, got a TEE done, cardiologist referred me to a surgeon…annnnd here I am. Surgery is not scheduled yet, but going to be in the next 1-2 months. Surgeon recommended doing it now as my leak is pretty severe, but I have no major symptoms, as I’m young and have no major health issues - other than weight.

With all that said - I’m FREAKING OUT! I’m seriously a wreck since I got this news last week. I have two young kids, an amazing husband, and a great support system (my parents) - and I am so so scared. I’d love some positive stories, please! That I’m doing the right thing in getting it done, and it’ll all be good. And, yes, my dr will be doing OHS…which again scares me so much. Oh! And I go for a catheterization in a few weeks too - what’s that like?

Thank you so much for helping to put this worried Mom at ease…❤️

After surgery I was in complete heart block, I got a pacemaker. Later went into afib, cardioverted twice, and then cardio ablation surgery.

HI....hoping this is the right board as I don't have MVP, but I was just diagnosed this week with Mild/Moderate MR (50 y/o F).

Really just looking for others experience with this type of new diagnosis, I'm really stressed and scared. My dr did go over the results with me, and was extremely patient and kind, and of course told me not to worry, but I feel like a ticking time bomb.

The reading Dr actually rated me as Moderate MR, but my cardiologist said had he read and recorded the report, he would have classified me as Mild-Moderate. He thinks the other dr classified me higher because they have no baseline to compare anything else to, but that the rest of my numbers were good.

He said they will be monitoring me closely to establish a baseline, so I go for another ECHO in 6 months, and a follow up appt in July beforehand. He said if everything remains the same in October, then I can be considered stable, but if it progresses, then of course we have to eventually discuss valve replacement. The thought of that surgery makes me sick.

Just looking for some hope and a way to deal and accept this new diagnosis

I need a repair done to fix my Severe Mitral Valve prolapse. I have a meeting with the surgical team next week to discuss next steps (they dont have robotics as an option in the public route). Alternatively I do have private cover to do robotic. Any recommendations on this?

Hi guysss I have mild mvp and mr and tr. I’ve noticed even with propranolol my heart rate stays at the 100s and one time it even spiked to 190? Is this normal I was sitting down during the 190

I’m 35F and was recently told I have mitral valve prolapse with moderate regurgitation. My echo shows mild bileaflet prolapse, and my heart function is still normal. I mostly deal with occasional palpitations, chest discomfort, and mini anxiety/panic episodes in high stress situations (public speaking) but don’t necessarily have symptoms every day.

I had my first baby when it was mild, it became mild-moderate during pregnancy and it’s now firmly moderate 1.5 years postpartum. My husband and I were planning a second baby when we found out it progressed.

My cardiologist wasn’t overly clear - she implied pregnancy was totally fine but then said she wants to check for an arrhythmia, so she’s sending a holter monitor. We’re planning on waiting for those results and meeting with a specialized cardiologist before trying, but my head is just kind of spinning over the fears. Heart failure, complications, surgery…

I’d really love to hear from anyone who has had MVP (especially with moderate MR) and gone through pregnancy and childbirth. What was it like for you? Did your symptoms or progression get worse? Any complications or special monitoring? Vaginal delivery vs C-section? Epidural?

Honestly just looking for real experiences/reassurance that it’s not a death sentence. I want a second baby so bad, and I’m trying to get out of my own head about it. Thank you!

A couple of weeks ago my GP heard a heart murmur (last time I checked I didnt have one) at my physical so he ordered a couple of tests.
The ECHO showed that I have "Moderate to severe mitral regurgitation. Mitral regurgitation due to posterior leaflet mitral valve prolapse." And my CAC was 136. Now I need to go to a cardiologist to get checked out further.
I’m wondering what that means in terms of what happens now and later