Today I get my first round of chemo around 1130 am. Im stage 3 and will be receiving N-AVD treatment. My anxiety is thru the roof because I dont know what to expect from this treatment. I know chemo effects everybody differently but im low key terrified of how it will effect me. Did anybody else deal with anxiety paranoia and was scared before their first treatment?
r/hodgkins_lymphoma
(F22, im not diagnosed) I’ve had this lymph node above collarbone for a few weeks that’s barely visible but feels rock hard & doesn’t move much. I only noticed by checking for lymph nodes because for the past 8 months I’ve been having a bunch of weird issues no one can figure out (constant full body itching that’s so bad I have bruises/marks everywhere, fatigue, odd rashes, lost 15 lbs without trying, & for the last month bad night sweats). My labs have all been mostly normal except some inflammation markers & my skin biopsy showed no skin condition so doctors just keep passing me around with no answers
Now that most other things have been ruled out & I have this lump I honestly am wondering if it could be Hodgkins, but if I go back to the dr for this I don’t know how much I should push for them to ultrasound the lump now or if I’m overreacting. Obviously this is Reddit so to be clear I’m not looking for medical advice but I guess I’m looking for insight/input from anyone who’s gone through the process & if your experience was similar?
This is my mom’s ultrasound and if anyone had the same results please help explain. My mom is 79 years old and the doctor gave us referral for biopsy. Is there any hope or is it worth it doing the biopsy and possible surgery
The isthmus is not thickened.
No calcification is seen.
Multiple unenlarged to prominent lymph nodes with intact fatty hila are seen in the bilateral submental, submandibular, parotid and lateral cervical chain regions.
The clinically apparent mental mass corresponds sonographically to a homogeneous, hypochoic soft tissue mass that measures 5.1 x 8.5 x 3.6 cm. It surrounds most of the mandibular body. The underlying bony cortex of the mandible show speculation.
The submandibular and parotid glands are unremarkable.
The cervical strap muscles and vascular bundles are also unremarkable.
IMPRESSION:
- PROMINENTLY SIZED THYROID GLAND WITH BILATERAL THYROID MASSES AND NODULES.
TISSUE CORRELATION IS SUGGESTED FOR THE LEFT THYROID MASS.
MENTAL REGION SOFT TISSUE MASS WITH ASSOCIATED OSSEOUS PERIOSTEAL REACTION, WORRISOME FOR MALIGNANCY OR METASTATIC DISEASE WITH OSSEOUS INVOLVEMENT. TISSUE CORELATION IS SUGGESTED.
BILATERAL CERVICAL LYMPHADENOPATHY, WITH MULTIPLE PROMINENT LYMPH NODES WITH INTACT FATTY HILA.
Hi everyone! I had stage 4 CHL back in 2021 at 20 and finished treatment March 22 and I’ve been in remission since. I go to the oncologist bi annually and have had cts but not recently as more time passes and just blood work. My main tumor was under my armpit and I still get occasional pain on and off. It’s been bugging me because it’s frightening but I don’t have new lumps at all and my symptoms were distinct but still it freaks me out. Ik they say NSCHL causes fibrosis so it makes me wonder if it’s scar tissue. Has anyone experienced phantom pain or just pain where your tumor was? My dr says sometimes you’ll just have pain but ugh I hate it and I’m already very hyper aware/ocd so it sucks. I try not to work myself up because this happens like once a year but still.
Hello everyone!
I(m) Wonder how many of you who were able to beat hodgkin lymphoma , we're also able to naturally conceive a baby or had help thrue ivf.
I myself just got the Diagnose 3 days ago and im slowly starting to research all the side effects of the upcoming Chemo.
Thanks for responding!
Five month inexplicable lymphadenopathy
I (19M) noticed enlargement of the right submandibular lymph node about five months ago. After quite some time of trying to express to my GP that I was legitimately concerned and then trying to find time in my schedule, I had an ultrasound done. The radiologist’s impression was as follows: “Bilateral enlarged lymph node in the submandibular region measuring 4.2 x 2.4 x 1.3 cm on the right and 1.7 x 1.2 x 3 cm on the left. Recommend short interval follow up.” Like I said, I noticed the right side several months ago, and as far as I can tell, any change in size has been very subtle if it has occurred at all. No persistent or worsening B symptoms. Last time I had labs done (about two months ago) CMP/CBC were normal and I have a normal chest X-Ray from that visit as well. It is firm but highly displaceable/motile on both sides, non tender on the right. For reference I’m in good health and fitness, no personal/family history of autoimmune/endocrine/lymphatic disorders. I was a long time user of nicotine pouches (very recently stopped) and have persistent acne, which as I understand it these are both chronic inflammatory processes that could be causing lymphadenopathy. What are any likely causes? What should I expect on my next ultrasound? Should I request an ENT exam or biopsy too? Most importantly, could this be lymphoma?
Question about escalated BEACOPDac and PET-2 Scan
Currently at the end of second cycle of the escalated BEACOPDac regimen for Stage 2B cHL, and so far tolerated it pretty well. Just had my intermediate PET/CT scan, and will get results next tuesday when next cycle starts, and even though i cannot be certain, I’m hopeful that I will be in remission. Does anyone have experience with cutting Bleomycin/lowering dose on other chemo agents from this regimen, similar to how its done when switching from ABVD to AVD?
My dad got diagnosed with HL
Hello there.
I need some advice because I cannot sleep at night and have nobody to talk to about this.
My dad got diagnosed with Hodgkins Lymphoma a few months ago. I'm 30, live in a different continent across the world from my parents and they didn't tell me about it and still haven't. I just found out because my dad's photos were linked to my phone so I could see pictures of him at the hospital, him going through chemo and his medical reports.
The handwriting of the doctors in the reports is terrible but I can see that it says Hodgkins Lymphoma Stage 1A favourable.
I call my parents every other day and they still won't tell me anything. My mother tells me that my dad is sick because he's got some cholesterol issues etc etc but she won't tell me the truth. When I ask her when they're visiting me my mom likes joking around that only she'll visit me not my dad as if he's going to die. I'm terrified and I have nobody to talk to about it. I can't sleep and get so many nightmares. I've never lost a family member and I live across the world from everyone.
Should I be worried? Is this a good prognosis? I've googled endlessly but I'm still terrified.