r/bileductcancer

Trying to hold it together

Surveillance scan show the cancer is back. Doctor agrees, and says it might not be operable. He's even afraid to biopsy it.

I have to uproot my life and move back to the shitshow that is the US because the country I currently live in doesn't have the skilled personnel or the meds to deal with cholangiocarcinoma, and at least I have medicaid there and good doctors.

I have to go back to either living in the middle of nowhere in my brother's spare room, or living on my friend's couch.

I'm trying not to break down in front of my coworkers, my students.

I'm trying not to feel hopeless.

I hate this shit.

reddit.com
u/Nkengaroo — 8 days ago
▲ 9 r/bileductcancer+2 crossposts

Hello I am assisting a fellow stage 4 cancer patient that is looking into becoming a patient at a palliative care facility and or eventually a hospice facility.  We were wondering what would be some good questions or concerns that we should ask each facility before considering them for end of life care.  Does anyone here have any good ideas that I can write down to think about when I am interviewing them? Thank you so much in advance ❤️

reddit.com
u/caran747 — 10 days ago

72M in stage 2

My dad just got diagnosed with stage two 4 days ago. He lives in Korea and I in the UK so I’m planning to travel as soon as I get a replacement of my tenancy.

The operation date is 15th June. My mum is following the best diet for him.
But I’m worried about his age and his negative attitude which is probably the cause of the cancer.

Also I’m worried about high recurring rates.

Please share with me any tips. Just joined to find a story of someone who has beaten damn this nasty cancer.

reddit.com
u/Terrible_Role5952 — 4 days ago

Syd Towle and other Creators

I don’t know if I should even be writing this here, but I lost my mom to this disease in November and Syd continues to show up on my TikTok FYP. I know she is remaining positive, so I try hard not to comment on her posts, but I guess I’m looking for others who have lost a loved one to cholangiocarcinoma who might understand how I feel.

I don’t really like seeing her content, or other creators content, but I can’t look away. The way social media algorithms work, they just keep pushing me more and more of this content, but all it does is make me relive the end of my mom’s life. It makes me so sad, and then I read the comments and there are so many people who have no idea what they’re talking about and it makes me so mad.

I know I’m still in the anger side of grief, but I just can’t stop. My mom basically had me make all of her medical decisions for her after she was diagnosed because she was paralyzed by indecision and I’ve spent months wondering if I made the wrong decisions and if she’d still be here if I’d made different ones.

Anyway, I’m just trauma dumping and not wanting to comment anything negative or speculate on her videos, but her most recent content has just left me in tears.

reddit.com
u/Few-Emergency1068 — 2 days ago