r/Strabismus

What to expect with my 5yo strabismus

What to expect with my 5yo strabismus

My 5yo had acute onset esotropia in Feb in her right eye, it was treated with Botox under GA and everything went great and it corrected completely. Fast fwd almost 12 weeks to the day and the left eye is now turning inwards, as well as the right eye slightly. Will they try Botox again or are we gonna be looking at surgery? The opthalmologist said she doesn't need glasses.

u/Mouse_rat__ — 3 days ago

Questions about strabismus (art related)

I'm an artist and a couple years back I made an OC that has strabismus but, since I'm not very observant on people's faces, I have no idea how strabismus works in movement even though I've met people with it and I also lack a lot of understanding about how it is like to experience it.

Before I read a book where the main character had a form of strabismus I just thought it was simply an aesthetic thing with no effect on daily life, which easily gives away how little I know overall.

I've met people with strabismus, but I don't know if the eye that's in a different direction is forever in the same position or moves a bit as the person looks at different directions.

I do know some forms of it can be corrected with glasses since I had a neighbor who got hers corrected that way, so should she wear glasses? Do contacts work the same way or is it different? What are other things she could wear? Is it also fine to keep her uninterested in correcting it or is it actually really disabling?

Overall, what difficulties would you say you face because of your strabismus? I'd guess it comes in a spectrum and it isn't the same for everybody, but I'd really value being able to hear what everybody has to say.

I have to say this drawing is a year old now and is really rough since I made it for an event in a rush and it kind of looks like I simply drew the irises badly and didn't even notice. I think she would actually have esotropia, which isn't shown there either. I'd show more pictures of her but I've (thankfully) improved a lot in my art along these two years so the rest look even rougher.

Thanks to anyone replying! Also, sorry if this is a bit offtopic, I just don't think there's a better subreddit where I can ask something so specific.

u/Erigey — 4 days ago

Wish me well!

I’ve (M73) had mild strabismus for decades, with prismatic correction added to my eyeglasses about four years ago. Things have been getting worse—or at least more noticeable—following cataract surgery last year, so I’m having strabismus surgery (OD) tomorrow. The surgeon kept explaining that the chances of loss of vision are only 1:50000; I added that a chatty anaesthologist friend of mine likes to include the odds of, say, loss of life from general OR problems….

But I digress.

Anyway, I’m having surgery tomorrow. I’ll tell you how it goes.

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u/0jdd1 — 1 day ago

Surgery went well, I’m told

I had my strabismus surgery 2½ hours ago, and all went well. (Of course, the surgeon *would* say that!) I’m including a photo, as is traditional here on r/strabismus. I’ll send another once that eyelid is no longer stuck shut….

u/0jdd1 — 4 hours ago

Surgery all done!

Hey guys, posted yesterday that i was having my surgery today and here to say it went super well! It’s not too painful more just achy and the stitches feel a bit pokey. Surgeon was super happy with how it went

Also anaesthesia was so easy, last thing i remember was them asking how many drinks it usually takes to make me tipsy and that was it 🤣

If you’re nervous this is your sign not to be coming from a super anxious person :)

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u/Spare_Conclusion_861 — 2 days ago
▲ 7 r/Strabismus+2 crossposts

Lazy Eye, Exotropia, Strabismus.

Hi everyone,

I recently created a new subreddit called r/Exotropia for people dealing with alternating exotropia and related eye alignment conditions.

The goal is to create a focused space where people can:

share personal experiences ask questions about symptoms or diagnosis discuss treatments, surgery, and recovery support each other in day-to-day challenges

It’s still very new, so I’m slowly building up posts and structure, but I want it to become a helpful and supportive community over time.

If anyone has feedback or suggestions for improving it, I’d really appreciate it.

Thanks for reading. and please join my subreddit so i can get it to grow some and help more people.

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u/AngWay — 14 hours ago

Surgery Tomorrow!

Hi all, haven’t posted in this sub in a while but my surgery date has finally come around! I’m feeling quite nervous mainly about what anaesthesia is going to be like. I’m not sure why but my brain has decided that I cannot even be the slightest bit hopeful that this surgery is going to fix my eye. I have intermittent exotropia in one eye because of amblyopia and i also had esotropia surgery at 18 months old which has turned exo as i’ve grown up. Also should add that this surgery is purely cosmetic as my brain suppresses my vision in the eye

I am so convinced it’s not going to work at all, well i guess that is a good thing as i won’t be disappointed if it doesn’t, but I am still happy im giving it a shot! My surgeon has told me he’s confident that it’ll work enough that the only people who will notice is me and him which i’d still be happy with that outcome!

I’ll keep you guys updated!

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u/Spare_Conclusion_861 — 3 days ago

What should I say?

I've been cross-eyed my whole life. My mother took me to see an optometrist when I was 5 yrs old and they said that surgery wasn't possible past the age of 4. She took me in again when I was 8 and the optometrist said I had 20/20 vision so my mother thought I was perfectly normal.

Ive done alot of research and I'm pretty positive that I have alternating esotropia, since Its like I can only see out of one eye at a time but I can switch between the two. Now that in an adult, I've been to several local optometrists but they all don't understand or don't believe me when I explain what I'm experiencing.

I'm starting to doubt myself since my family and these optometrists all think I'm completely normal. Has anyone else had a similar experience to me? And if so, how did you get diagnosed? Any feedback would be appreciated.

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u/AmoebaFit4128 — 5 days ago

Just wanted to share my journey and say hi to this community!

I’ve been navigating life with strabismus and finally felt like sharing a couple of photos. It’s nice to find a place where others understand the daily experience. Hope everyone is having a good week!

u/SageRipplex — 22 hours ago

What happens with adjustable sutures? Did anyone here have it used on them?

Just wanted to know what would happen after you wake up do you just have it dangling out lmao
do you get given local anaesthesia and is it through the same way?
what would the surgeon do to adjust it and how would they know whether to adjust it or not if you just woke up?
Does she adjust it while your awake? If so wont you need to be still and not move them at all so im confused why you need local anaesthesia

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u/ryz_v — 3 days ago

Im probably going to have it in both eyes and what would it feel like? Would it hurt to open them and how long did it take you?
The pre-op nurse said i will probably stay around 2 hours after i wake up if anyone had theirs how long did you stay? (Please include the country you had the surgery in)

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u/ryz_v — 11 days ago

2 weeks post op

2 weeks post op today! I went to the gym for the first time and I wanted to cry tears of joy. I could not see mid or long range gazes at all before my surgery so I always avoided the free weights but today I did shrugs looking straight in the mirror. My eyes were aligned and was head was straight. I look people in the eye and walk looking straight ahead without any anxiety which used to be very crippling at the gym since it’s pretty massive. I worked out almost exclusively with my eyes closed before and now I can actually see what I’m doing!! Truly life changing!

u/Short-Custard-524 — 5 days ago

One week post surgery!

Hello, I had surgery for intermittent exotropia (-45) in the left eye a week and a day ago. My eye is still very red but I have no pain now thank God! My doctor gave me Maxitrol eye drops to use 4 times a day, one drop each time.

I'm wondering if there's anything I can do to make the redness go away faster?

Like maybe doing 2 drops at a time?

u/Hot_Boot2287 — 3 days ago

Drive a car

Hi everyone, my brother has strabismus, and he wants to learn how to drive a car. I was wondering if people with strabismus can drive without any problems.?

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u/Interesting-Cow-7318 — 5 days ago

***edit MY RIGHT EYEWAS THE ONE DEVIATED***

Surgeon said operating on my left eye would fix my right one. My left eye was straight. I’m 4 days post op my right eye looks exactly the same. Waited forever for this surgery 😩

u/Impossible-Put-124 — 13 days ago

Three weeks after surgery

My measurements have decreased from 35 to 1 .but I can't these improvements in the mirror.has anyone else felt this way. I had appointment yesterday n they were very happy with the results.

u/Feeling_Curve_4809 — 5 days ago

2 weeks post-op

1st photo is today, 2 weeks after surgery. 2nd photo is pre surgery.

I'm going to write about my experience so the TLDR version is, I'm 90% happy with it so far.

I had esotropia in my right eye, measuring around 45 dioptres. The surgeon said he'd work at 35 dioptres and leave 10 for my brain to compensate for. He over corrected it on purpose and said it would eventually settle straight. I was really worried until yesterday though because it was turning outward basically all the time until I moved it inwards on purpose to focus. That made me very dizzy. When it points outwards things go blurry. It has been a struggle tbh but it's finally feeling like I have control of it unconsciously and only turns outwards when I'm tired.

I woke up in quite a bit of pain unfortunately. I now believe this was because they accidentally scratched my cornea during surgery, which is one of the known risks. I didn't realise that until day 3 when my eye started opening and I started getting severe sharp stinging pains. I was sent to A&E (ER) and was given different antibiotics, painkillers and some dry eye drops that I have to take for 2 months.

It's been a bit of a struggle tbh, what with the corneal abrasion, swelling, headaches, dizziness, balance issues, light sensitivity and all the multiple drops (some are 6 times a day) but I think it's been worth it so far. Don't let my experience put you off, I just wanted to be honest because before my surgery I saw a lot of posts about people waking up in zero pain, going back to work within a week and having no issues and it was upsetting for me to not have that. I'm just one of those people where nothing is simple :)

u/ashpotato16 — 3 days ago