r/Psoriasis

Hey,

Just wanted to say thank you.

I'm UK-based, and was really worried about bringing up to my Dr that Adalimumab wasn't working as well. I was really worried because I was told they would only fund 3 attempts, so I was putting up and shutting up with the small benefit I had.

I've spoken to various people, all of whom have been incredibly kind and really gave me the confidence to advocate for myself.

I had my appointment yesterday, they are doubling my dose, have finally referred me to rheumatology, and have changed my consultant to the atypical team.

So I just want to say thank you to all of those who helped. I've only been on this thread for about a year, and it has had a really wonderful effect on my mental relationship with my disease.

Hi all! I’m trying to figure out what could possibly be triggering my psoriasis. I did a low fodmap diet and it helped but it still would flare up.

Has anyone here stopped drinking alcohol and noticed a huge improvement in their psoriasis?

What other things seem to make your psoriasis flare?

Hello PSA community - sharing some observations with my fathers condition in an effort to gain insight from this group ( whether you’re a clinician , patient or relative of patient etc )

Father is 70 years old and has had psoriasis for several years . About a year ago he was taking taltz injections which seemed to have his skin condition under control . That drug was reclassified and the rheum switched my dad to methotrexate once per wk.

A few months later I visited my father and he had excruciating joint pain - could not fit his foot into his shoe . Since then he has had similar pains in various parts of his lower body ( knee , ankle etc )—> PSA

Aside from the mobility issues , there has also been a noticeable change in his cognitive state . Last year he could sing / play 40 songs on the guitar . No sheet music etc . Now he can’t get through a single verse. Example 2 of dramatic changes - He worked as a computer systems director for 30 years and now he fumbles to download an email attachment .

My mother is now involved in taking him to his appointments but she hasn’t had a ton of luck disclosing her observations in detail ( doctors rush appts , she’s an introvert and also doesn’t want to hurt my dads feelings … I’m working thru this with her )

Curious if others have encountered any observed cognitive issues from this medication

We’ve successfully convinced him to abstain from alcohol ( which has harmful effects on liver when mixed with the medication ) . We do see a slight improvement with alcohol removed .

He’s had an mri and recently did a neuro psych evaluation which we are waiting on -

TIA for your Help

Quite honestly I am hoping it’s not vascular dementia and hoping he will return to his normal self if I can get him off this medication

I'm prescribed cosentyx but the dosage is really low... I'm 16 and i weigh 51.6..i gained weigh so as to come in the adult category....but the doctor prescribed me.. 150mg injection every 15 days....

Shouldn't it be 0,1,2,3,4 and 300 mg dosage each?

The other doctor i went to said the above shit...but she's saying such a low dose...idk what to do...?

I can't change my doctor.

Will this dose be a little too less for me?

And will the injection not work properly???

Helppp

I want to know sites or people from where i could get cheap biologics or financial aid to buy taltz....

I'll prob get approved by my insurance but i need a plan B just in case.

Which is better?? I need an answer asap...as I'm gonna order the meds..

I wonder how others feel about this...

I have had psoriasis for around 15 years now, and I've learned to live with it, refining a routine over time that allows me to be confident that I'm in control.

However, I wanted to raise the point around support and advice networks - specifically on barbers and hairdressers vs doctors and medical professionals. Both have helped me on my journey, but in different ways and at different times - throwing my experience out here.

Personally, I felt more confident talking to my barber about my condition as it started to appear, and I looked to them for advice, their opinions on what it could have been (prior to diagnosis) and also how to manage it (after diagnosis). Now, I get it that not everyone will have this, as it depends how close you are to your barber or hairdresser - for me, I've built up a relationship with my barber where I now call him a close friend. Nonetheless, I value his opinion and advice from a professional standpoint too, possibly because he spends so much time around scalps and see's real-world lived experience from different perspectives with scalp conditions.

This doesn't mean that I don't also value the opinions and knowledge of medical professionals, as it took them to give me a formal diagnosis and get hold of prescription medication, but the point is that my barber was my 'first port of call'.

While my doctor got me onto Dovobet, which is a steroid gel I use for nasty flare ups, my barber actually got me onto the rest and probably most important part of my routine...

They helped me realise that both my diet and stress levels could be impacting flare ups - turns out they were! They helped me think of a different nutritional routine, and what I could do to reduce stress.

They also got me onto coal-tar shampoo (I ended up using one called Polytar, although there are a few about - this one worked well for me), which is an important albeit relatively passive part of my routine.

So yeah, both doctors and barbers helped me along the way, but I feel it's weighted in favour of my barber more so than my doctor.

Wonder what other folks' experience and thoughts are on this subject.

Hi all, I was wondering if anyone has experience starting biologics while recovering from a surgery. Currently I have 3 steel bars inside my chest (Nuss procedure) and I wanted to ask my derm about biologics but was concerned whether starting them could affect my medical implants.

I read on here several months ago to try hydrocolloid bandages so I ordered some online. I am not sure why but i never tried it. I saw the box sitting in my cabinet this weekend and thought oh I should try that. just two night of covering my elbows and legs with these bandages and the progress is better than anything i have tried!

Has anybody else tried Acitretin for Psoriasis.

I cannot take most of the regular meds or biologics.