r/MSPI

▲ 11 r/MSPI

We’ve all been doing this detective work trying to connect things, and it shouldn’t have to be this hard

Our daughter had severe reflux and every feed felt like a battle. We were asked to go on an elimination diet and track everything. I was logging what I ate, her symptoms, feeds, sleep, all of it every single day.

Weeks of data sitting in different apps and notes...But when we actually needed answers, there was nothing.

No app could tell me if her symptoms were connected to something I ate. We were jumping between logs, spreadsheets, notes, trying to make sense of it ourselves and honestly just getting more overwhelmed.

All that data and still no clarity...

My husband and I are both software engineers and this just didn’t sit right with us. I actually quit my job and we spent the last year building an app we wish we had back then... because this felt like a solvable problem.

A baby tracker app that lets you track all usual baby logs including synptoms and mom’s diet so that you can ask any question from the logged data, Like has her reflux improved since cutting dairy or soy... how your diet is actually affecting your baby’s symptoms over time. You can literally just ask anything based on what you’ve logged and it gives you answers.

We also made logging really simple because we know how exhausting this phase is. You can just say things out and it logs it or scan nanny/day care notes.

If you’ve already been tracking somewhere else and have weeks or even months of your baby’s data, you can import both your diet logs and your baby’s tracking data in seconds and just start asking questions immediately.

It’s fully built now and available on both iOS and Android... we’re just taking a small step before launching and hoping to get real feedback from parents going through this.

If this sounds like something that would have helped you and you’d like to try it, feel free to DM me. We’ll be giving the first 30 parents 2 months of free access, and we’d really appreciate your honest feedback. I hope this app will really help you.

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u/Acrobatic-Topic599 — 19 hours ago
▲ 3 r/MSPI+1 crossposts

MSPI baby and recurrent mastitis - need good stories of switching to formula

My baby is 11 weeks old and has been struggling with tummy issues since 4 weeks. We cannot seem to figure out his allergens even being on a strict diet of turkey, potatoes, zucchini, and rice. Additionally, I’ve had mastitis two times and am worried I’m getting it a third time now. I can see how switching to formula could be wonderful and I could finally EAT, but I’m so worried about the process of transitioning and the potential loss of closeness as well as the loss of the ability to soothe him so quickly and put him to sleep so easily. Any positive experiences or advice would be helpful 💛

Oh and also we have an appointment with a baby GI in a week

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u/cws2u — 12 hours ago
▲ 1 r/MSPI

How have you gone about solids with multiple intolerances?

Baby is 7.5 months old and was just recently switched over to kendamil goat formula 1.5 months ago. Never figured out all her intolerances while nursing and the elimination made my supply decrease causing her to drop percentiles.

Baby has done great on the formula, thriving, actually. I’m struggling with solids.

She *hates* purées. So I’m trying baby led weaning. Gags at eggs, refuses oatmeal, applesauce is a no go. She adores chicken and ground turkey. She tolerates broccoli, strawberries, and roasted bell pepper. I’m trying to get some high fat foods in for brain development and am stumped.

I gave her banana and corn and boom, blood and green diarrhea is back. She was fussy leading up to her diaper. Food latex allergy runs in the family and avocado was a trigger while breastfeeding. I could never figure out if corn was. Apples also fall into this category and I’ve noticed her diapers are a bit more loose after apples slices.

I’m at a loss on what to feed her that is easy to make as I am already having to fix different meals for my toddler and work from home husband.

Thanks in advance!

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u/tired-adhd-gal — 14 hours ago
▲ 1 r/MSPI

lactose??

My baby was diagnosed with cmpi. I am a bar manager and in charge of ordering various craft beers for our bar. A lot of these beers are brewed with lactose as the sugar. Would that be something to avoid as well? I would assume yes but i’m not sure!

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u/Easy-Leek-7405 — 17 hours ago
▲ 2 r/MSPI

Fishy smelling poop

My daughter has been on Puramino since February. Today she had a loose stool with a strong fishy smell. This happened once a few weeks ago and went away. Has anyone else experienced a fishy smell? She’s eating and acting normally.

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u/Important-Economy592 — 14 hours ago
▲ 3 r/MSPI+2 crossposts

Infant weaning from ng tube

Is there anyone who can tell me a positive story about their infant who weaned from the ng tube and ate orally?

My now four month old got a feeding tube and has had it for a month. She got it for FTT and did not take sufficient volume. She has reflux, mild dyshagia and a CMPA. Prior to the tube she was taking 15-18 oz a day. Now she is not even taking three and it is sending me spiraling.

It is easier to spiral to the negative and I need positive. Please help!

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▲ 2 r/MSPI+1 crossposts

Help with naps

My LO is almost 4 months old (15.5 weeks) and is starting daycare in about two weeks. She has CMPA and bad reflux (on meds) so has always fallen asleep while being held since she has to be held up so much.

She will not nap for more than 20-30 minutes unless she is held, and I’m getting so anxious about her starting daycare because I know that won’t be something they are able to do all day. We’re trying to start some light sleep training but it’s really not working for naps and I’m so upset thinking about her crying and not sleeping at daycare.

We pay attention to cues and wake windows, but her naps are so short/unpredictable that we aren’t on any kind of schedule.

Any advice or recommendations? Or suggestions for the daycare transition? We didn’t go through any of this with our first baby so it’s all new to us and my heart is hurting :(

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u/TallNefariousness752 — 21 hours ago
▲ 1 r/MSPI

Reaction or coincidence?

My son was diagnosed as having a cows milk protein sensitivity at about a month old. I’ve been dairy free ever since. He’s now 10 almost 11 months old and still breastfeeds alongside solids. About a month ago I accidentally ate cheese. I waited for a reaction but nothing happened. A few weeks ago I experimented with putting a little dairy cold foam on my coffee. I waited and nothing happened again until 4 days later. On day 4 he had diarrhea for a day. Could it have been the milk or just a badly timed bout of diarrhea?

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u/Skeleton_Flower0525 — 13 hours ago
▲ 2 r/MSPI

Probiotics - BioGaia or Evivo

My daughter has not officially been diagnosed with CMPA if MSPI but she has some of the symptoms. She’s very grunty and grunts and strains during feeding and pooping etc. She’s 8 weeks old. She also absolutely has reflux but as of last visit was gaining weight so pediatrician won’t give reflux meds. Pediatrician gave us a sample of culturelle probiotics and I’d like to buy some good ones to see if they help. With my last kid I had a lactation consultants recommend Evivo but they are expensive and I never bought them. I see a lot of people here say they use BioGaia. Anyone have personal experience with both or either? I can afford $100 for Evivo but I’d love to hear personal experience with it before spending the money.

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u/No_Judgment_7812 — 3 days ago
▲ 0 r/MSPI

Is this blood?? Mucus for 5 days, 7 week old EBF baby

Im a FTM and my baby is 7 weeks old and exclusively breastfed. For the past 5 days I’ve been noticing mucus in her diapers which already had me worried, but today I saw this orangish yellow streak/parts in her poop and now I don’t know what to think. Is that blood?? It doesn’t look red to me but I honestly have no idea what I’m looking at anymore.

I started eliminating dairy from my diet 3 days ago based on my pediatrician recommendation. She also has a little red irritated spot on her bum so we’ve been using cholestyramine cream with Bordeaux’s Butt Paste for that(hence the brown background in the diaper).

For anyone who’s been through CMPA or CMPI — does this look familiar? Did you cut soy at the same time as dairy or wait to see if dairy alone helped? And how long did it take before you started seeing improvement in the diapers?

Attaching a photo. Any input would mean so much right now

u/ZenSeeker14 — 2 days ago
▲ 2 r/MSPI

Diaper/poop testing

This is probably a very dumb question, but do I just put the diaper in a ziploc bag overnight, does it need to go in the fridge? We’re going to the pediatrician tomorrow.

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u/UsedAd7162 — 1 day ago
▲ 1 r/MSPI

Another poop pic - CMPA?

My 12 week old daughter has super mucousy poops for over 2 weeks now. She’s always had a bit of mucous in her poop but it’s so much worse now. Does this look like CMPA to you based on your experience? I haven’t seen any blood and our doctor won’t test the poop for blood, but I’m going to trial and dairy/soy free diet for a month to see if the mucous goes away.

u/kara_djm — 1 day ago
▲ 6 r/MSPI

MSPI baby recipe ideas

Backstory: I went milk, soy, eggs, nuts, wheat and corn free for my baby because of a pretty severe amount of blood in poop. I wouldn’t recommend such strict diet but I thought I will share recipes I used that are void of the most common allergens and are tasty and diverse. I also went pretty low on rice, fish and sesame based on my food diary but have recipes that include those ingredients. It was hard and took a lot of planning so hopefully this list will help somebody who is just starting this journey. I also tried to buy grass fed everything except for pork, sometimes chicken. Even if you don’t eliminate everything, it might be easier for your baby to recover quicker with these meals.

Tips: 

  • Make your own broth to avoid headache of choosing one in the grocery store (I would freeze vegetable scraps like garlic inner skins, onion inner yellow skins, fennel, dill, parsley, use a whole celery and sometimes a carrot, also chicken bones and skins from chicken thighs and any other bones, throw it all in the pot and boil for like 3 hours with a little bit of apple cider vinegar for bones to break down). I stored it in souper cubes in the freezer, pricey but very handy containers 
  • Make sure to buy soy free pepper paste - I used Thai Kitchen brand, it’s not too spicy and even my toddler eats it in dishes
  • Make sure your mustard doesnt have natural flavor or citric acid (they do exist)
  • Coconut aminos is a decent substitute for soy sauce but it’s much sweeter 
  • Make sure sausage you buy doesn’t have natural flavors (although eventually my girl was able to tolerate it)
  • Always have spinach and kale on hand for easily tolerated calcium. If you buy milk, like oat or almond, try to buy calcium enriched but I still took a calcium supplement (soy free)
  • Quinoa, millet and buckwheat were on a heavy rotation for me. I suspected rice allergy so excluded rice for a while, and those grains are a great substitute and also a good breakfast. 
  • Potatoes is a decent side dish, my husband made it with olive oil and lemon juice and dill, actually quite tasty. But otherwise asparagus, Swiss chard can be a good side dish.

 

Recipes (some will require substitution or skipping of some ingredients):

u/WearyMoon — 18 hours ago
▲ 1 r/MSPI

CMPA? Poop pictures, please help!

6 week old has had numerous mucus poops from 3 weeks on. This week I’ve been giving one formula bottle a day and all of her poops are dark green and sometimes mucusy. I thought it could be from the iron but would one bottle be enough to do it? I also thought it could be foremilk imbalance but even after block feeding nothing has changed.

Other symptoms:

-has sounded congested/raspy voice since two weeks old

-severe gas pain. Often cries in sleep when farting/pooping and it wakes her up.

-fussy when awake. Always seeking to nurse for comfort which I believe is due to gas/uncomfy feelings.

-poops 6-8 times during the day, once or twice overnight. Purple cries while pooping

-started spitting up more this week. Often makes a face like she tasted something sour and gags.

u/AdEmotional9654 — 18 hours ago
▲ 1 r/MSPI

9 month old with CMPA — successful switch to dairy formula?

My daughter has been on Similac Alimentum ready-to-feed and has done really well on it. Now that she’s 9 months, our pediatrician feels comfortable trialing a switch to a dairy-based formula.

For those of you who had babies with cow’s milk protein allergy — what did you transition to that worked well? Did you go straight to a standard formula or ease in with something more “gentle”?

I know every baby is different, but I’d love to hear what worked (or didn’t!) for others as we start this transition 🤍

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u/leeleegirl1989 — 20 hours ago
▲ 7 r/MSPI

Debating switching from EBF to formula

I guess I’m looking for some stories of moms who have switched from EBF to formula due to protein intolerances in your baby.

My baby improved greatly when I cut out dairy and soy but I noticed some flare ups were still happening. Whittled it down and I’m thinking it’s eggs. But honestly, I’m tired of trying to figure this out.. it’s taking up a lot of mental energy and I’m becoming obsessive trying to figure out what else is bothering him. I’ve gone so far as to cut all sources of soy including soy lecithin and eating has become so anxiety inducing.

I love breastfeeding, I truly do. But if formula will be better for him and take the mental load off my shoulders then maybe it’s best? Would love to hear from other moms!

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u/amandaaab90 — 4 days ago
▲ 1 r/MSPI

Need help :(

For the last 3ish weeks, I’ve been dairy free since we’ve suspected CMPI. However, I recently started my birth control and our baby has been MISERABLE. Our sweet girl is 8 weeks and overall a very happy baby. She sleeps great, isn’t terribly fussy, and eats well. Since I’ve started my pill two days ago though, she has been so hard to set down. When she is awake, she’ll be okay for a few minutes and then scream like she’s in pain. She’ll even refuse the nipple to soothe unless she’s truly hungry. She hasn’t had many bowel movements, but when she does, you can tell it’s hard for her to get it out, and they have mucus in them. I’m just not sure what to do. I only just started this pill and I’m worried about switching to something else like the IUD

( my Dr recommended it because she said it shouldn’t impact my supply) I’ve just heard too many bad stories about it.

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u/Significant_Bag_4822 — 2 days ago
▲ 2 r/MSPI

Milk and soy allergy 14 month old

Hello all! I am wondering if what I have experienced is something you all have experienced.

Basically when we introduced formula to my baby (we started with Bobby’s) she would have green poop and would reject it constantly and wouldn’t take it. We tried other formulas but for some reason my baby settled for enfimil gentle ease. When her one month birthday came up I tried to slowly get her off formula and tried whole milk. She became SO constipated, wouldn’t poop for 3 days and would scream cry to get it out.

Our pediatrician recommended ripple kids. Now I am new to soy allergies but since we have been trying to get her on that to try, even trying to mix some with formula to get her to like the taste, my baby has had nothing but green diarrhea. I am going to reach out to her pediatrician but I am concerned this could be another allergy, or maybe even we didn’t have the milk allergy to begin with.

I know milk isn’t nutricianally required but it does worry me since my daughter is still even bad with solids.

Do you all have any other alternatives you recommend and are my daughter’s symptoms similar to any of you all? I am going to request allergy testing to see. I really want to get my daughter off formula too, but I know it’s the only thing she will take.

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u/hannah12343 — 2 days ago
▲ 1 r/MSPI

Milk intolerance after eliminating

I eliminated dairy and soy from my diet for 3 months to breastfeed my infant. I was never a huge fan of straight cows milk, I would occasionally put whole milk in my coffee. I did however eat yogurt, cheese, and other dairy products. I’m trying to reintroduce dairy slowly but I find it’s upsetting MY stomach way too much, my baby seems to be doing okay. Has this happened to anyone else? Is it temporary as my own body adjust to milk again?

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u/Natural_Marsupial859 — 2 days ago
▲ 1 r/MSPI

Aptamil pepti 2

Planning to offer my 10 month old Aptamil Pepti 2 from tomorrow. He has intolerance and has delayed vomiting as his symptom. He has been ebf until now and does not take a bottle. I have gone back to work so I will try to offer and see if he accepts? He was fine on Nutramigen but he hated the taste so trailing Pepti for a better taste?

Any advice on the best way to make Aptamil Pepti 2 so it does not taste awful? Offering warm/cool? With/without vanilla?

He has not gained any weight since the mast 3 months despite eating solids. Should I be worried?

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u/blueyboo11 — 4 days ago