My dad suffered a brain aneurysm rapture last night after days with headache.Since then we were transported to a different hospital,he can communicate fine he makes jokes even.They monitor him and he is sleeping constantly.The surgeon told me we have to wait until tomorrow to know how to approach this(what kind of surgery)but its already been 24 hours since he had it,shouldn’t the surgeon act immediately?Please help me.
I’m a 47y/o female who had a ruptured brain aneurysm with subarachnoid hemorrhage late Dec. Aneurysm was coiled and mris look good. Cognitively and physically I’m doing remarkably well. Back at work (from home) since March and generally living life like I did before. EXCEPT, I feel awful. Anxiety, jitters, jumpy, and I feel like I’m just going through the motions, not really “in” life. My dr. says my nervous system is dysregulated and it will take time to heal. I wake up gasping for air and feel anxiety all day. Some days I can shower and put on a brave face but it’s always a performance. I tried an SSRI for 16 days and the activation was intense/awful so my dr took me off it. I know I should be so grateful to be alive but this kind of life is torture. I never feel relaxed or at peace. I don’t know why I’m even posting this, but I’m kind of at my wits end and don’t know what to do/think. Wondering if anyone else can relate and I would appreciate any advice.
I recently found out by chance that I have a 1.9 mm saccular aneurysm. My doctor said it’s not an emergency, but he recommended a flow diverter stent procedure. I’m 29 years old and honestly very scared of the possible risks and complications.
Do you think waiting around 3 months would be risky? I really want to have a nice summer before going through the procedure. Since I discovered this incidentally, it still feels unreal to me.
UK based 34F and I’ve just been diagnosed with a 7-8mm left ICA brain aneurysm. I’d had symptoms, namely differing pressures in my eyes, worsening vision in the left, pain in the left and focal migraines. Frustratingly I had been checked for glaucoma and not one person asked about my family history relating to aneurysms (my dad has one) to account for the different pressures once glaucoma was ruled out; I’m talking 3 or 4 different teams. I had an MRI which picked the aneurysm up because of increased light sensitivity, said to be linked to migraines but the neurology team forgot to refer me for the MRI so this went missed for a year. Not got much faith in doctors after this and a few other missed diagnoses over the years which I’ve only got because I’ve done the research and pushed.
I have an appointment with the neurosurgeon in just under a month’s time but asked to be out on the cancellation list to try and bring forward, as this is obviously making me anxious.
I guess I just wanted some comfort. I’m AuDHD and have no idea if it’s normal to feel stressed and upset about or if I’m being over sensitive due to health anxiety from watching my mum nearly die a few years ago (not aneurysm related).
Does anyone have any experience with treatment, or just getting through the uncertainty? I would ask for commenters with larger aneurysms like mine, given the difference in experience and obvious increased feeling of urgency. If you had treatment, how did it go, were there any side effects or lasting health complications?
If you could offer any words of wisdom or comfort based on your own experiences I would really appreciate it. They’ve told me risk of rupture is about 0.9% over 5 years but that I’m being treated as a high priority which seems contradictory.
My mother suffered a ruptured aneurysm last week. Because of the location, they were unable to clip it. She went into surgery, and just as we were about to see her afterward, she was rushed back into emergency surgery to stop another bleed. They had to remove part of her skull to relieve the pressure, and at that point we were told to say our goodbyes.
Tomorrow will be one week post-op, and thankfully she definitely knows who we are. She can move her left side, nod yes and no appropriately, and last night she even wrote us messages.
I know recovery from this can be very unpredictable, but I was hoping for any insight on what we should expect moving forward and what we can do to help her recovery as much as possible.
Has anyone survived vaspospasms with decrease consciousness? My mother is 6 days out from a ruptured aneurysm and hemorrhage stroke. She was doing beautifully until this evening! I am terrified
Hi everyone,
I’ve been thinking a lot about this lately and wanted to get some advice.
My mom passed away from an aneurysm (cerebellum aneurysm) when she was 39, and it’s been on my mind more and more as I get older. I’m wondering if this is something that could be hereditary and if I might be at risk too.
Part of me wants to get checked just for peace of mind, but another part of me is worried about going down a rabbit hole and stressing over something that might never happen.
Has anyone here been in a similar situation?
Did you decide to get screened, or did you just move on without focusing too much on it?
I’d really appreciate hearing your experiences or any advice.
Thanks 🙏
Hi all
I have two aneurysms on my left carotid (ICA) that are close to a branch that may be the posterior communicating artery ( or choroidal unsure). One is irregular wide neck 6 mm and the other is next to it 2 mm noodle (?) like one. I have 50% narrowing of the artery right before the two aneurysms.
I have two opinions. One from a major teaching hospital and both agree bridge stent is the way to go.
Due to my ‘unusual’ anatomy of very tortuous arteries, narrowing and artery branch it is a complex case.
Have any of you made a decision with a complex case? Similar?
Trusted neurosurgeon says risk of rupture next 25 years is 25% and the risk of surgery is 10% complication. Of that 10% there is a 3% risk of life changing complications (death major stroke)
Any lived experience to share will be very appreciated.
I am 51 and my kids are 22 and 20.
I want to have courage to do the procedure but I am so scared for my family.
Thank you so reading
💗
hi! can someone tell me if I really am having a thunderclap headache??
just yesterday I had a really bad headache that lasted about a minute or two and it hurt so bad that I screamed pretty bad and for some reason I started feeling a bit sick a few hours later (im a bit confused about this part cause research says I should go to the doctors but they never specifically said if it was an onset fever or a fever that came later on) and I had a few vision changes too, I'm a bit more sensitive to light than usual and my vision blurred just a bit more than usual (I don't have 20/20 vision but it was something I noticed)
I am also a minor and I'm scared to tell my mother about it cause it also feels like I am just overreacting over a sudden headache.
After my flow diverter stent surgery for my 22mm unruptured aneurysm, I was referred to follow up with a neurologist in the neuroscience dept of the hospital. I never saw him in the hospital. Because I live in Hawaii and not on Oahu where the medical center is, both of my visits with him have been via telehealth. I have not enjoyed him either time. I feel he is dismissive, lacking empathy, generally just unlikable, and now rude.
I saw him via telehealth today and told him I think I am struggling with my memory, forgetting things constantly and within seconds. He said “okay… how would you like me to address that?” I was shocked! Perhaps I gravely misunderstand his role in my care, but it seems all he is interested in discussing is my steroid taper. I have had a fever for 8 days. All of my labs are clear and do not show signs of infection. I asked him what he thought about it and he said “I have no idea why you have a fever. It’s not related to what I’m seeing you for. You’re allowed to have other things.” Again, I was shocked. How would I know if a fever is related to any of the 9 drugs I’m on, or having a foreign body in my brain, or being on steroids? Is there no better way he could think to respond?
On top of his baffling communication, he has repeatedly answered questions by saying “well I don’t know because I don’t really see people with giant aneurysms.” Then why the hell am I on your service! How do I go about requesting to be transferred to a different provider? This is the only Neuro center on Oahu, and I really do like my neurosurgeon and his fellow.
Did anyone else experience this post procedure? I am 33, and have spent the last 8 years as an executive assistant for an international organization, managing multiple projects and events at once. To forget things constantly is not my norm.
Edited to add: I am not stupid, so I understand that if my knee hurts it’s probably not because of my aneurysm. However, I’m just so frustrated that this doctor can’t seem to access any empathy for the huge anxiety that comes after having a medical event like this. Worrying about every headache, and neck pain, etc. having a fever for over a week with no explanation is not normal, and I don’t think it was an unreasonable question. 😔
I'll have my first catheter angiography with contrast in three weeks for further diagnosis of my brain aneurysm.
I have EDS so I'm ultra high risk for complications after Covid infections which is why I still have to be very careful including masking indoors without exception. I have read that my head will be fixated during the procedure and that the x-ray machine is close to my head too so I'm wondering if there is enough space to wear my regular headstrap kn100 or earloop kn95. I also have a readimask (you can stick that directly to your face) but would prefer one of the masks I always wear.
Should this be no problem and does anyone have experience doing this procedure masked? Maybe even from back when masks were mandatory? I'm very anxious of the procedure as is and knowing what safety measures will be possible would take away a big part of my nervousness.
21 F unruptured Fusiform Aneurysm + Thrombus on MRA 8 x 11.5 mm
hi! i am mostly making this post to ask for people's experiences with stents and such.
i have a rare type of aneurysm and have actually made a post in this thread two years back when it was originally found out about but last week i found out my aneurysm got bigger! and half of it thrombosed.
i am honestly scared down to my bones but the doctors told me since they only see a case like mine once a year they are stumped on what to do. i am going into surgery tomorrow for them to place a stent through my entire MRA (hopefully, they have to confirm with another angiogram if this is possible) but.. most of the time stents do not go through the entire artery but because mine is so 'unique' that is one out of two solutions (other is opening my skull). what is everyone's experiences with stents and were you able to go back to living a normal life?
what i am most terrified about is not being able to return back to uni or completing my degree when i am so close to being done especially since my doctors told me all the risks of a stent, my chances are tripled since itll go through my entire artery.
My younger brother drove himself to the ER on January 13th with ‘the worst headache of his life’ and he was admitted and had CT scans done there. He waited there for ~23 hours before being transported to another hospital that was better equipped to deal with the situation and that’s where we more or less lost contact with him. They told him he would be going home in the morning, which is the last we heard from him. Truly we don’t fully understand what happened at the second hospital. They called us in the morning and told family to come in right away. He was already gone.
As far as we know there was a rupture which caused devastating brain injury. We’ve been trying to piece this all altogether since the event. We are shocked, heartbroken. And just very sad.
I finally have his medicals from hospital #1. This is what it says ‘Along the proximal segment of the basilar artery, there is a large aneurysm arising from the dorsal vessel wall. The aneurysm measures 17 x 17 x 19 mm’ this is all we really have for facts right now.
I’m just posting this to raise awareness and suggest others seek treatment immediately when experiencing symptoms like this. Thanks
I am almost at two weeks post-op (tomorrow). I had my staples out yesterday. My aneurysm was found on an mri that was scheduled in conjunction with getting worked up for migraines. We haven't really controlled my migraines yet, but it was advised to have the aneurysm clipped bc of the location and size. My doctors and stuff I found online made the recovery seem like it wasn't going to be that bad, but I have a pretty bad headache like all the time now
My neurosurgeon told me that they would give me oxycodone, which they did, but they only gave me 20 and they are gone and they are not trying to give me more. I have my migraine meds (been taking a triptan almost everyday, which they don't rally like), I have some muscle relaxants that aren't very sedating. THey want me to take tylenol, I can start with nsaids today she said so I am going to add some aleve, I remember years ago my doctor told me that aleve and tylenol have a synergistic effect, so I'm hoping that helps. She told me to take benadryl to sleep, which I think is kind of ill-advised to do in general.
Wondering what other people were given or did for post-operative pain or to sleep? My husband can't believe that they won't renew the oxys, I just want to know what worked for people so I can ask the neurosurgeon or my pcp. I really did not expect this level of headache pain from everything I read. I mean, when I got my wisdom teeth out in the 90s they gave me tylenol 3. It does seem a little crazy that they cut a chunk of your skull out, cut through a muscle, and then expect you to just take tylenol! I really don't know what to do.
Any advice or suggestions welcome, thank you
Someone in my area just sadly passed away from a brain aneurysm, he was only 21 years old. I have health anxiety so seeing someone so young die due to one has made me concerned that I could have one waiting to rupture. Idk how common these are.
The scary thing is you’ll never know you have one until it ruptures or fortunately doctors detect one through a different means of using a ct scan.
Idk how common they are but they scare me a bit.
I have a 4 mm left ica carotid cave aneurysm with irregular morphology and wide neck that is stable . I am a daily user of Marijuana and wanted to know if it was safe to continue to use.
i got news my partner's aneurysm was ruptured, and i am very worried for them.
https://www.reddit.com/r/BrainAneurysm/comments/1h45qsd/diagnosed_with_brain_aneurysm/ this was their post about it for details about the aneurysm when it was unruptured a year ago. and i wanted to ask, is there a chance they will survive this?
and what surgery/treatment typically happens for this type when ruptured?
i am not in the same country as them and currently have no way to contact their relatives or anyone outside of them so i do not know their current condition but i want to know if there's a chance they will be okay or not.
i am currently just hoping they are still breathing and being worked on until i can get in contact with either them or their family.
I've had my anni for unknown years (found incidentally) and finally had it treated in May 2024. As a bit of light relief, I got a witty tshirt.
I ended up with poor memory and speech aphasia from my treatment, which gets worse dependant on the level of stress, to the extent of it can render me speechless. 😭
I am sick to death of people thinking and saying that since they can't see my disability, its not real. I need some witty comebacks, please.
Thank you for listening to my rant.
Just had the latest results from my annual MRA for my paraopthalmic ICA aneurysm.
It has grown 1-1.5 mm per year for the last three years and now 5.5 mm.
It was originally an incidental finding and the approach was to monitor.
It is not a large aneurysm and whilst finger like in morphology, it is not in a dangerous location other than impacting vision.
The issue is that the consulting neurosurgeon says it should be clipped/FD but the interventional radiologist says to monitor for another year.
It is not in a location that can be dealt with surgically so the radiologist would likely be the treatment option.
Who do I rely on for a decision ?
Edit - some context. I had a minor stroke years ago (on baby aspirin), lost a kidney to cancer 7 years ago and had high burden PVC ablation twice, latest in Oct last year. On statin and also BP meds. Currently CKD Stage 4.
