Just wanted to share that lithium orotate 5mg once at wake once at night is helping my flight or right response. I'm FAR FAR FAR from cured, but it seems like one of the only supplements that is helping me calm my nervous system down. I've gotten better sleep (even with diagnosed sleep apnea). Stay safe everyone. Just wanted to share in case someone is looking for something else to try.
okay probably not what y'all want to hear... but I am FAR from recovered. I have a very very long unpredictable road ahead of me, but I wanted to share this small victory. I managed to clean my room without any sort of stimulant of the sort. not taking any pain meds either (I prefer not to but besides the point). my muscles do ache, but I think it's more so due to pots or deconditioning over months of inactivity. I became a lot more clicky after covid unfortunately, it's still there but I'm trying my best to be a functional human being. I also went to an event today (wearing a mask) and made over $125 selling some of my old stuff that I no longer need. I feel okayish. Obviously I'm a little scared but I think today was a win. Just wanted to share some of the small victories, anything is possible. Don't give up, even if it seems impossible.
sorry for low IQ post I'm pretty brainfogged atm but I need the best cohesive test for this shit, maybe the 3. I suspect I've had bartonella for 10+ years due to bad neuro symptoms after being in a flea infested home. I have had a tick on me years ago. so long-term infection. I'm not made of money but I need to know. what test has helped you the most? my parent will only help pay for one so I need for it to count. thanks everyone
has anyone recovered from anhedonia or dpdr? I recovered decently in 2024 and I was very happy, but I've been reinfected in 2025 and I've developed a million other health issues since. I would love to pass my time with art or talking but I feel little to no emotions besides despair and I often feel poisoned in my brain. has anyone managed to get out of the head pressure lack of emotions or creativity stage? I miss daydreaming. that kept me sane.
developed hypoglycemia last year and it tanks my energy levels constantly. so does everything....i have so many other issues but I am having a severe reactive crash after eating just a bowl of cereal.... no matter what I eat and if I do or don't eat this happens. my endocrinologist doesn't even care and I have so many other issues and I ruled out pcos twice because I have normal periods but just gave me spirolactone and I'm terrified to take it because i already have dysautonomic/pots issues. sorry for random vent but i want to know if im not alone in reactive hypoglycemia post covid and i have no idea what's even wrong with me. been a year now no proper answers as to why this is happening to me. oh, and my sleep is shit.
this keeps happening.... like all the time. whenever I "overdo" it....aka just existing a normal day but obviously my body is mad at me. also super dilated pupils. is this something to worry about? again... not something I dealt with precovid.
creepy. red, blue, and purple. sometimes extremely veiny. nail beds are also red and purplish.
it gives me burning in my cheeks, intense head and neck tension and pain, and joint pain. not sure if mcas because antihistamines don't really help when I take them but I do have allergies. my rheumatology blood work came back normal. I have yet to see a derm but I haven't gotten a referral yet. I honestly have no idea what it is and it's debilitating. it honestly feels like lupus sometimes. I have yet to be diagnosed with mcas or pots but doctor suspects both. it's hard to find people that take you seriously. this is an every day occurrence unfortunately. no other rashes happen besides minor itching but not red like this. it looks redder in person. thanks!
it gives me burning in my cheeks, intense head and neck tension and pain, and joint pain. not sure if mcas because antihistamines don't really help when I take them but I do have allergies. my rheumatology blood work came back normal. I have yet to see a derm but I haven't gotten a referral yet. I honestly have no idea what it is and it's debilitating. it honestly feels like lupus sometimes. I have yet to be diagnosed with mcas or pots but doctor suspects both. it's hard to find people that take you seriously. this is an every day occurrence unfortunately. no other rashes happen besides minor itching but not red like this. it looks redder in person. thanks!
so my pcp wanted me to go to an endo for suspected adrenal issues that are tearing my life apart (post covid). my blood work showed a lot of concerning results but the endo said it was mostly "normal". she said most of it was probably dysautonomia related or stress related and that it should go down when I treat my high testosterone levels with spirolactone. she didn't even give me proper labs the first time I saw her and just told me yeah you have hypoglycemia and that was that. my PCP was confused on why she didn't order me any blood work and was the one who even ordered then for me. she can't interpret them since she's just my pcp so she sent me back to the endo and I got absolutely nowhere. I'm feeling dismissed and horrible as usual. can't take the fatigue and racing heart and I believe I've already had an adrenal crisis that almost sent me to the er but thankfully I ""recovered"". is this normal or what should I do? I'm terrified of taking the spirolactone because honestly I don't think it would help me for my issues and I think it will make my pots worse. I can't handle another medication making me sick by negligent doctors. does anyone know what I should do here??
hard to tell in the pic, but my hands either get really blue/veiny or really purple with lines and veins. does anyone know what this is?
This is my easily most debilitating symptom and I'm in pain and bed every day. My loss of my creativity and brain as an autistic person ruined me. Ruined me completely. I don't think I'll ever be the same. The only thing I ever felt solace and confidence in was my art and creativity and I don't feel it at all, I can't access it and it's lost. Everything feels mush. I had brainfog and didn't think the same for a long time after covid, it was never perfect but I regained it in 2024 after infections and I was so happy for a while even though I had other issues. I got reinfected and developed horrible health issues in January 2025 and I haven't been the same since. I'm an invalid now. I have to apologize to everyone because I don't feel like myself whatsoever and the creative person they once knew is gone. I look at my art from back then and I can't even comprehend how I made it. I'm a goner. Anhedonia and loss of everything and in pain every day, I can't do this much longer.
Tldr: loss of creativity, thoughts, and anhedonia after covid.
my blood test showed no reactions to mold in my system however the house were in still makes me horribly sick. my family has been sick in denial too. we also did mold swab tests and not much grew on them. what can we do?? I'm still not convinced. nothing is visible.
I've felt like my brain has been poisoned for years and years, covid reactivated this for me and I have 10x more intolerable insufferable symptoms. I have no reason to think I don't have Lyme or bartonella since I've lived in a dirty flea filled home most of my life. I am not diagnosed because they don't believe me. I can't afford it. it feels like something is overtaking my body and that I'm being filled with poisonous fluid. I don't know what to do. I can't do anything. I have autism meltdowns every day now and my ADHD and nervous system are frying me. actually fucking poisoned. it's intolerable and I don't know how to get a care team or diagnosis. I keep hitting my head out of frustration and pain and they keep talking about psych ward. I don't know if I can be here much longer