Internal sliding sensation instead of dizziness?
I honestly don’t even know what to call this anymore because “dizziness” doesn’t really describe it properly.
For years I’ve had these weird episodes where it feels like my balance or body perception is just completely off. Not spinning vertigo like BPPV, more like internal shifting/swaying/sliding sensations.
The sliding feeling is honestly the weirdest part. Sometimes it genuinely feels like my whole body internally slides a few centimeters for a split second, even though I’m physically completely still. Almost like my brain suddenly thinks my body shifted position without it actually happening. Sometimes it feels like the world or my body rotated a few degrees left/right for a split second too.
I can even trigger it sometimes while lying down if I tense/move my legs slightly and my body shifts a tiny bit against the couch or bed. It’s like my brain completely overreacts to tiny movement signals.
One thing I’m really curious about:
Does anyone else get this way worse when standing still to pee?
That’s one of the situations where it can suddenly hit me hard:
- weak knees
- near faint feeling
- palpitations
- feeling like I need to sit down immediately
- horrible internal imbalance feeling
What confuses me is that I can still:
- drive
- walk around
- move normally overall
So I’m not collapsing or unable to function, but the episodes feel extremely physical and real.
Other stuff I have:
- neck/upper back tension
- tinnitus episodes
- visual snow/BFEP
- occasional nausea
- legs buzzing/tingling sometimes, especially when hot
- heart rate jumps up when standing
I’ve already:
- had blood tests done
- had MRI of cervical spine
- been to eye doctor
- been told it’s not BPPV/ear crystals
Everything mostly comes back “normal”.
I’m honestly tired of hearing “anxiety”, because these episodes often happen when I’m mentally completely calm and come out of nowhere. Of course it makes me anxious afterwards because it feels fucked, but that feels more like a result than the cause.
I’ve even completely cut caffeine.
Has anyone here experienced something similar?
Especially:
- internal sliding/shifting sensations
- standing still intolerance
- near faint feeling without actually fainting
- weird proprioception/body position feeling
- symptoms while lying down or moving legs slightly
And if so:
- what did it end up being?
- did anything actually help?
- any good specialists/clinics in Europe or Denmark?
At this point I’m mostly just trying to figure out what the hell is actually going on.