A whole year of flares and info after a tube to be disregarded in my chart and clinical notes
With the amount of people telling me I needed to switch care I started to look into my care team at UT and my documented notes. I Wanted to see the clinical notes from my last appointment with my wife and unfortunately there were none from my February appointment. Just a note titled GI PROGRESS REPORT created in January instead. So From Feb 25-Jan26’ was all the information I gave even though I did see him in July of 25’ and Febuary of 26’. I gave so much detailed Information, symptoms, how long they lasted, how much pain I was in, the massive flux in weight due to flares, my quality of life and so did my wife and it was dwindled down to THIS. Like are you fucking kidding me. This is what my clinical notes said verbatim. Mind you he skipped over almost EVERYTHING we both told him.
History of Present Illness
In august had another flair
ANd another flair around thanksgiving
This lasted a month the last time
ANd this is vomiting.
Hasn't taken Desipramine , and uncertain why not
When they take a BM, they will throw up.
Review of Systems
14 systems are reviewed and are negative other than HPI
Assessment/Plan
- Cyclical vomiting
I am very suspicious the patient has cyclic vomiting syndrome and
potentially gastroparesis but they are not taking any medication for the cyclic
vomiting. I want to limit in with 10 mg desipramine at night and see if were actually
able to start improving this patient's care. I discussed the risk with her and there is
some interactions with some of her other medicines but specifically I am trying to limit
been with a incredibly low-dose medication to try to improve the main problem of the
patient's life which is wild nausea and vomiting that happens cyclically during their life.
I would suggest this is more important than some of the psychiatric drugs that they are
on. Again we will start at a low dose.
- Gastroparesis
They are doing their best with dietary modification. I am not can put them on any
other new medication to try to treat the gastroparesis portion.
I’m PISSED this is the same doctor telling me I’m misdiagnosed because of “rapid emptying” mind you I have yet to be able to see those results myself yet and they were taken in spring of 24’. But not only was I misgendered for no apparent reason, but I also was not listens to in detail at all. And now I can’t switch doctors in the department. I called an asked and was refused so now I have to wait till my next appointment at the end of July and ask for a patient advocate to hopefully sit in since my charts do not reflect what I’m telling the specialist the last year and a half and this is part of the reason why I can’t get a tube. I was 145lbs at this appointment in February within two weeks of it I was in a flare so bad I was down to 100lbs crying and begging for the tube on the phone. This was the specialist that said “are you taking the meds” if not there’s really nothing I can do and I refuse to give you a tube.
Does anyone go to UT and know how I can get my fucking charts to reflect what is talked about in the appointment? Because for a 40 minute appointment to be dwindled down to a few phrases is beyond me with a specialist. I’m livid that my history is not matching and this not making me eligible for shit.