The more I think about it, the more I wish I had something to support me when I'm tired but still want to take a walk in the sun.
If you have tested mobility aids, what were you favourite ones, their advantages, or ones you hated, do they have a positive effect?
J'ai une maladie rare extrêmement violente et handicapante, que très oeu de professionnels de santé connaissent. Et là je vois une med généraliste qui fait sa pub sur LinkedIn (déjà ça pue) et fait payer 450 balles la première consult, 350€ chacunes des consultations de suivi. Et elle affiche qu'elle connaît bien cette maladie là.
Je comprends absolument pas comment ça peut être légal. C'est une maladie qui met les gens dans une position d'extrême vulnérabilité, et se faire de la thune, et autant de thune sur ça, c'est d'une indécence totale.
(Sachant qu'en plus y'a zéro traitement donc c'est pas comme si il y avait quelque chose de complexe techniquement à mettre en place)
Je commence à en avoir huper marre de Vinted, y'a que de la revente hyper chère ou juste des trucs pas chers mais où Vinted s'en mets plein les poches, pis on paye une "assurance acheteurs" où on sait tous qu'elle sert à rien.
Mais malheureusement les gens ne vendent leurs fringues quasi que sur Vinted, est-ce qu'on devrait pas, en tant que consommateurs, filer sur une autre appli ? Je pense à Leboncoin parce qu'on peut voir dans sa ville, ce qui est pratique pour éviter les frais de port et frais d'appli tout le temps
I'm doing an insanely interesting internship in an hospital but of course it's too much for me to handle.
I was ready to push through the last week, because I have a super cool patient that I really wanted to follow and help all by myself, but the weekend rest wasn't enough and I know I won't have the energy without endangering myself.
So I did the clever thing and got a video med appointment for tomorrow to get at least two or three days off. Seeing everybody here taking the disease seriously is an amazing support to avoid feeling overly guilty about it.
Too bad for my patient, my tutor will fill me up; and thanks so much to everyone here for existing, this type of decision always felt so isolating before, now I can share it with people who understand <3
Summary: new here, 26F, french, don't understand mild /moderate yet ?, autistic, loves drawing, science, my cat, dms open
Hello, I'm new here, and when I'm bedbound I mostly scroll online in the dark, which eventually brought me here. Since I'm answering under every post I figured I should probably juste make an introduction post, I hope it's not considered spam ? Probably because I'm french I don't understand what's the difference between mild and moderate? Which one is the worst ?
I'm a 26yo non binary woman, autistic, french, and studying to hopefully become a dietitian. I love art, my cat, and anything sciency. The pic is an old drawing I made about how it feels to have CFS/EM. Drawing is my favourite psychological coping mechanism, it doesn't help with the symptoms so I don't do it when I'm at my worst, but it give a slight meaning to my struggles.
If anybody wants to talk my dms are open, I just might take a while between answers. 🥰