u/LeapcureAdvocacy

▲ 6 r/praderwilli+1 crossposts

A Clinical Study for Adults With PWS Is Now Open in Australia

Do you, or an adult you care for (aged 18–65), have Prader–Willi syndrome (PWS) and experience hyperphagia?

Leapcure is helping connect families to a clinical trial in Australia evaluating an investigational oral medication being studied for its potential impact on hyperphagia and various associated behavioural disorders in individuals with PWS.

At Leapcure, our team works one-on-one with carers to help you understand the study, answer your questions, and guide you through next steps. If your loved one may qualify, we can also help connect you with a participating study site.

To learn more, take our quick survey at https://lpcur.com/rpraderwilli-bmb, and a member of our team will follow up with you.

u/LeapcureAdvocacy — 3 days ago

PWS Study for Excessive Daytime Sleepiness

Hi everyone! I wanted to share a clinical study opportunity for families with a loved one living with Prader-Willi syndrome (PWS).

The TEMPO study, sponsored by Harmony Biosciences, is evaluating an investigational medication for excessive daytime sleepiness—a symptom of PWS.

If you care for someone age 6 years or older with PWS who experiences excessive daytime sleepiness, you can take a short questionnaire to see if this study might be a fit.

The Leapcure team, which is supporting this study, is here to support you every step of the way by answering questions and helping you explore your options. After completing the quick questionnaire, a Leapcure team member will reach out to you. Get started here: https://lpcur.com/tempo-rPWS

u/LeapcureAdvocacy — 18 days ago