
r/Alzheimers

Caregiving is very isolating
I care for my 77 yo husband who was officially diagnosed 3 years ago and has had symptoms for 5 years. He used to have a good group of friends that he would golf and fish with but those friends have faded away. I get it but what really bothers me is his kids never spend time with him. This is a second marriage for us both and his kids were adults when we married. His kids never invite him to spend time with them. Having some time away from him would do wonders for my psyche but it never happens and I feel isolated at home with him. And the kicker is when he dies, his money all goes to his kids. After 24 years of marriage, I get nothing. It’s not all about the money but it does cause me a bit of angst at times.
How do I cope?
my dad has Alzheimer‘, he was diagnosed 4 ish years ago and more recently I’ve noticed it getting worse. Today he couldn’t remember taking my sister home and asked where she was, and then he had me saved in his phone as myirioko, my name is mariko and he’s always had me saved as dia which was his nickname for me. he’s 70, I just turned 16 yesterday. I’m scared to loose my dad early.
Grandpa just passed away after two weeks in hospice care
My grandpa just passed away a little over 12 hours ago. I live very far away from him, and I wasn’t able to be there. My mom’s been there for him every second since he was put on hospice, though. He was formally diagnosed with Alzheimer’s in the summer of 2021, but we believe that he’d been struggling for quite a while before that.
My grandpa has always been larger than life, and one of my absolute favorite people in the world. It feels so surreal to know that he’s gone, and that I’ll never again hear the cheerful way he answered his phone, almost right up until the end. All I can think about right now is how much I’m gonna miss him for the rest of my life.
I got to FaceTime him on Wednesday, which was coincidentally the last day he was conscious. I feel so lucky that I got that chance to speak with him, even though the call was very brief. At the end, he knew who I am. I feel like I’ve been silently grieving him for years. I didn’t know how I was going to feel when he passed, but these last two weeks have been agonizing. I’m just trying to remind myself of the amazing life he lived.
This movie may help some of you understand
if you haven't seen it yet, there's a movie starring Anthony Hopkins called "the father" which shows the effects of Alzheimer's from the person who has it point of view. it really helped me understand how my mom was seeing things. it might help someone here ...this is the trailer on YouTube or just search The Father with Anthony Hopkins
Early cognitive training could protect memory against Alzheimer’s
Study shows early cognitive training may preserve memory and brain connectivity in Alzheimer’s, with stronger effects in males.
How do you tell the difference between stubbornness and the disease? Genuinely asking.
Trying to figure out where the line is between "she's just stubborn" and "this is actually the disease talking"
This has been weighing on me for weeks and I don't really know who else to ask.
My mom was diagnosed about two years ago, early to moderate stage now. For the most part we've found a kind of rhythm. But lately she's been refusing things that she used to be totally fine with — her shower routine, getting dressed before noon, eating anything other than like four specific foods. And I genuinely cannot tell how much of that is her personality (she was always a pretty particular person, very set in her ways even before any of this) and how much is the disease.
Like last week she got really upset when my sister tried to use the voice controls on her Goldilocks shower system to get it started for her. Just dug in completely, said nobody was allowed to touch it, that she'd do it herself. A year ago she would have said thanks and moved on. Is that escalation? Or just a bad day?
The reason it matters to me is that I keep second guessing how I respond. If it's the disease, I know I need to be patient and redirect and not push. But if it's just her being her, I worry that always backing down is actually making things harder long term. My sister thinks I overthink it. My brother thinks we should push back more. We're all kind of guessing.
I've read the stuff about not arguing with someone in cognitive decline and I believe it, I do. But in the moment it's so hard to know which situation you're actually in.
Does this get clearer over time, or do you just kind of accept that you're always going to be a little unsure?
APOE E4 gene.. scared
Did 23andMe for ancestry and found out I have 2 copies of the E4... I'm a 28 year old female and so so scared. I almost wish I didn't know!!! No one in my family has had Alzheimer's yet (on both sides) should I have my parents get tested?? Is there any steps I should take at this point??
Don’t know what to do
Today my Grandfather has been diagnosed with early Alzheimer’s. O ur whole family has been so shocked and sad. I keep crying I don’t know why, I don’t wanna be forgotten. The face when my grandad started crying when he saw my dad is haunting me. I can’t get over this. Someone please help me.
Taping things together with band aids. Pulling out boxes, failing at projects
Loved one is taping things together. He collected a bunch of ink pens and fully taped them with electrical tape from near tops to near tips. Also things like pamphlets he rolls up as well. When he ran out of tape, he began using band aids. He has put bandaids around the connection point between his razor handles and the part that holds the razor on a disposable razor. When asked, his only reasoning was that the band aids were the only adhesive product he could think of that was waterproof. Stated he realizes his brain wasn’t working right after the fact.
He has also unplugged their internet and I am not sure I can get it reconfigured to the modem. Do you think this is Dimentia? Lack of blood flow to the brain? In recent months, He has also busied himself messing with plugs, toilets, bathtub, dryer, and m essed each one of these projects up pretty bad.
He was always intelligent and technologically proficient as a licensed design professional. Not sure what to make of these new occurrences as they seem lacking in logic or reason. Wondering if there are other mental(or physical) processes and at work or “No… it’s just dementia?” Diagnosis from medical professionals has went from Alzheimer’s to more recently be more certain of parkinson’s or at least parkinson’s like symptoms.
Medication tracking
Hi everyone, quick question for caregivers. How are you currently keeping track of your parent’s medications, appointments, and medical info?
I’ve been working on a simple system to keep everything in one place and I’m looking for a few people to test it with.