u/GroovingPenguin

A warning for those with Ric Phonak aids and molds

Y'all I need to give a warning I've learnt recently

I have Ric Phonak lumity so previous generation but that's not relevant

I have widespread cochlear dysfunction,up to 63% is reduced or absent so I need molds to manage it

My ears are too small for canal only so I wear skeletons

Silicone is ONLY available in canal styles, everything else is acrylic phonak won't do anything else

If I knew this I would of actually gone with behind the ears instead

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u/GroovingPenguin — 1 day ago

Update to my mold material issue with phonak and ric

Well first of all we realised they've been made wrong

I've got M powered recivers and they've put a S fitting in causing them to cutout and distort

Second of all,They don't make anything other then canal molds in silicone

I think I've learnt my lesson and next time I'm picking behind the ear models instead :(

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u/GroovingPenguin — 1 day ago

"Exercise and strengthen those muscles!" OVER IT

I'm at the point of fed up and no return

I injured my knee back in December and couldn't weight bare so I visited the GP,who told me I needed to be stronger and "Strengthen those muscles"

A Month goes by and it's still not right so I get MRI

I have borderline no groove,I am walking on dislocated kneecaps (we knew they were shallow but jesus)

Meet up with a knee surgeon who tells me I just need to exercise and strengthen everything to compensate for the instability "Exercise and strengthen those muscles!"

For context

I cannot exercise or walk more then 20 minutes yet I have 4/5 and 5/5 strength on testing (So not exactly weak)

I have elhers danlos syndrome, undiagnosed neurological disorder (cerebal palsy mimic) and chronic fatigue due to metabolic disorders

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u/GroovingPenguin — 2 days ago

I Need help figuring out what size to pick, Calculator saids 38C/D but that's previously been too big? (Possible tubular deformity)

Hello

So I'm trying to buy a sports bra online particularly this one as I'm quite an arkward shape and height but I'm confused by the sizing

https://www.adidas.co.uk/fastimpact-luxe-run-high-support-bra/IQ3359.html

So of course I used the calculator and it came up with 38c/D which C I'm borderline irl it's a bit too big and D oh my god that's huge (from previous fitting attempts)

I'm really confused on what size to go for,38c or 38b?

u/GroovingPenguin — 3 days ago

Silicone molds not available for ric?

As the title saids

We're having a bit of confusion as this isn't something my audiologist office has really done before

I have cochlear dysfunction so I need molds for the gain and occlusion but I have ric hearing aids

So naturally I have slimtips with a Skelton add-on which would be fine in theory but I'm sensitive to acrylic and my ear canals flex a lot (Hypermobility)

We ordered silicone and they came as acrylic,we can't find anyone to awsner why,error or not

At this point we are just assuming it's not an option for these speciality molds/slimtips?

For context these are phonak molds and hearing aids

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u/GroovingPenguin — 4 days ago

Appearntly you can't have ric hearing aids and silicone molds?

As the title saids

I have phonak lumity so last generation hearing aids,reciver in canal

I have mild to moderate high frequency loss but complicated with various other things So domes don't work and I need total occlusion

We've tried acrylic and I can't get along with it,my ears get itchy and swell, they're also too rigid (Hypermobility)

So we ordered a new set in silicone and they came back with...acrylic

They're a specialist option so nobody knows anything and can't tell us why silicone doesn't seem to be an option? (Phonak themselves)

If I knew this was going to be an issue from the start I would of gone with bte

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u/GroovingPenguin — 4 days ago