u/Frosty-Respond-541

So for the past 3 years I have been getting symptoms of muscle and bone pain aswell as neck pressure.It has now progressed to the point where I have no quality of life.The burning neck and back muscles are so severe I'm in tears constantly and my bones in the same area feel like their splintering.Some nodules were discovered on my thyroid a year ago and the biopsy was negative for cancer but there were signs of past thyroiditis.I requested another thyroid ultrasound a couple months ago and I currently have thyroiditis and there was no changes to the nodules.Last year my tsh levels were at 6 and most recently have gone down to 3.7.I have been to countless specialists and been admitted to countless hospitals just to be told it's nothing.I literally am at my wits end.I have put on like 30kg over the last 3 years and my stomach is constantly bloated.I feel that whatever is going on with my thyroid has caused neuropathy too.Im after some advice in how to finally get a diagnosis because as soon as a dr hears I have ptsd I'm immediately dismissed.Im sorry this is so long but I'm literally on the edge with all these symptoms especially the burning muscles,restless legs and air hunger.Thanks for any help u can give 🙏

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u/Frosty-Respond-541 — 15 days ago

Just wanted to get some opinions on whether this sounds like neuropathy.3 years ago I started to get a slight pressure in the back of my neck.It would occur maybe once every few weeks.Saw a few specialists who dismissed it.It started to progress and would occur more frequently and I started getting severe burning and it spread to my shoulders and upper back.It has now progressed to the point of occurring every day and the burning,stabbing,tingling is at the point I don't want to live anymore.I have spoken to several different specialists and been admitted to hospital countless times because I feel like my body is decomposing.I get air hunger when it's really bad and feel incredibly weak.Ive had countless blood tests,ct scans,brain mri's,bone scans and ultrasounds to be told it's nothing and be dismissed.I am at a complete loss as to what's going on but it has the characteristics of nerve pain.Im sick of being dismissed and am in tears every day.Ive made an appointment with a new neurologist in 2 weeks but thought I'd ask here if this at all sounds similar.Im sorry for the long post but I'm literally on the edge.Thankyou

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u/Frosty-Respond-541 — 15 days ago