r/Hashimotos

to my ladies with hashi-

ive been on levo 25 mcg for about 4 weeks and 3 days now. of course the middle of it I got my period and the longesssst period, bouts of anixiety, crazy fatigue you name it.

is this going to normal out for future periods or is every period going to suck now?

i also dont know if the levo is sitting well with ms but everyone is telling me to give it time. my endo sucks but I have an appt with a better one in 3 months.

is it true, will this normal out in 2 months?

my mother was recently diagnosed with hashimotos. i had bloodwork done in december which showed i had slightly elevated ldl. after some online reading on hashimotos, i learned that it can result in elevated ldl. i had a doctor tell me that my thyroid numbers weren’t quite in normal range about 2.5 years ago (i can remember is they were high or low). should i get lab work done? how often should i monitor my bloodwork?

I have been on 37.5 for almost 6 weeks. I still have a swollen/scalloped tongue, am forgetting everything (like while in the midst of a conversation), lower heart rate, and feel very emotionally flat. I had some energy around week 4-5, and my sleep got much better, but then I just slowly have tapered down in energy again. I am thinking I will need to go up to 50 mcg. I have enough meds I could up it myself but am afraid it would mess with my labs in two days. What symptoms do you notice when you need more medication?

My levels are very unstable and i feel constant pvcs. Is this normal? I am not medicated. I got cleared by an echo but pvcs are driving me totally crazy. My antibodies are high tpo is 392 tg is 320. My tsh is crazy like its going 4.7 then a month later its 3.5. I got blood drawn 3 days apart and one day show my tsh is 3.5 3 days later its 2.9? Doctors dont give me answers at all they only gave me beta blokers which i didnt take since im breastfeeding atm. Can these tsh increase/decrease cause my sypmtoms?

I used to be a huge nap person and I would fall asleep so easily. I would need my alarm to wake me up. it wasn’t until December of last year that I started waking up at 3am-4am and no matter what I did I couldn’t go back to sleep. I’m still dealing with this issue now.

is it even possible for hashimotos to progress like that ? from being a sleeping tired person that could nap all the time to out of the blue you’re wired and tired and can’t go back to sleep no matter what ? how is that even possible

I am 33M, diagnosed with hypothyroidism / Hashimotos when i was 28. Since then i have had these weird symptoms, and i have addressed them to my doctors, been referred to so many doctors like endocrinologists, gastroenterologists, orthopedics, psychologists, psychiatrists, GPs but none of them could address what exactly was going on, despite i have done the complete blood work done including almost everything.

The symptoms are the same till date, some worsened, but the endocrinologist has prescribed me Thyroxine and referred me to a psychiatrist, where it doesn't help. I don't understand what's going on, and i am quite tired now dealing with all the symptoms like:

• Current / Recurring:
  • weight increased from 77 kg to 105, now stuck at 98 kg
  • globus or a feeling that something is stuck in my throat
  • fatigue, most of the time
  • barely feel hunger
  • cold intolerance
  • no matter how much I do strength training or walk or cardio, i couldn't lose weight or get rid of this fat or gain muscle
  • random body aches or muscle cramps
  • recently, it happened that i had a panic attack, with a shortness of breath and inability to walk or move my limbs, was rushed to the ER where pulse was 113 and bp was 136/91 but doctor said it's just a panic attack, i did tell him that i had panic attacks in the past but never had this feeling before, i even requested for ECG but he didn't perform, since then my resting heart rate while being awake is in 80s to 90s, if i do just random strolling it jumps to 110 to 120s and easily above 130 with low paced walk.
  • upper back pain along with that mid back pain and when i wake up, it feels like the pain is also coming in the chest and abdominal area, i just couldn't change the sides or stretch my back, it hurts
  • on taking deep breath, my back and stomach hurts and i couldn't take deep breath
  • sleep cycle worsened
  • stress/anxiety/depression and developed a fear of everything
  • severe brain fog and inability to focus on work, got laid off last year and since then, struggling to find any work as i get blank easily during the interviews
  • get irritated and angry very easily and over the smallest of things
  • Random headaches/migraines
• Old issues that barely happen now
  • headache at the back of the head that travels to neck all the way to shoulder to back and i started feeling dizzy and sometimes pass out
  • hands/feet numbness and tingling

I don't know what is going on, i am so worried, i have gone through complete blood work multiple times over the years but no help.

I wanted to know how could i improve all of these things, i am so tired with all this stuff.

Please guide.

Has anyone else had this problem and have any answers? My whole life since being diagnosed at age 9, i’ve been resistant to all painkillers- ibuprofen and paracetamol hasn’t worked since like age 10, i’ve tried all the NSAIDs i’ve been offered and they don’t do a thing, cocodamol/codeine i can take 60mg (highest dose they’ll give) and it won’t work the second time i try it.

Morphine also stops working after 2nd / 3rd dose

Fentanyl Patch immediately stopped working on the second day (only worked up to like 24 hours when it’s a 72 hour patch)

My height is quite short and my weight is very underweight bc of other conditions

No doctors will prescribe me anything and just say oh idk what to give you

i’m in agony 24/7 365 days a year. its made me have to leave university and work, that was 4 years ago.

What on earth do i do to get some normal painkillers? now keep in mind, bc of this tolerance, i do not take them regularly at all. it would be like once every few months or 6 months like it is not all the time at all bc they simply do not work- so im just suffering

does anyone know WHY this is happening to me and how to get around it? especially with negligent doctors

oh i’ve even tried lidocaine infusions which did absolutely nothing!

My sister has the same body size and medical conditions as me and has absolutely no problem w meds at all! I am the only one I have ever met like this

TLDR: My body has a strange resistance to all pain medication and there are 0 known reasons behind it

*NOT ASKING FOR ADVICE, JUST LOOKING IF OTHERS ALSO EXPERIENCE THIS*

thanks for any insights!

So I went to an endocrinologist that is specialized in thyroids. I paid a lot of money, and he is the head of the thyroid department in the most important university in my country.

I do have very bad health anxiety, and he agreed to move from 75 to 88 on levothyroxine, and I'm afraid of going hyper. To be honest, I had the same fear when starting on 50, which felt like hell; heartburn and fatigue were so bad I had to try going on 75, which felt better for a short while.

I was on 1.4 TSH six months ago, and now I'm at

TSH 2.38 uUI/mL

Free T4 1.10 ng/dL

The problem is some things he said during consultation made me not be able to be confident in his decision-making. I asked about Nature's Bounty B12 and gentle iron supplements, and he told me that 8 ug of B12 could cause toxicity and neurological brain damage because it was 133% of the needed dose for a day. This sounded very strange to me, so I was, "Are you sure?" Is the water-soluble B12 vitamin we are talking about here? To which he answered he was sure. I told him I was put on a 500 mcg supplement by my GP once because I'm always on the low, and he told me that was a very dangerous thing to do. He ended up saying not to take the supplement because iron would give me acidity and burn a hole in my stomach. Of course I'm too afraid to take supplements now. My current B12 is 250 and my ferritin is 34. He says it's fine and that I don't need supplements.

He told me that I shouldn't be on medication because my TSH is not over 10. I told him that I started medication because of a failed SIBO antibiotic course. The gastroenterologist told me that subclinical hypothyroidism affects gut motility and that this causes SIBO. My TSH was 7 at that time, along with fatigue, hair loss, and many other symptoms. This endocrinologist told me that is very wrong and that subclinical hypothyroidism does not affect gut motility in any way.

He agreed to up my medication dose because he said it would calm my health anxiety and that if I saw any improvements, it would be because my health anxiety got better because that kind of increase in medication would do nothing at my current TSH levels.

I also managed to get a TSH, total T3, free T3 test, and total T4. I asked to get free T4, but he told me that free T4 and total T4 are always the same. Again, he agreed to do the test to calm my anxiety only. Which I'm not complaining about; I like to get all the tests I can for calming my health-related anxiety.

Sorry for the long rant. Now I have the 88 pills and I'm too afraid to take them, but it's also very difficult to continue with my current symptoms.

I've been getting Tirosint from Costco for the last 2 years for $25 a month. According to the pharmacist, this was always done through the Costco discount program, not through my insurance. However, for my latest prescription, the cost is now $72. The pharmacist tells me (she's not certain) that the Costco discount program has recently changed and this is the new price.

Has anyone else had their price for Tirosint recently increase through Costco?

Going through my commercial insurance is another option but it also costs ~$70 since it's not on their formulary.

Thanks for any insight or advice!

I started Wegovy Sep 2024. No significant weight loss, no side effects the first few months !! I was confused because people reported nausea, vomiting, constipation, etc lol. About 3 months in, I had some appetite suppression and with walking and dieting I had lost approximately 30 lbs overall. I went up to the highest dosage but discovered that 1.7 was the most I could do since the higher dosage made me vomit. The issue is I feel like the meds stopped working ? Appetite suppression only lasted the first two days then my food noise was back to normal.

When I started the meds, I definitely felt like I’d lose at least 50lbs during my first year but that wasn’t the case. I’m wondering if it’s due to my hashimotos. I’ve actually completely stopped my meds and am now considering a tirzepatide.

I have hypothyroidism from hashimotos. I’m on 100mg of levothyroxine. My levels are finally optimal and I’d like to start working out seriously again. My doctor told me to take it easy when I work out, and I do need extra rest time after a workout to recover. I used to do competitive bodybuilding and ideally would like to do it again someday. I’m just wondering if that’s even a possibility? Are there athletes out there that are able to manage this condition and simultaneously live their lives the same way?

For those of you that do exercise intensely or build muscle: what helps? Are there things you can do to feel better during and after a workout?

These are the two main things I’ve been consistent with: I started taking a shot of aloe vera first thing in the morning on an empty stomach. Not going to lie, it’s not amazing tasting, but I genuinely feel better. There’s some interesting new research that has come out around aloe and thyroid/autoimmune support, which is what made me try it in the first place. You need the inner leaf fillet.

I also take myo-inositol + selenium everyday. From my research, selenium helps reduce oxidative stress in the thyroid (which is a big deal with hashimoto’s), and myo-inositol helps improve how the thyroid responds to signals (like TSH). This combo can help support TSH too. As your thyroid becomes more responsive, TSH can start to normalize instead of constantly being pushed higher.

And before anyone asks yes, I take this alongside my thyroid meds. It’s not a replacement thing at all. It’s like nutrients for your thyroid. I definitely recommend looking into it.

These are really easy for me to be consistent with. I try to do red light a few times a week as well, but I do these almost everyday, and limit gluten where I can.

Obviously everyone’s different, but this was one of the few things where I actually saw a measurable difference, not just “I think I feel better.” My goal isn’t to get off medication, but I really don’t want my autoimmune condition to progress. When you have one autoimmune issue, your chances of developing another go up, so I’m just trying to be proactive and support my body as much as I can. Hope this helps!

I've added the link to the trial if anyone wants to read more about it.

I'm not sure if they use this to treat Hashimotos anywhere else but they don't currently in Australia, hence the trial.

I'm 39F and I live in Australia, I've been diagnosed with Hashimotos for 4 years and like most of you I don't feel any better. I currently take 150mcg thyroxine daily.

The trial is to determine if a low dose of Naltroxene can improve quality of life by reducing the inflammation that causes many of the symptoms we all suffer. It's a double blind, randomised controlled trial and I hope I don't have the placebo! The trial is 6 months long and I will have blood tests and a check in after 3 months then again at 6 months.

Happy to update as I go through the trial if anyone is interested. it's been a week so far and it's too early to tell if its going to work - I'm praying so hard that it works!

If there's anyone from Sydney, Australia, I think they are still looking for more participants.

I got a new PCM who wrote me a prescription for Tirosint after explaining that I was still feeling hypo on Synthroid. My TSH was jumping all over the place, my menstrual cycle is irregular, hair is falling out and very brittle, skin is flaky and dry, etc.

I’ve been scouring Reddit for testimonials because I’m scared that Tirosint is going to cause weight gain or give me hyper symptoms. I remember how terrible I felt when increasing my Synthroid dose and am worried about experiencing that again. Regardless, I am excited to try a medication that doesn’t have any fillers.

Id love to hear your experiences!

Hello good people ☺️

I have a big problem with breakfast, I usually don't eat it, my first meal of the day is around 2 o'clock.

Right now I'm trying to adjust my diet a little better, so I'm planning to start eating breakfast.

Can someone tell me what do you usually have for breakfast? Protein, carbs, fibre? I recently read that fibre is bad in the morning, but I want to hear you thoughts, so I can have a few ideas with what to start.

Those of you who removed your thyroid, how are you doing?! Please tell me. I need to know everything will be great 🙏

Hi! I just got diagnosed last week and I’m kind of confused/spiraling about it. I was on a bunch of hormone meds for fertility treatment and basically right when I got off them, I started having hives one and off for a week or two then I had hives constantly that progressively got worse for a week straight. Got blood work and my TSH was 9.6. That alone was concerning, but then I went back and looked at blood work from July 2025 and my TPO was in the 50s. My doc said that alone was enough to diagnose with Hashi’s. But I’m mostly confused bc I’ve never had any symptoms, just this random month long hives adventure, but it was all after the fertility meds. I’m wondering if this was sitting dormant and the fertility meds woke something up in me? Has anyone else had an experience with fertility treatment and Hashi’s? I’m on synthroid now but will I have hives again during a “flare up”? Will I have other symptoms start? I’m nervous and wondering what changes I need to make to my lifestyle or what I can expect now… any words of wisdom would be helpful! TIA!