r/neuropathy

I don't know my real diagnosis yet. Im seeking another doctor to get a proper diagnosis because no way does carpal tunnel cause symptoms in my shoulders and legs.

Anyway, this question is about how it will impact my job. My job consists of typing and mouse clicking all day. Two computers, four screens. Both typing and mouse clicking make the pain worse. In the past 4 weeks, I'm taking PTO or calling out and slacking off at work as much as possible to get through the day. Wrist braces at night and wrist exercises aren't helping enough, fast enough.

Am I going to have to quit my job? Take a leave of absence? Reduce my hours? Change professions? Has anyone had this problem and been able to return to a 40 hour work week without constant, progressive pain all work day? Will whatever's wrong suddenly leave my arms alone and focus on my legs for a while?

My husband's job doesnt have benefits so we rely on my health insurance through my job. How worried should I be?

Has anyone had any experience with NeuroSalt from Dr Oz and Dr. Phil? It was definitely an AI presentation. It sounds like they are blaming microplastics for neuropathy. They claim their product dissolves the microplastics and the other ingredients help repair the nerve sheathing. A money back guarantee and a million dollars if it doesn't work. We all know about things that sound too good to be true. Dr. Oz claims that he formulated this to save his wife's life. Has anyone had any experience with this stuff? Any success?

Please only respond if you’ve experienced something similar or have meaningful advice.

I’m a 24-year-old male and I’ve been dealing with this for about a year now.

It started during a period when I was struggling with an eating disorder while also training seriously as an athlete. Around that time, I developed a strong burning sensation under my feet, which gradually turned into a feeling like I was walking directly on bone. After a bit of a relapse, that “bone pressure” sensation started spreading to other extremities as well.

Over the past year, I’ve gone through a lot of testing:

EMG: normal

Ultrasound: no fat pad depletion

Bloodwork: returned to normal (there was never an issue with B12)

DEXA scan: borderline osteopenia

MRI: showed bone marrow atrophy

Since then, I’ve restored about 35 lbs and completely stopped physical activity for 8 months.

I was never sensitive to touch, I don’t have any spine or back issues, the zapping sensation is only under my feet, and I have never had any numbness.

Last week, my feet actually felt more cushioned and I was able to go on a 1-hour walk with no problems. This week, the symptoms came back—more of that “walking on bone” feeling around the house, plus occasional zapping during walks.

I recently tried returning to the gym, but I’m worried I won’t be able to continue and may have to stop again.

At this point, I feel pretty stuck and I’m really hoping to hear from anyone who’s gone through something similar or has any insight

My story - 62 year old M:

In the summer of 2025 I felt some tingling and numbness in my right toe. Overtime, the numbness extended into my right foot and I went to my family doctor in early October. By the end of Oct I had seen a neurologist and had a nerve conduction test and emg and many blood tests. The tests showed very minor early issues and i was diagnosed with idiopathic neuropathy and told I would experience slow progression over many years.

By December the buzzing, tingling and numbness extended into my groin and buttocks. MRI of brain and spine came back clean. In January after more blood tests, my neurologist was set on small fibre neuropathy given the clean MRI. During Feb I started to lose strength in my legs, exercise and stairs became more difficult, walking more difficult and then in March I bought a cane, could barely do stairs or walk, and experienced urinary problems etc. Faced with these changes, my neurologist advised me to go to the hospital emergency immediately.

I was admitted to the neurology unit and had multiple MRI, CT scans etc. The doctors suspected chronic inflammatory demyelinating polyneuropathy. A lumbar puncture came back indicating cancer cells. After more tests including a PET I was diagnosed with diffuse large B cell Leptomeningeal central nervous system lymphoma. A highly aggressive cancer with a very high mortality rate if left untreated. I would have died within months without the hospital visit. This is a liquid tumour sitting at the base of my spine, destroying the nerves L1 through S5, basically waist down. This is a very rare cancer, less than one in 1.5 million occurrence.

Before starting chemo I had foot drop in both feet, profound buzzing, numbness, heavy legs, loss of balance, unable to control my toes, and worried I would be in a wheelchair.

I started chemo March 25th and am now completing my 2nd round of chemo. I am scheduled for fours rounds of MATRIX protocol chemo followed by a stem cell transplant.

Very encouraging - my neuropathy appears to be receding. My toes can wiggle again, my foot drop is improving, the “roll of coins” feeling in my feet is gone, I can walk a few steps without a cane and can walk further with the cane. have less symptoms in my groin.

Lymphoma was the absolute last thing anyone suspected. My neurologist said it wasn’t even on his radar and it is a learning experience for him (I respect him for saying this.) The highly specialized hematology cancer unit in a major hospital said this is so rare they get only one case every few years and another very experienced hematologist said she had encountered it less than 10 times in her career.

I don’t know if I will survive, this is a very aggressive cancer. I don’t know what my future holds for mobility, neuropathy etc. I take it one day at a time and am very thankful for the support of my family, friends and medical team. My medical care has been exceptional. I am so thankful to be in Ottawa Canada and have received world class medical care at zero cost.

My story hasn’t ended, there will be more to tell, but if anyone experiences similar symptoms, consider the possibility of lymphoma.

So from part few months when i wake up my last 2 fingers be numb. Most of the times my fingers get shivers and 20 seconds of planks my body starts shaking.

Is this sign of neuropathy? And I feel nerve shaking while push ups

Do you have any recommendations for sandals that fit over fairly wide AFOs? They’re rigid, if that makes any difference.

Also wondering if anyone has any advice for dealing with hot weather… I always struggle but I’m going abroad this summer and it’s going to be a nightmare for me. They get so hot and sweaty and I’m not sure if there’s anything I can do to relieve that. They go up to just below my knees.

I have almost always worn sandals, my entire life, but since I got neuropathy about a year and a half ago I can’t safely wear them.

I got some Oofos (I think that’s the name), but the biggest issue is that I can’t feel when my feet are slipping out of them, and it causes me to trip. So, I got some Crocs, but I HATE the bumps they all have on the sole of the foot, so I refuse to wear those.

Do you guys have any recommendations on sandals (nothing between the toes), that actually stay on your feet when walking and don’t have to worry about them slipping off?

I saw an ad about Bombas today where they have a raised back of their sandal to help prevent them slipping off, which made me think about asking this here and getting your thoughts.

I slowly progressed with leg weakness .. started off as drop foot then progressed to my legs making them very weak. I was given ankle braces to help support me walking around so i wouldn’t trip and help with balance which was ok but then i got really sick and hospitalized with an entirely different health issue. Since that recovering from being hospitalized my legs have become extremely weaker to where i have to rely on a walker now to get around. I’m scheduled to get IVIG next week and also next month. Just hoping it helps my condition so i can possibly get away from this walker . Any response is appreciated . Thank you .. what i would like to know is how bad was your condition and how long it took for you to notice improvement if any improvement at all.

Hi everyone, would love to hear from anyone with a similar experience.

Almost a year ago I developed extreme burning and zapping exclusively below both feet. I am unable to run or place any aggressive load on my feet without symptoms flaring up.

I had an MRI which reported the following: the tarsal tunnel was within normal limits and the tibial nerve was of normal appearance. However the radiologist specifically noted that prominent FHL and FDL musculature narrows the tarsal tunnel and that in some instances this may cause pressure on the tibial nerve.

I also had an EMG which came back negative. I have no numbness. Negative Tinel's sign. Symptoms occur exclusively with load — walking, running, repetitive motion — and resolve completely at rest.

Has anyone experienced something similar? Running out of ideas on next steps and would appreciate any shared experiences or suggestions.

Hi, I have “had “idiopathic neuropathy“ for about six months (40m) now with no known cause. It has gone from not being able to feel it to my feet and palms being slightly numb. I’m in the gym everyday and eat well. Just wondering if anyone has maintained this mild level for a longtime and prevent progression. also taking R Alpha Lapoic acid

The tingling is variable and I haven't been able to tell if my current socks are contributing or if it's just my baseline changing. My neurologist says to reduce external stimulation at the feet as much as possible but hasn't been specific about what that looks like day to day. Anyone track a clear connection between their sock choice and their tingling levels?

…

.So I went on a road trip about 17 days ago at this point but symptoms didn’t start till 14 days ago. It was a 13 hour road trip and I slept in strange ways about half of it on and off. It started with this numb scalp feeling, then a bad headache and since then has been in and off headaches, tingling numbness in scalp, pressure begging eyes, weird numbness in my forehead and pressure in my forehead, tension headaches, it seems like in some ways I have always been in pain since then. The day before all of this started I had very odd tooth pain and a numbness in my left arm I had never before had. The headaches come and go but I have bad neck pain that is pretty persistent. My also temples hurt to push on and that comes and goes, and there is a spot on my neck, mainly on the left that hurts quite bad to the touch, my scalp is also numb in the back as I speak right now. I have this new symptom of my face burning and feeling like the whole thing is on fire. Most of the time it’s a feeling of numbness in my left side, also burning down my whole chin down to neck.