u/Cece_Cookie

Hello! I just switched back to the Omnipod after 1 year on MDI, and another year previously on the TSlim using the trusteel sight.

I'm starting to realize why I switched off the Omnipod, and it's making me sad.

On the one hand, my TIR is 80-90%, and that feels great! I know the Omnipod is known for causing "burning" during boluses and that doesn't bother me too much since I know it isn't 24/7. I'm also on novolog, since I know people ask if it's lyumjev or fiasp (known for burning).

My issue is the pain/discomfort. For clarity, I'm extremely skinny. No fat at all (literally 0) on my legs and thighs. Use buttocks/hip for CGM currently since everywhere else isn't fatty enough, and I still struggle with it. Omnipod I prefer arms, but I barely have any fat there. Stomach is less fatty than arms, more than legs, but most sites there end up with extreme pain, gushing blood, and constant burning and poking sensations. My arms I can feel the canula in me at all times, and they hurt when pressed, or cause a strange sensation (pain but cold almost? I'm assuming I'm hitting nerves).

I just don't want to go back to MDI even though it's more comfortable for pain and sleep. My TIR was worse on shots, I never rotated enough and was developing lumps from insulin buildup, and hated injecting at work or in public. Bolusing with the pod is infinitely easier.

But I'm sitting here with a pod that's now 30 minutes old and it's burning/giving me that strange cold sensation. It's extremely uncomfortable. It's also hard not to hyperfixate on when it's this painful, or causing this much discomfort.

What can I do? I already barely know where to use my CGM, but now I'm struggling to use my pods. If leg is a no, stomach is a huge gamble, and arms are the best but STILL cause pain, where else is there? I weigh very little and this has been a constant struggle in the past few years (because of weight loss to where I am now, inability to gain it back).

Just looking for support, because I don't want this to fail me too :(

Basically my question is the title! My last two sensors have been decently accurate compared to in the past. In large part I believe it's due to finding a site location that works much better for me. My issue is they die around day 9/10.

Day 8 or 9 starts up with some issues like being 60 points off (always lower), so I miss some high blood sugars until I've been high for an hour or more. Then by day 10 it's up to 100 points off. I keep a running logbook in my notes! Today it was off by 60 points twice, and 100 points twice, conveniently while I was at work.

It had read 150 and then 236, and then 129 and 214 (higher numbers being fingerstick, lower being CGM). This was multiple hours apart. I was also having pain from the sensor which radiated out. That started late last night.

My theory is that because I have a lot of inflammation in my body (other health issues), the CGM filament gets attacked starting at this point. This is that immune response I believe (the reason why we can't have sites or sensors for more than a certain amount of days).

I very much want to try the Dexcom G7 10 day to see if my theory is right, but it may be up to a month (or more) before I can see if I'm able to get any.

I wanted to know if anyone else has had these issues, or has any tips? If it is my body attacking it, I'm not sure I can do much. But I just wanted to hear other people's experiences (since I can't keep getting replacements from freestyle).

Thanks for reading! :)