u/According_Singer_815

Hello everyone,

I am scheduled for a hysteroscopic myomectomy on the 22nd of May due to a submucosal fibroid. The whole process has taken over a year up to this point (public healthcare) and at the time I started this journey I suspected endometriosis never adenomiosis due to so many ultrasounds.

I got an MRI in a private clinic and it showed diffuse adenomyosis. In my most recent pre op check up the gynae was so dismissive of adenomyosis and acted as if it's super chill not a chronic inflammatory disease. I asked her about risks in pregnancy and if pregnancy made adenomyosis worse and she was very unbothered.

Obviously I have looked it up online but I want to hear from real people and their experiences. What do you wish you had known before TTC? Did you have any risks in pregnancy? Did pregnancy make your adenomyosis worse? I'm worried because this has been a 17 year journey for me to just get a diagnosis which I have fought for. Where I live a hysterectomy would be even harder to get despite all of my issues.

Thank you for reading so far.

Hello everyone firstly thank you for this sub and so many amazing stories. I am a 37 F living in Spain who recently decided to try for a baby after so many years of thinking I wanted to be child free. I am waiting for surgery on a fibroid which my gynaecologist says would impede implantation. I will be getting the surgery at the end of the month but I have also been diagnosed with adenomyosis so this adds another layer of complication. I feel so frustrated and angry this was missed over the last 8 years especially if it means I can't get pregnant.

How did I change my mind? A few months ago it was like a switch flipped and I felt this strong urge to have a baby which I hadn't felt since I was in my early 20s. I keep oscillating between wanting it more than anything and freaking out over the valid practicalities. Things that I think lead me to change my mind.

1. Getting a diagnosis of adenomyosis after 17 years of gaslighting. Honestly it took up so much mental space.

2. Therapy to deal with my childhood- specifically EMDR.

3. Realising I am quitte financially secure - own flat outright, low earner but only work part time so potential to earn more + plenty of savings

4. Knowing I'm in a stable loving relationship where my partner has looked after me so well during my fight for a diagnosis.

5. Realising Spain is such a good place to have a baby. We have assisted nursery places so cost is nothing compared to where I'm from. Spanish people take their kids everywhere 💕

6. Realising what truly makes me happy is not travelling, going out (been sober for 10 years) but spending time in nature.

7. Being put on a low dose anti depressant has taken away so much of my background anxiety. I no longer feel scared of giving birth!

8. Even though both of my parents have passed my partner's parents are both remarried so there will still be 4 grandparents and lots of kids in the family.

9. Imagining reading to our baby, playing with them and decorating their room brings me joy.

10. Feeling upset when I think about not having a baby but ultimately knowing I will be ok , loved and supported either way.

Thank you for taking the time to read and for your own stories.

Hello everyone ❤️‍🩹 I have a submucosal fibroid which is preventing me from trying to get pregnant. I have been waiting for surgery to remove it (partially only the part inside the uterus). Having had painful periods for years and ever increasing symptoms I paid for an MRI privately. MRI was highly suggestive of diffuse adenomyosis and also said my fibroid was severely collapsing my endometrial layer. I'm meeting the gynaecologist again as my GP feels this new diagnosis might change the surgery plan completely. This sounds awful please don't judge me but if there's a high risk of this surgery making my adenomyosis worse or the fibroid grow I don't want it. I know pregnancy can also affect it so I'm also not sure about having a biological child (I'm 38). Has anyone had this procedure who has adeno?What questions should I ask the gynaecologist? Thank you 💕