r/Fibroids

I’m honestly just looking for some support and a place to feel a little less alone right now.

I have a lot of fibroids and I won’t even get into all the details, but two of them are pretty large, around 10 cm each. I’ve been in pain for years and it’s exhausting in a way that’s hard to explain unless you’ve lived it. On top of that, I also have endometriosis, which has been its own battle.

I’ve come to the decision that I don’t want children, and I feel clear about that, but I’d be lying if I said I don’t still carry shame and guilt sometimes. There’s a lot wrapped up in that for me culturally and socially, and it’s been hard to untangle what I truly want versus what I’ve been taught to want.

Right now I’m going back and forth between getting a myomectomy or a hysterectomy. A big part of me just never wants to feel this kind of pain again, but it also feels like such a heavy decision. I still have some time before surgery, but my mind keeps circling it all.

I think I just needed a space to say this out loud. If anyone else has been here or is going through something similar, I’d really appreciate hearing from you. Even just knowing I’m not alone would mean a lot.

Thank you for reading

A lot of options seem temporary, and fibroids come back after stopping… curious if anyone had a different experience

I went to see my gyno, she basically said my uterine wall is covered by fibroid tissue, AND I have a 23cm fibroid beside that. My only option for removal is a hysterectomy. They'll take out everything except my ovaries.

I'd like to hear from people that have had this done. I'm terrified of being unconcious and not knowing what's happening. What was your experience with surgery like? What was recovery like? What are some things you wish someone would have told you that you found out alone? What extra things should I do?

Having conversations with my obgyn about what to do for a 6.5cm intramural fibroid and a 1.5cm submucosal fibroid. They want to do a mini-laparotomy open myomectomy for the big one, and a hysteroscopic myomectomy for the small one. Seems like ALOT of surgery to me. And they mentioned I’d most likely have to deliver via C-section when I do get pregnant. Has anyone been told this? I’m confused as to why that would be the case if I have adequate recovery time before getting pregnant and my fibroids are not super large. I am dealing with heavy bleeding, which is why I want them gone, but surgery is scary and not having options for how I want to eventually deliver is also concerning.

I have found this page so helpful as someone who is really anxious about having surgery on Monday. Reading people’s stories has really put me more at ease.

I was wondering if anyone who has had an open myomectomy or adenomyomectomy and was a little weighty, how you found recovery after.

I am not overweight as such but have put on a little weight since my wedding which I’m really annoyed about as it is mostly round my belly! Now I’m paranoid as this is where the incision will be and I’m overthinking everything.

I am quite active and exercise regularly.

I guess I just wanted to know how others have been and also if it’s worth me getting a binder to help after?

Thanks

Hi all,

I'm 41 and 4 months post op from a hysterectomy to remove over 10 fibroids. I know that 4 months is not a long time and that fatigue is still a symptom in recovery for awhile. So most likely this is all just exhaustion from healing. But I was always tired before my hysterectomy and thought it was the fibroids draining my energy, but I still feel the same now with them gone.

Things I've looked into: Before my hysterectomy my bloodwork was all good. Only thing that was low was Vitamin D. I take 300 mg of Wellbutrin and 37.5 mg of Efexor and thought maybe taking them in the morning was causing mid day crash, but when I take them at night I'm still crashing around noon, except now I'm waking up at 3 am. Oops. So I gotta switch back to morning. Before surgery I did a sleep apnea test and I do not have sleep apnea. I've looked up perimenopause symptoms and I'm not experiencing anything except exhaustion.

I am hoping its just the 4th month recovery fatigue, but I just kinda feel the same as I did before surgery energy-wise. I'd love to hear other people's stories and any advice you might have. Thank you <3

I need some advice. I am 10 days post laparoscopic surgery where they removed a 9cm adenomyoma, 3 endometriomas on my ovaries and a ton of endometriosis. I’m doing really well recovery wise and other than a few really rough first days, recovery has been smooth. I’m struggling to take it easy and relax because of this. I have recently overdone it and ended up back in pain a couple days ago so now I’m trying to take it easier. I haven’t set a date yet to return to work but I figured I would go back at the two week mark after my follow up appointment. My work has been very accommodating and knew I might be gone longer depending on how extensive the surgery ended up. My issue is I work a desk job which is great for going back early, but at this time when I sit upright for longer periods of time my side swells up like there’s a baseball in there. My mom thinks I should give it 3 weeks but I’m doing so well otherwise I feel like it’s wrong to take the extra time. I know everyone’s recovery journey is different but just curious what others have done.

I have a 14 cm fibroid on the left side of my uterus. I do get sharp stabbing pains on my left side on occasions when im laying down to sleep and turn over a certain way. But for the last 24 hours the stabbing pain is more constant and its happening as im walking, bending down, and when I stand up.

Has anyone ever experienced this? I have an appointment with my doctor on the 20th but the pain is pretty bad and im worried that something else might be going on.

https://preview.redd.it/9p5qvqsmqdug1.png?width=468&format=png&auto=webp&s=5f0d4009c36e4c8c9e056b46ce5cd812f7c4cff0

My journey with fibroids and endometriosis started fall of 2024. However, I did not know I had endo until after surgery. I had an ultrasound done January or February of 2025 and only one fibroid was found measuring the size of a plum and sitting at the top of my uterus in the muscle. I was constantly bleeding and in fact bleed for just over a year straight until I had a total hysterectomy done March 23 2026. The ultrasound did not pick up the endo and was told the day of my surgery after it was completed when I asked how everything went. There were also a few other smaller fibroids found. I was surprised but not really surprised about the endo just due to constant “flare ups” prior to surgery.

I bled all the time and periods were horrible, the flareups were just awful, passing massive clots and heavy bleeding, along with terrible cramps. Shortly after the ultrasound (back in early 2025), I just couldn’t deal with all the bleeding and pain. One of the doctors I’d seen prescribed me visanne (dienogest) and explained what it’s meant for (to stop the period). When I should have been thrilled about the medication and I was still hesitant to take it. My entire life (prior to fibroids and endo) I have never taken birth control or any hormones. My period was always regular and did not like the idea of taking synthetic hormones. I kept the prescription but did not take it until a couple months later purely out of desperation to stop the bleeding. The first few days taking it things slowed right down to almost nothing but then went into reverse and each day progressive got heavier and heavier. I was not told visanne has a common side effect of causing bleeding for the first few months whilw my body is trying to get used to the hormone. As months went by I kept taking it despite the constant bleeding. I kept telling myself this will get better. Nearly 6 months passed and I started noticing some improvement but not a lot. My period became more regular but spotting to light bleeding still occurred when I was supposed to be off my period. 9 months later and finally speaking with a gynecologist, I was told it can take up to 12 months for visanne to fully work (for some women) but it’s not a one shoe fits all and may not work for everyone. At this point I’ve been taking it for so long and kept encouraging myself to keep taking it. 10 months later I finally did not have a period – I was thrilled!! The next month came around, and I got my period but it was like x2 and was just awful!! Flareups became worse, everything was worse than before. February 2026 rolls around and I finally get the call from my gynecologist letting me know I booked for surgery March 23.

Prior to taking visanne, I could not find much information about people taking it just for fibroids. I found mostly medical studies by doctors but nothing tangible on forums or other outlets. I wanted to share my story and experience with others in hopes it may be helpful for others. Mind you, I did have endometriosis but did not know this until after surgery. So, as a result visanne is not a guarantee for everyone for both fibroids and endo.

I am 17 years old, and for my last two periods, something quite large has come out of me. I immediately began doing research, and I discovered fibroids. I was speaking to the nurse in my college once and she asked to see my pictures, so I showed. She said that she has never actually worked with anyone with fibroids, but from what she's learnt about them, the symptoms that I was describing and the pictures I showed her could definitely be fibroids. She told me to see a doctor as soon as I could because she said even if they aren't fibroids, something still isn't right. I've been putting off booking a doctors appointment because I'm worried about how it will go and even maybe even not being listened to since fibroids are quite rare in 17 year olds. So, how did you find your initial appointment? What happened during it?

Hi, created a throw away for this probably obviously. I’ve been recently diagnosed with fibroids which has sent me down a rabbit hole of causes, etc (doesn’t seem to be much), holistic approaches etc.

It seems in TCM (traditional Chinese medicine) they say the cause is blood stagnation. I guess I just wanted to ask how common is a dead bedroom situation/lack of a sex life for whatever reason?

Maybe I’m just angry at a lot and grasping, maybe I’m on to something.