Note this is NOT asking for medical advice, but rather how you got into the door for a medical evaluation and how you found a qualified provider to take you seriously. I apologize for the length.
I'm a 47 year old male who has osteoporosis with a history of fractures and a variety of symptoms that make me just not feel like myself. For years, I've been battling constant fatigue, lack of motivation, poor sleep quality, inability to gain or keep muscle mass, bone loss, abdominal and chest fat deposits, and brain fog that sometimes can make me feel like a dementia patient. Libido is nonexistent and I've had severe ED for years.
I've had several labs done. The obvious stuff like thyroid, parathyroid, cortisol, glucose, etc., etc. all came back ok. The one that was questionable was testosterone, which came back at 270. My doctor told me to wait 30 days and check it again. It was slightly better the second time at 332. Neither my family doctor nor my current urologist sees a problem with these numbers and honestly, I'm not even sure if that's the cause of it. But a lot of the symptoms I'm having seem to go along with a testosterone deficiency. Especially the bone loss, which from what I've read can be caused by many years of low testosterone.
What's frustrating is that it seems like nobody is even trying to help me. I've been trying to see an endocrinologist, which my primary care doctor has written me a referral for. Here's the kicker - I've called probably 20 endocrinologists and none of them want to see me without a firm diagnosis and treatment plan. If I had a diagnosis and treatment - what the Hell would I be going to see an endocrinologist for??? Some have told me to see a urologist instead. Other endocrinologists have said they won't see me because I'm not diabetic.
I'm running into the same thing with urologists. None of them are comfortable with my condition and the offices that haven't flat out refused told me to go see an endocrinologist. So I'm caught in an infinite loop. My family doctor isn't comfortable with treating androgen deficiencies and I can understand why - that's something you'd want a specialist for.
I don't want to go to one of these online men's health clinics for multiple reasons. One is I take several other medications and am not sure that or my medical history would be taken into account. Also, I'm not even 100% sure that testosterone is the problem - it just seems that way by process of elimination.
Has anybody else experienced something similar? Have you had challenges finding a doctor who is willing to help you? Were you given any medications or treatment to resolve the issue and if so, how well did it work?