Login

r/spooniesocial

▲ 5 r/spooniesocial

Events Wednesdays: Which accessible events are coming up?

Happy Wednesday Spoonies!

Today let’s share accessible events going on in the near future.

These could be local or virtual, free or paid, yours or someone else’s. 

For each event, include details like:

- Name of event 

- Day, time and time zone

- Link or physical address 

- Accessibility features (virtual, covid safer/masked, wheelchair access, etc.)

Let’s fill this sub with accessible events so everyone can find ways to connect!

reddit.com
u/spoonfulofnosugar — 16 hours ago
▲ 57 r/spooniesocial

We made a music video for ME/CFS Awareness 💙

It’s Intl ME/CFS Awareness Day! 💙

This May, help us spread the word about millions of people who are missing from the world because of Myalgic Encephalomyelitis/Chronic Fatigie Syndrome.

We’re stuck in bed but it’s no vacation. 🛌

Our bodies stopped making energy for things like moving or sitting up or digesting food. 🪫

We can’t tolerate sounds or lights or much of anything really 🫣

And what’s worst of all is there’s no approved treatments and most doctors just brush us off 😔

To help raise awareness, I wrote and edited this Bruno Mars Billionaire parody called “Out of This Bed.” Dougie graciously recorded it for us. And 31 people sent in photos and videos to bring it to life! 🥰

HUGE thank you to all the CFS warriors who helped us. You’re amazing and we’re so proud of what we made together 🙏

Editing this video made me realize that even though we have our own challenges, together we can do great things.

Everyone in this video is tagged and it continues in the comments! 🙌🏻

Featured people with ME in order of appearance (1 of 7):

- @spoonfulofnosugar and u/spoonfulofnosugar(clips 1, 11, 24, 33 and 51)
- @dougieslifewithmecfs (clips 2 and 52)
- @sweet_villal_panda (clips 3 and 40)
- @skye.is.sleepy (clips 4 and 49)
- @katie.lou.moon (clips 5, 27)

u/spoonfulofnosugar — 1 day ago
▲ 19 r/spooniesocial

Are you a spoonie in the midwest US? Say hello👋🏻

Are you disabled, chronically ill or covid-conscious?

Do you live in Ohio, Indiana, Michigan, Illinois, Wisconsin, Minnesota, Iowa, Missouri, North Dakota, South Dakota, Nebraska or Kansas?

Say hello in the comments to meet spoonie friends in your area!

You could share things like your age, location, hobbies or more.

While you’re at it, here’s accessible event groups in the midwest US where you could meet even more people:

Illinois

- CC Parallel Play Chicago (Chicago IL)

- Clean Air Club (Chicago IL)

Ohio

- Ohio Masked and Mingling (central Ohio)

- CC Trash People LLC (Columbus OH)

- CC Queer Martial Arts Club (Cleveland OH)

Michigan

- Safer Shared Air Club

Minnesota

- Clean Air Queers (Minneapolis MN)

Missouri

- CC Art Space - Swan Meadow at STL (Saint Louis, MO)

- Mid MO Mask Bloc (central Missouri)

Do you know about other accessible event groups in the midwest US? Share more groups in the comments!

u/spoonfulofnosugar — 1 day ago
▲ 10 r/spooniesocial

Any signs of you're pushing a little too hard and need to slow down

For me, I get bad headache and tiredness when I pushed a little harder than I should.

Do you know when you need to slow down?

reddit.com
u/Pale-Writer-1756 — 10 hours ago
▲ 6 r/spooniesocial

Talk it Out Tuesdays: How are you doing?

Happy Tuesday Spoonies.

How are you doing? Share your mood in the comments! 👇

You could use an emoji, gif, or good old fashioned words.

Vent away if you’d like. It’s better out than in.

reddit.com
u/spoonfulofnosugar — 1 day ago
▲ 10 r/spooniesocial

Happy Wednesday Spoonies!

Today let’s share accessible events going on in the near future.

These could be local or virtual, free or paid, yours or someone else’s. 

For each event, include details like:

- Name of event 

- Day, time and time zone

- Link or physical address 

- Accessibility features (virtual, covid safer/masked, wheelchair access, etc.)

Let’s fill this sub with accessible events so everyone can find ways to connect!

reddit.com
u/spoonfulofnosugar — 8 days ago
▲ 17 r/spooniesocial

You know those random things that somehow end up carrying you through flare days, rough weeks, appointments, boredom, anxiety, or just life in general? 😭

Tell us what yours has been lately! A movie, show, hobby, craft, snack, drink, game, song, artist, comfort item, random purchase… literally anything your brain has attached to lately 🤍

u/SHLBYHCH — 8 days ago
▲ 7 r/spooniesocial

What are you grateful for this week?

Let’s face it: life can be rough. But a regular gratitude practice can help you appreciate the good things, whether they’re big or small.

Share what you’re grateful for this week in the comments 💬

reddit.com
u/spoonfulofnosugar — 5 days ago
▲ 8 r/spooniesocial

Media Mondays: What content are you enjoying?

Happy Monday spoonies!

We want to know:

- What movies or shows are you watching?

- What music or podcast are you enjoying?

- What books or articles have you been reading?

- What games have you been playing?

- Which content creators have you been liking?

- What content would you recommend to the group?

Share the media you've been liking in the comments below 👇

If you find another member with the same tastes, let them know.

reddit.com
u/spoonfulofnosugar — 3 days ago
▲ 17 r/spooniesocial

Are you disabled, chronically ill or covid-conscious? Do you live in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, Connecticut, New York, New Jersey or Pennsylvania? Say hello in the comments to meet spoonie friends in your area!

You could share things like your age, location, hobbies or more.

While you’re at it, here’s accessible event groups in the northeastern US where you could meet even more people:

New Jersey

- New Jersey Karaoke Group (virtual)

New York

- Upstate Covid Conscious Friends

- CC Queer Craft Club

Do you know about other accessible event groups in the northeastern US? Share them in the comments!

u/spoonfulofnosugar — 6 days ago