r/lymphoma

When I started my treatment my doctor said “don’t worry you won’t be charged for anything”

I already met my decuctible just figuring out I have fucking cancer, and now nonstop I’m seeing discrepancies between my insurance (independence blue cross) and my doctors (Penn medicine). I have over $20k looming in IBX saying I owe that I’ve submitted an appeal for and I’m otherwise ignoring, and I just paid about a thousand to Penn but they sent me another bill for 2 grand. I’ve already paid my 3 grand deductible.

Admittedly I’ve been a piece of shit and I have waited to pay the outstanding bills because I haven’t done a full audit..I’m just frustrated because I’m just trying to survive this treatment but now I’m so scared this medical debt will fall on me.

I’ve asked several times to have a patient advocate and I’m never helped. Just having a cry.

my family member said this too me. This was after I saw my oncologist for a followup and I was telling them about it.

honestly, I do think about it too much.

but it took me years to get diagnosed. (follicular lymphoma)

I just wanted other peoples opinions, is cancer on your brain all the time?

At the moment I’m very happy to be alive and I enjoy my current life most of the time. ( I’m 28 F Hodgkin lymfom surviver)

But I was often lonely during my canser treatment. I very much wanted my treatment to go well. But I kinda accepted that there were a few prosent chances that I might would die and was kinda okay with that realization.

Thinking back it feels strange that I was okay with that. And wonder if anyone else had the same acceptance?

I felt lonely from time to time during my treatment. I was sad that I was spending days that could have been my last during my treatment all alone. I didn’t feel a big celebration when I was canser free either. More like «thanks», and a big relief.

I’m usually posting about bummer stuff on here, so I wanted to post something more positive. I have 3 more infusions and my last one is on May 27th. I genuinely never thought I would make it this far. It has been the longest 5 months of my life. The fact that I will be able to do something like smoke weed again in a little over a month makes me feel like sobbing happy tears. I genuinely think I will cry when I get to do it again.

Anyway, I hope this can bring some hope to anyone who is just starting treatment or is newly diagnosed. I was in your shoes not so long ago and I never imagined that I would make it to the end, but here I (almost) am. Cancer feels like a forever curse, but I am so grateful to science that this will one day be a small blip in my otherwise long and beautiful life. Best of luck to everyone else in treatment! 💜

Hi everyone,

I’m looking for some perspective from others who have been through treatment and recovery for PMBCL or similar lymphomas.

I’m currently about 1 months out from a clean end-of-treatment scan (Deauville 2) after finishing R-EPOCH for primary mediastinal B-cell lymphoma. I don’t have any other known ongoing health issues right now. I was briefly on blood thinners but stopped about a month ago, and I’m only on sleep medication currently.

I’m considering a solo trip to Madrid (from Massachusetts) at the end of July, but I’m feeling a bit uncertain about whether that’s too soon after treatment—physically. I have travel to Asia solo back when I was 21 (now 29F) and confident traveling alone.

On paper, I feel okay and my doctors haven’t raised concerns about travel, but I still find myself second-guessing things and wondering if I’m being overly ambitious or if this is actually a normal step in getting back to life.

For those of you who’ve been through similar treatment:

- How did you feel around the 3–6 month post-treatment mark?

- Did you travel solo or internationally that soon after finishing chemo?

- Any things you wish you had considered before planning a big trip?

I’d really appreciate hearing different experiences, especially from people who’ve been in remission after intensive chemo like R-EPOCH.

Thanks in advance.

Does anyone else use ChatGPT to read about prognosis, scans, etc? Or am I just being dumb

Hello all,

My husband is currently on salvage chemo for NSCHL. We have been reading all the experiences here and on other platforms. He has read that if you early relapsed (my husband in 6th month after getting into full remission), your prognosis is relatively worse (estimated 3-5 years according to the studies?).

As a caregiver, I wonder how long you have been or were in remission after ASCT. He feels down and afraid that if we happen to have a child, he will not be here long enough with me.

Currently he is on BV+bendamustine, 3 cycles and a full PET scan, if CR then ASCT, then 15 cycles of maintenance (bv I guess).

I have been reading posts where the remission durations change. I would like you to hear yours or the ones you know having gone through ASCT

Thanks and blessings to all,

A.

Buenos días! Que tal todo? Fui diagnosticado con linfoma de Hodking hace unos meses, estadio IVB con metastasis en bazo, médula osea y masa bulky de 16x14x10cm en el mediastino, también tenía fiebre alta, sudoración nocturna, picores muy fuertes y pase de hacer 15 horas de ejercicio a la semana a no ser capaz de dar un paseo. Comencé con 2 ciclos de ABVD, después me realizaron un PET y solo conseguí deauville 4, el tumor de mediastino solo había reducido a 14x14x9 cm y aún quedaba captación en varios lugares por lo que pasa a 4 ciclos más de BEACOPP escalado.

3 ciclos después de beacopp conseguí la respuesta completa y el tumor de mediastino paso a 1x3,5x1,5 cm, complete un cuarto ciclo y ahora comenzaré en unos días con 15 sesiones de radioterapia.

La cuestión es que terminé la quimioterapia hace 4 semanas y desde hace 5 días me ha vuelto el picor por todo el cuerpo. El picor es similar al que tenía antes de iniciar el tratamiento aunque menos intenso. Mi duda es si a alguien más le volvieron los picores tan pronto y como termino la cosa. Muchas gracias!!!