r/endometriosisuk

As stated in the title im looking for a BSGE centre, my current nhs consultant has honestly not been helpful at all especially after surgery with my on going problems and pain. I have an appointment with him monday and im going to ask to be seen by a specialist but I want to make sure I go in the appointment with some hospital suggestion.

Im leaning towards Addenbrookes endo unit in Cambridge.

Have any of you been there ? Any good/bad experiences ? Do you suggest anywhere else ?

Where did you guys go to see a specialist and where did you go. I want as much information to walk in my appointment with as honestly my consultant just seems to dismiss me alot.

T.I.A 😊

Are any other people with endometriosis struggling to get stronger pain medication at the moment? doctors are refusing to give me something stronger for my endometriosis.

Background info, I'm 24, and I have endometriosis (diagnosed in feb 2024), i'm on 30mg of codeine, it got increased today from 1-2 tablets 3 times a day to 1-2 tablets 4 times a day. I've been on codeine for years now, and with my pain being as excruciating as it is, the codeine isn't touching it now. I've been back and forth with different appointments for my endo recently and they don't want to prescribe anything stronger than codeine because I am only 24 and they don't want me being drowsy all the time. I spoke to a doctor on the phone today because my pain is unbearable to the point when at times i literally don't want to be alive because the pain is so bad and she said she understood but they really don't like prescribing opioids especially to young people and told me that i should try the coil. I explained that it's not something I'm comfortable with as i've never been sexually active (i also have severe and i also might be autistic) so I've never had anyone or anything go near that area apart from tampons which are too painful for me and she told me that I'm 24 now so I'm coming up to the age where you start having smear tests so I should definitely think about it and honestly it felt like she said "well it's something you're gonna have to get used". My mum took over on the phone for me because at this point I just froze, my mum asked if there was anything stronger they could give me, even if it's just for a couple of weeks and she said she didn't want to give me anything stronger but that she could increase my codeine to 1-2 tablets 4 times a day and increased my nortriptyline from 10mg to 25mg. I'll obviously try this but I doubt it is going to help, the pain is just too much. I'm at a loss because not a lot is helping with my pain anymore, and it's exhausting, it's affecting me mentally and I just don't know what to do.

If anyone has any suggestions, please let me know.

this is my first ever post on reddit so I'm a bit worried about if this is an acceptable post or not.