When you notice yourself in a dorsal vagal/freeze state - heavy limbs, low energy, low mood, overwhelm, shutdown - what is the right way to work with it?
Simply observing it non-judgmentally, allowing it, befriending it, not trying to fix or change it
or
working with the nervous system through grounding, somatic exercises, resourcing, movement, co-regulation etc. to come out of it?
I’m trying to understand what actually helps without creating more resistance or pushing.
Hi. I'm curious if anyone has any insight on this because in all of my research I can never find much about it.
How do these two things relate to the nervous system in cfs:
-sore throat/sore lymph nodes after activity
-feeling worse in the morning?
The sheer number of nervous system and brain retraining exercises and programs is so overwhelming. Does anybody have a “go to” strategy or list that they use? I know it’s never once size fits all.
for those with nervous system dysfunction as a root cause of sibo - what helped get you out of fight or flight?
would meds like guanfacine help that turn down sympathetic overdrive?
I have terrible digestion/, signaling & coordination issues/ outlet dysfunction, no gallbladder ejection fraction, low resting metabolic rate, have failed every sibo protocol, candida protocol, and parasite protocol so the answer has to be my nervous system. I know you can do things like meditate, breathing, etc but I dont have more than 10-15 a day and that doesnt seem enough to fix my issues... Do any meds or supplements help here?
I’m months into my nervous system/brain retraining journey, and I absolutely believe in the science behind it. Although I’m not sure I’ve made a tonnn of progress. What were some signs or things that made you realize “yup, this is working!” during your journey?
For me, I stopped thinking “I’m absolutely going to get worse” and my thoughts genuinely started shifting to “I know I’m gonna get better, and can’t wait for that”
Pretty wild that only a year and a few days ago I was horrifically debilitated and now I'm writing, exercising, working, and living. I'm grateful to this community :)
I wrote out a reflection on the "rules" I've followed for the last year. I'll copy-paste the rules below but if you wanna read more, I've started a substack!
Here's the rest of the article:
what it says in the title. (sorry mods if this is too negative — I’m genuinely looking for advice and don’t want to discourage anyone.) I was recovered for several months thanks to mind body work only to crash again after extreme stress. I can’t get rid of the stress entirely because I have no choice but to move house next month. the thought of having so little energy again, of basically being couchbound (which I am as of yesterday) and having to go through all this again is unbearable to me. i know this is the only way out and yet I feel almost angry towards it because I relapsed. my confidence is shaky now. does anyone have any advice for how to deal with this? It’s almost worse than it was the first time. I can barely use my phone for half an hour and am trying not to panic. I can calm myself down but then the emotions are repressed. are there any videos or recovery stories that deal with relapse? what should I do?
Hi. I've been improving a lot thanks to mind body work in the last year and a half. I've also been on LDN (1mg).
I'm currently attempting to stop taking it. I feel stable enough and I want to assess how much it's still helping (or not). I already skipped 1 dose several times before (no issues). I'm at 3 days without LDN and for now there's 0 change in how I feel or my energy levels.
I know LDN itself doesn't cause withdrawal but of course my symptoms could increase again if LDN was actually helping more than I thought...
Anyone went through this with LDN? I'd appreciate any encouraging stories. Thanks.
Edit: I'm not asking for medical advice or advice about LDN, just for experiences of people who took and then stopped LDN alongside nervous system work. I hope it's okay.