r/autoimmunehepatitis

I was recently diagnosed and started aza only 2 weeks ago and literally within a week I got horribly sick and have been to urgent care twice and am on two different antibiotics for sinusitis and conjunctivitis. Is this how being sick is going to be for the rest of my life? I’m so scared for my quality of life with this diagnosis :(

Hi everyone, I’m looking for some insight from anyone dealing with AIH/PBC overlap.

I was diagnosed last year based on a FibroScan and bloodwork (ANA 1:1000, AMA 1:3200, and LFTs 5x the normal limit). I’ve been on Budesonide and UDCA for over a year, plus Azathioprine for the last 10 months.

I finally had a biopsy two weeks ago, and while it confirmed fibrosis and AIH-like damage, it came back inconclusive for PBC. Now I’m questioning everything. Is it possible it’s just AIH? Or is the biopsy just missing the PBC markers because the damage is patchy?

Has anyone else had a biopsy contradict their bloodwork? Should I push for a second opinion/biopsy at another facility, or just trust the original diagnosis?

I had my liver biopsy done this morning and it was incredibly painful during the procedure. They had to double my meds through my iv. After the procedure they gave me a painkiller pill and i had relief for a couple hours. Now im home and I feel a constant stabbing pain at the bottom of my right ribcage. The kind of pain you get from a side stitch when you run, except its constant and going on like 7 hours now. It let's up only if I lay on my left side.

Was anyone else's experience also like this? I have been reading online that it was quite painless for everyone else. Just wondering if I should be concerned or if it is just because of the inflammation I've had on my liver or something. Thanks in advance

Has anyone ever had a positive AMA-M2 result, bile duct injury/loss on liver biopsy, normal IgM results and normal ALP results and only diagnosed with classic AIH type 1 and no overlap of PBC? Please let me know as I’m deeply concerned and getting conflicting information online.

So I've been seeing all over the place where people are talking about this carnivore diet curing all types of autoimmune diseases. Has anyone here done any research or have experience with any diet curing or causing AIH to come down?

My Mother is diagnosed with Autoimmune Hepatitis. She is taking prednisone for 2 years now. Current dosage is 2.5mg alternate days alongwith Azathioprine 50mg daily. With this treatment, her liver disease is in compensated state but she is not able to walk properly and there is a lot of pain in her both of the knees. We went to Ortho and doctor said it is meniscus wear and painkiller is the only non-surgical solution to provide relief. Now, as the liver is already sensitive and weak, we cannot give strong painkillers to her and due to this, she is not getting much relief. This is really frustrating for me to see her like this because walking is the basic freedom and she is totally blocked. Can anyone please help here by providing some inputs? Also, does anybody going through such osteoarthritis?

Hi everyone, how are y’all doing? I’m seeking some logical insight.
My AIH labs are finally great (ALT down to 50!), but my quality of life is tanking. Ever since I hit my full dose of aza alongside budesonide, I’ve been struggling with fatigue, dizziness (feeling like I’m on a boat, especially indoors) and my HR jumps to 130 bpm just standing still (cooking/working), plus sudden heat waves and tremors.

Strangely, I feel better while working out (moving) than standing still. I feel like my autonomic nervous system is haywire hahahah

Has anyone else experienced dizziness or autonomic dysfunction on this combo? Could it be a side effect of Aza hitting full regime or a mineral imbalance caused by the steroids?

Thanks for any shared experiences! 🌸✨

Hi,

i have overlap AIH&PSC plus UC in remission ( at least what they say ).
For AIH I’m taking MF Mofetil, and my IGG, which was 25 before treatment, now sits between 16 and 18. Sometimes it’s 17, or 18.
My ALT went down to 37 while I was taking antibiotics for gut microbiome, this is related to psc, but when I stopped antibiotics ALT went back to 80.

My hep says UC can increase IGG a bit, and PSC too. So I was wondering if any of you can share your labs in remission?