For my fellow LLL folks: How often if ever do you use a wheelchair?
Do you still use it after you’ve gotten comfortable using your prosthetic, or do you stick with using crutches/cane/walker when needed?
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I’ve been using finger prosthetics for six years now, but I’ve always been hesitant to show them to anyone. Honestly, it’s taken me this long to feel comfortable enough to share.
I recently got a new set here in London, and the difference is huge. Compared to my previous ones—which were way too shiny and kept falling off—these fit my hand perfectly. The color matching and texture are so realistic that they actually help me with my daily routine without me feeling self-conscious.
Sharing these photos with my friends (and here) feels like a massive step forward for my mental health. It’s not just about the tech; it’s about finally accepting this part of me. I have never share any of these to my fd in 6 years at all... such a big step
Just wanted to share this little 'normal' moment !
I was super stressed last night because I have to a revision to repair my wound. I accidentally fell the other day and popped some staples open. I've also been in the hospital for 4 weeks at this point. I've turned to ASMR YouTube videos whenever I'm stressed and need some relief. If you don't like what ASMR is, here's a brief explanation. ASMR stands for Autonomous Sensory Meridian Response, eferring to pleasant, static-like tingling sensations often felt on the scalp, neck, and back. Triggered by soft sounds (whispering, tapping) or gentle personal attention, it is used to induce deep relaxation, sleep, or stress relief. My ASMR trigger is watching people draw or paint. About 10 minutes into watching someone drawing an image of a Roman soldier, I noticed my phantom pain decreased significantly. Within a half hour, it was gone. I don't know if this would work for everyone, but it's worth a shot.
Cuando tenía 10 años me detectaron cáncer de hueso, a los 12 me operaron y pusieron una prótesis interna ya que me cortaron la rodilla y mitad del fémur, el año pasado (2025) la prótesis se rompió y me la tuvieron que cambiar, para este mes ya van 5 meses desde el cambio de pieza pero no he tenido mejoría alguna, llevo con una infección desde el 2 mes de la operación y no he podido doblar la rodilla desde entonces. Hemos estado considerando la posibilidad de amputación, ya que, desde que tengo 12 años sufro de dolor crónico, y viendo a futuro, no quiero estar sometiéndome a operaciones cada que algo en mi prótesis falle. Mi pregunta es, si tú haz sido amputado por arriba de la rodilla, cuáles son las complicaciones que se puede llegar a tener, hay dolor, fue difícil adaptarse a la prótesis? He leído que por el tamaño del muñón puede llegar a ser complicada la movilidad. Agradecería mucho si me cuentan sus experiencias. Actualmente tengo 18 años y creo que a largo plazo una pierna prostetica sería la mejor opción.
LBKA Has anyone ever had a window cut in your prosthetic leg to relieve pressure? They're talking about doing this to mine because of the friction/pressure to the front of my tibia, it forms a callus that becomes painful. They've put pads on both sides of my shin and that hasn't helped. Any opinions would be great.
Ciao a tutti, bka da 6 mesi.
Da l'ecografia risulta che in punta dell'osso, io abbia una calcificazione, che da dentro punge la polpa quando premo con la protesi in certe posizioni.
Sono già in lista di attesa per la operazione di rimodellamento, qualcuno ha avuto qualche esperienza in merito?