r/Type1Diabetes

Very sad to see.

We’ve been living with Type 1 for 5 years now. From day one, we’ve heard the same message over and over: “a cure is coming.”

And honestly… I want to believe it so badly. I picture my son growing up and one day not having to think about blood sugars, insulin, or ketones. The idea that by the time he’s a young adult there could be a real cure or life-changing treatment—it gives me so much hope.

But at the same time, I wonder…

For those of you who’ve been in this for 10, 20, 30+ years—have you been hearing the same thing all along? Does it start to feel discouraging? Like maybe the “cure” is always just out of reach?

I’m trying to find the balance between holding onto hope and staying grounded in reality. I don’t want to become cynical, but I also don’t want to set my heart on something that may not come in the way we imagine.

Would really love to hear your perspective—especially from those who’ve been walking this road longer than we have.

Rant / Vent

I guess I just need to vent and I’m curious to see how others would’ve handled the situation. Over the weekend we decided to go to a paint studio. It appeared there was some sort of small family get together happening on one side of the studio, so my child, mother and I all chose to stay at the opposite end.

Almost immediately, a little girl (around 7/8 years old) with the family-get-together crew approached my child and asked if she could sit with us. I didn’t see any harm in it, and her family members waved her along, so she joined us. A few moments pass and this little girl pulls out candy, and asked my child if they could have some. My child looked at me and I said, “not right now okay? Maybe in a little bit.” (they were still recovering from a small spike after breakfast)

This girl kept asking me, and my child over and over again. Eventually she tried to grab my child away from the painting area, and into another part of the studio to give them candy. At this point I was getting annoyed and explained my child has T1D and we need to wait for the insulin to catch up from breakfast.

Naturally the little girl had some questions (no biggie) how old was my child when they got it, when did it happen, and how did they get it. I calmly explained and kinda did my whole T1D rant.

This little girl shot back with, “I’m lucky I don’t have diabetes!” But not once - she KEPT SAYING IT. Over and over.

My child stared at me, with a blank face. I said “it doesn’t make you lucky or unlucky, it just makes you different. We’re all born differently” - I turned to my child and asked, “what do ya say babe, you think you’re a lucky kid?” My 5 year old hit me with a loud & proud “hell yeah!” My kid didn’t ask for this. And I’ll never let anyone, no matter who it is, make them feel less than for it.

I can’t stop thinking about it. I know it’s not an easy thing to manage or to carry, and it’s surely not the luckiest thing - but I could tell my kiddo was confused and bothered, and looking to me for an answer. If you made it this far - thank you.

Many people with T1D report that their insulin needs change over the course of the menstrual cycle, often quite noticeably, but so far not well studied.

This is exactly where the TIMES study comes in. We aim to better understand how the menstrual cycle affects glucose levels and insulin requirements, and how people manage these changes in everyday life.

Who are we looking for?
People with T1D (ages 18-40) living in Switzerland, Germany, Denmark, the UK, or the USA, who have a regular menstrual cycle (21-38 days) and use an AID system.

What does participation involve?

• Duration: 6 cycles, all done conveniently from home
• Tracking insulin, cycle, and activity data
• As a thank you: 1-year Clue (fertility tracking app) subscription, a Garmin watch (yours to keep), plus financial compensation (50 Euros per cycle)

By participating, you’ll help improve how diabetes technologies adapt to cycle-related changes in the future.

Want to take part? You can check your eligibility here (Switzerland, Germany, Denmark and UK): https://redcap.link/times

For the USA: recruitment starting soon, but you can already sign up for more information

I am a 30M , fairly active. Curious as to what supplements you guys take to help keep you regulated. A lot of supplements out there , some more gimmicky than others and some worry me that can affect my glucose levels.

What are you using currently ? What have you used that wrecked your numbers ? What do you recommend ?

Just been to pick up my monthly prescription of Trurapi pens and have been told they can’t source stock and don’t know if any more will be available. Is this just local (Suffolk) or has anyone else heard this ?

I have a question about the duration of insulin's effects. Everywhere I read, it's stated that fast acting insulin lasts for 3-5 hours. But for me it lasts 1 hour/an hour and a half.

I use humalog. Since I have a slow digestion I have to spread the insulin over the first half of the afternoon.

Wednesday for example I ate 60g of carbs, I had to bolus at 13.00 when I ate, then correction at 14.00, at 15.15 and at 16.30. I have to do like this because if I take everything at once I go in hypo. If I forget or can't do the correction, bg goes up.

When I eat pizza it's the same, I just have to do one more shot and the shots have higher doses.

So, am I getting it all wrong or does someone else share this experience?

EDIT because I forgot some important details: M38, diagnosed february of last year. I use a CGM but not a pump.

Hey all

What is the easiest basal to adjust, quickly.?

Right now im on tresiba.. I love it. Keeps me solid. However, if i make any adjustments, it takes 2-3 days to show.

With a kid on the way, I know I am going to be "go-go-go" alot more, which im hyper sensitive to insulin and drop with any movement.

Id like to be able to dose 2x a day, 1 in the morning (at a lower dose to account for more movement), and 1 in the evening at a higher dose(so I sleep at a lower level).

Lantus?

Im also looking for a quicker onset bolus insulin, and im thinking fiasp?

Just as an FYI, i am on the eversense, and I am looking into the twist. I know that would be ideal for 24/7 tight management and adjustments on the fly.

Any recommendations would be great. Im 1 year in on T1, and im avg over 90% TIR.

As title states. Currently on a pump (omnipod 5) and use humalog for it. When was MDI I used Fiasp as my fast acting insulin. My insurance is currently screwing me over and not letting me refill my prescription for my humalog, but I have a ton of fiasp pens leftover (not expired and been refrigerated) can I just pull the fiasp out from the pen, and fill a new omnipod with it until my insurance decides I’m allowed to buy insulin for less than a million dollars again? Thanks in advance:)

Hey everyone,

I wanted to share something I’m really excited about.

I’m turning 30 soon and was diagnosed with Type 1 diabetes when I was around 26. It was a big adjustment at first, but over the past few years I’ve found my rhythm—especially through cycling.

Training has become a huge part of my life, both physically and mentally. And now it’s led me to something pretty wild:

On September 26, I’ll be competing in the Everesting World Championship in Italy, climbing Mount Etna.

For those who don’t know, Everesting means riding up and down a climb until you’ve gained the elevation of Mount Everest in a single activity. It’s going to be a serious challenge, especially managing blood sugar over that kind of effort, but I’m incredibly excited to give it everything I’ve got.

If anyone’s interested in following along, both the build-up and how the event goes, you’re very welcome to check out my training and daily rides:

Strava: Ansgar Sommerfeldt

Instagram: @norwegianbrothers

Also happy to answer any questions about training or managing Type 1 diabetes during endurance sports.

Thanks for reading!

I am out of insulin, lost my insurance, new job policy starts in June.

I was so scared of going to the pharmacy to refill and use my discount.

But everything works. And the doctor gave me extra prescriptions.

This saved for life for real