r/MultipleSclerosisLife

▲ 14 r/MultipleSclerosisLife+1 crossposts

Cognitive Testing

I’ve been dx since 2021.
I’ve asked my neuro to give me baseline cognitive tests.
The appointment is in June, I made the appointment about a year ago. It’s at a memory care clinic (hilariously located in the office next to the MS neuros and infusion office)
I was told over the phone while scheduling the appointment, that it was an “all day appointment”.
I’m assuming there will be some basic memory tests or something like that.
Has anyone ever done this kind of testing and what was it like?
I’m low-key panicking that I’m gonna be stupid.

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u/aafreis — 3 days ago

New diagnosis RRMS, and spouse burnout

I just got diagnosed with RRMS in January, and I hate to post asking for help or guidance but turns out MS hotlines are closed on weekends, and I’m typing this from rock bottom.

I’m F27 and my spouse is M32, I was not sick when we started dating however I am no stranger to poor health. This RRMS diagnosis came in December 2025, and my mental health plummeted equally as fast. I see my symptoms burning out my boyfriend, we live together and I’ve caught myself trying to hide how bad it is to avoid him getting stressed more. This weekend he had to leave a boys trip because I ended up in the ER for a flare, and today I can feel the resentment. I still barely understand this myself, and maybe that’s how I’m making it worse.

I had an Ocrevus infusion in February, and I’m currently taking baclofen, and lyrica for my symptoms since I primarily experience burning/biting sensations in my neck and headaches/facial nerve pain, sprinkle in some brain fog and confusion. I’ve also developed double vision and struggle with weakness. I feel awful even writing this out because I know there’s worse, but I’m essentially crying out for help.

I’ve turned 180 degrees into a new person he can’t stand (his words), and the worst part is he isn’t wrong. I’m depressed, I haven’t accepted MS, and I’ve lost 20lbs from not eating, and I’m angry this is happening. He’s burnt out, I’m burnt out, it’s a vicious cycle I can’t figure out a way out of.

Does it get better? I don’t know how to accept that this isn’t going to go away, and I need to come to terms before I lose my only support. I feel alone so I came here, maybe I’m hoping to hear how other people have handled this? Not feel alone? Idk, I’m alone in my own home asking for community on Reddit. :(

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u/Affectionate-Sky9404 — 3 days ago

Good times

Well it finally happened. I drop things all the time at home. Like every single day. I have done it when visiting relatives but nothing major.

Today while visiting Epcot, I got a fun new drink to try. I got to a table with my food and drink and promptly my hand just let go of the drink. It spilled all down the front of me, my rollator, the floor, the table. So embarrassing!

I'm sure tomorrow it will be funny, and maybe now I won't be so paranoid about it since it's finally out of the way. But major public dropping things and making a mess? Check!

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u/glitterally_me — 2 days ago
▲ 54 r/MultipleSclerosisLife+1 crossposts

Have any other men experienced little to zero sex life, or inability to feel or enjoy any kind of sex or get turned on?I have tried ED pills, but they only create a frustration because I will get hard , but the sensation isn't there and it ends up making me feel awkward and self conscious. I feel like I'm outside of the "sex club" now, like most of the world is able to do this and I've been banned... and since MS Symptoms began in my early 30s, I haven't been able to have sex. I really just miss the connection with another person, not even just the feeling. This seems to be due to my early affected lesion( on my t8, which affected sensations in my lower body). It seems like a big cosmic joke, but I cannot get turned on or get off... I wish there was something I could do.

Anyone else experience this frustrating symptom, and found any answers? Thanks to you all and wish you all the very best!

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u/iceline22 — 13 days ago